This Is MS Multiple Sclerosis Knowledge & Support Community

Interesting with the Tysabri. I'd imagine one would have to wait 6 months post HiCy before touching Ty - as you can not use ty if you are immuno-compromised. I tried Ty before HiCy (just two times).... The risks involved would increase post HiCy - and for me, I don't think I'd touch Ty after having...

Thank you, everyone. Jaime - you are right and I am willingly re-dosing.... and hoping, in some strange way, that I get sick. I'm all set.... Arrive in Baltimore and meet with docs on May 5... Enter hospital on May 7th. Just made my plane reservations and those for my caregivers as well. Totally bu...

Hi, Looks like my re-dose is going to have happen in early May. Anyone visiting Hopkins in May? Wanna visit me, too? As of now, the 4 days that are in-patient receiving chemo, I will be there alone. :( I'm scared as heck this time as someone told me that the cytoxin has a cumulative effect. I didn'...

So, that is my question! Dr. Kerr told me to re-dose, sooner than later, as I have some symptoms. My last MRI did not have any enhancement (this was in March. December had enhancement). No word that the lesions are shrinking or anything. I'm just not sure what to do. I wish it was local and hate th...

Jamie and Mel, What remarkable news! Awesome!! Wish my news was as good. Dr. Kerr told me I should re-dose and I still sit here debating it. I don't have any good reasons not to do it (other than losing my hair again, it costs $$$, I don't really have "Good" people to come with me, and my...

Thanks, Chris. I'm trying to think of this as positive - as we get to go back in and re-clean and get it ALL....leave no stone unturned, ya know? Not thrilled about having to pause my life for 4 weeks again...don't know if my practice can withstand it. That is one major concern of mine. Also don't ...

Hi Everyone, Well, it's a go. I'm on schedule to re-dose at the end of April. Still not 1000% positive of this choice - mainly b/c pulling it all together seems like much more of a hurdle this time. I may have to hire "help" to be with me. :( I had a MRI on Friday. It did not show any enh...

Oops, feel bad for hijacking the thread... but anyhow... the neurologists I all saw felt that my presentation of the MS was SO aggressive from the beginning....it came on gangbusters, as they put it. The amount of damage and activity - and physical presentation...all kinda out of nowhere....they jus...

It is definitely worth it - and I still continue to recommend it to others. I seem to have a fairly aggressive MS. My neuro told me this when was dx....that I wouldn't go a few months with relapsing. Well, 5 steroid courses in less than 15 months.... but, 5.5 months free from symptoms or any proble...

Hi everyone, Well, I hate having to report this, but it appears I am in another exacerbation. This is my second once since treatment in July. As you know, the first was in December and according to the MRI there was activity. I saw my local neurologist on Friday...and according to the exam and symp...