Search found 103 matches
- Tue Aug 24, 2010 7:31 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Had a venography yesterday, in Israel...
- Replies: 11
- Views: 3047
Re: IVUS
Some MS patients have no blockages/stenoses. They do, however, have problems with the valves in their veins or with flaps within veins that impede blood flow. Dr. Simka in Poland found these kinds of problems in more than half of his patients. More on difficult things to catch in venography, by Dr ...
- Mon Aug 23, 2010 8:04 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Dr Jacek Kostecki
- Replies: 32
- Views: 12191
Re: Europa Nostra
I got an email reply from a medical tourism company for this doctor. I realize that its very expensive when going through these tourism agencies. Has anyone had this procedure done by him and not go through a tourism agency?? I know that its silly to put a price on my health but its kinda next to i...
- Fri Aug 20, 2010 8:55 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI gives results right away?
- Replies: 10
- Views: 2956
Puts us all in a tough spot - if we wait for them to perfect the procedure, we run the risk of the disease getting worse. If we rush into it, we are obviously participating in the medical field's learning curve about CCSVI so our outcome is far from guaranteed... but we all hope for great improveme...
- Tue Aug 17, 2010 10:02 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Hi - I am new here. Am going to see Dr. Dake
- Replies: 13
- Views: 3476
Re: Hi - I am new here. Am going to see Dr. Dake
My background: I am a 29 year old male, white/hispanic who works full time. About two years ago I started getting peripheral neuropathies. After two years I am unable to tolerate exercise, have ballooned from 185 to 210lb, have daily scalp/forehead numbness, chronic fatigue, difficulty concentratin...
- Mon Aug 16, 2010 8:59 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 204218
Bulgaria
Yay, just wanted to say that the Albany office called back and I was home and they took my husband's information down. They say at this point that it will be about December time for his appointment. Still a long way away but I am happy and thrilled. Doing a happy dance!!!!! You may get a call from ...
- Mon Aug 16, 2010 8:43 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Ive been Liberated, but NO improvements! :(
- Replies: 27
- Views: 5771
Re: Ive been Liberated, but NO improvements! :(
i know its only been 24 hours since liberation but i see no changes and this bothers me as everyone else seems to see big improvements immediately. I think you haven't been paying attention. According to Siskin, about 1/3 each have marked improvement, mild improvement, and no improvement. This pret...
- Mon Aug 16, 2010 8:36 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 204218
- Sun Aug 15, 2010 9:11 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: my honest and realistic point of view
- Replies: 18
- Views: 4892
Re: my honest and realistic point of view
In my case (SPMS for 3 years), I saw some improvement in vitality, walking, libido, erection and warn hands and feet for about 10 days. Except warmer hands and feet, all is gone now. Why, I really don't know. I had no stenosis but faulty valves. Hey Asher, good to hear from you! I'm guessing that t...
- Thu Aug 12, 2010 11:45 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2371937
Restenosis Rates
So I've been pondering Zamboni's 50% after 18 months observation, and taking in Siskin's "rule of thirds", and I'm wondering if the net effect is drastic under-reporting of restenosis. Think about it - you have 1/3 patients not seeing any improvement .. are they going to know or care if th...
- Wed Aug 11, 2010 11:11 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: NEW!--MS-MRI Mich. conference--Haacke/Sclafani/Hubbard
- Replies: 23
- Views: 5507
With all due respect for all CCSVI investigators .... I think we have found an excellent CCSVI spokesperson in Dr. Hubbard I would have great confidence in Dr. Hubbard being the one speaking to the media on behalf of CCSVI . :idea: We have several other outstanding CCSVI literate spokespersons .......
- Wed Aug 11, 2010 6:45 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2371937
Hi Dr S and others, After a false negative catheter Venogram - Dr S said here was CCSVI when i sent him the images, i am now going to Poland for new testing (doppler/MRV) and treatment But dr S said i had May Thurners too, so what do i ask or request my doctor to do for the procedure? do i just ask...
- Tue Aug 10, 2010 11:18 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: NEW!--MS-MRI Mich. conference--Haacke/Sclafani/Hubbard
- Replies: 23
- Views: 5507
Ty cheer , this is a must see video series - super educational. Excellent, beyond excellent. Hubbard was outstanding too, and I'm so glad he talked about the giant elephant in the room, which is WTF neurology is having such an allergic reaction to CCSVI. This was also the first explanation I've see...
- Sun Aug 08, 2010 7:51 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2371937
- Fri Aug 06, 2010 12:44 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2371937
First video and other postings can be found here: http://www.facebook.com/pages/CCSVI-MS-33-BRATS/286032117064?ref=ts most are reposted here (full-length) on youtube http://www.youtube.com/view_play_list?p=F8484225816B8685 short url http://goo.gl/l5ha massive kudos to girlgeek33 for undertaking thi...
- Wed Aug 04, 2010 10:52 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2371937
Re: TODAY'S DISCOVERY
Today I added a cutting ballloon to my amamentarium of tools for use in liberation. This balloon has some sharp edges of metal attached to the balloon. When the balloon is opened, the metal presses into the tissues. it creates a indentation. After creating the creasing of the vein or valve, I then ...