This Is MS Multiple Sclerosis Knowledge & Support Community

Hi All, I finally got down off the mountain. Snow, snowed in, snowshoeing, snowskiing, I'm sick of snow and it's not even December yet. Have you seen the Shinning? I guess it's a good lesson in what one is actually capable of. Speaking of which, I haven't checked in here for months and nothing has r...

Yes Bob, it was from Opexa.
Lars

Hey All, I just received a notice that I have a certified letter from Opexa at the post office. I have to be out of town for 3 or 4 days and can't get by to pick it up. Has anyone else gotten a letter? I'm dying to know what's up. I'll let you know when I am in possession, It's probably a bill!!!! O...

Hey Patrick, Good to talk with you after a somewhat non-self imposed break. 3 years relapse free? I would just continue what you have been doing! I am, at this juncture a "huge" LDN fan. 5 months and better than I have been in years. I would submit myself to the Tovaxin trial if it were pr...

Holy Crap, I guess I picked the right time to check in. Has anyone spoken with their trial coordinators? I'll try to check in more often, I miss you guys.
Be Well.
Lars

Hi All, I haven't been around in the past few months and I'm sorry to see there is not much news on the Tovaxin site. I have gotten divorced, moved to a super rural hunting cabin, have no e-mail and I think this is my farewell. I appreciate all you have done for me over the past years and still hold...

As I continue to hear of Cladribine's push towards approval, it occurred to me that I haven't really heard a lot of discussion here about it. Has anyone taken part in the trials? The data seems impressive to this point.
Thanks,
Lars

I'm sure I may be the last to have seen this, but at least it is new for me on the Opexa site. Judging by the last paragraph they seem determined to get this to phase 3. I'm not sure how that affects us.
http://www.opexatherapeutics.com/tovaxin.php
Lars

Sorry if this has already been addressed, but beyond Zamboni, Drake, etc, has there been any trials concerning CCVI? And is there any published work from the afore mentioned Doc's showing efficacy?
Thanks,
Lars

In stumbling around the clinical trial site I found this. How relevant might this be to this thread?
http://clinicaltrials.gov/ct2/show/NCT0 ... en&rank=31
Lars

To fully make the most important point; To all who have or will be brave and committed enough to seek answers according to their research, ideals and thinking beyond current therapies........YOU ROCK!!! The answers lie in those who put themselves on the front line. Most people associated with this f...

Sharon, OK, I'll bite. I am 2nd generation Swede. My Father immigrated in the early 50's so I definitely fit the MS profile. If it turns out that there really is venous insufficiency across the board with those of Northern European decent, I think I will be in line with a ton of people who would now...

Loob,
I totally agree. The point of this thread to begin with was not to undermine this theory or dispute it's relevance but only to play devils advocate and question the science on a deeper level. I have a hard time buying that CCVI comes with a Latitude map.
Lars

Chris, Point being, what causes the weakness? A genetic disposition is one thing and possibly/hopefully it will help. But if, for the majority of those with MS there is an underlying cause, where does it end. Fix one vein and hopefully it does the trick but who knows if the weakness will present aga...

One last bit of hijacking to prove a previous point about degrees of EBV. This is from the link I posted earlier. Please note the wording of highest levels and lowest levels. I promise not to contaminate the thread further. Lars "Further analysis showed about a 50-fold increased risk of MS amon...