Search found 313 matches

by garyak
Fri Dec 24, 2010 12:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 4- Aminopyridine
Replies: 8
Views: 2356

Is this the drug that has a risk of seizures (1%?)? Oh ya. I'm not allowed to take more than 30 mg per day. There have been some deaths where the compounding pharmacy had made an error by a factor of ten times the dose and people landed in hospital emerg with seizures, internal bleeding and basical...
by garyak
Thu Dec 23, 2010 5:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 4- Aminopyridine
Replies: 8
Views: 2356

I take 3 ten mg caps per day for past year. Made at a compounding pharmacy from rx by my neuro. I get mild increase in mobility. Costs $74 per month - about $3-4000 per mo less than the new time released formula.
by garyak
Thu Dec 23, 2010 4:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Sclafani interview
Replies: 45
Views: 9996

I will make popcorn now.
by garyak
Sat Dec 18, 2010 5:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: pacific interventionalists poll
Replies: 25
Views: 8237

I had a secondary procedure at DelMar vein clinic in San Diego 2 weeks ago. Up to that point they had an approximate restenosis rate of around 10% or so over the first 6 months of just over 100 patients. Everyone who had reverted back to previous symptoms were all found to have benefitted from a sec...
by garyak
Fri Dec 17, 2010 6:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My local newspaper - MS ccsvi article
Replies: 2
Views: 1798

My local newspaper - MS ccsvi article

I was a bit mis-quoted twice but this is a start of a publicity campaign by our local ccsvi advocacy group with cooperation of a local reporter. My pic is from my ESPN interview at this year's world series of poker where I was able to bring some awreness to MS. My chubby MS bod, lol. http://www.dail...
by garyak
Fri Dec 17, 2010 5:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Poll *Do you have headaches? often?*
Replies: 16
Views: 6133

I have been diagnosed for 3 years and just started getting headaches about 5 months ago - daily. Never had headaches before. They stopped completely after my first venoplasty.
by garyak
Fri Dec 17, 2010 5:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Alberta to study vein therapy for MS
Replies: 2
Views: 1734

I live in Alberta and consider this a plus to help clinical trials go forward close to me and fellow albertans. It says; “This study is a response to the remarkable interest amongst MS patients in the new MS treatment proposed by Dr. Zamboni,” said Dr. Tom Feasby, dean of the faculty of medicine at ...
by garyak
Mon Dec 13, 2010 10:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Success (A Christmas Miracle, Frankly)
Replies: 28
Views: 7616

Mark, I am still wiping my tears over this miracle that you helped create. This is the christmas story I will share with my wonderful family. The san diego area has the del mar vein clinic that has done over 150 procedures now so keep that in mind.
by garyak
Wed Dec 08, 2010 3:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: An Open Letter to Mark Freedman
Replies: 27
Views: 6169

Freedman is the worst of the worst. He has ( unfortunately ) a lot of clout with his advice he gives. He is obviously SUPER biased as everything I have read about what he says is so one-sided and totally close-minded. He will most likely continue to taint any canadian based research that he can get ...
by garyak
Wed Dec 08, 2010 2:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: An Open Letter to Mark Freedman
Replies: 27
Views: 6169

is there another way to view the letter I am not on facebook
by garyak
Sun Nov 28, 2010 11:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Answering Accusations
Replies: 73
Views: 13181

Joan, Keep that upper lip stiff and I support all you have done and continue to do. You deserve better,gl,gary
by garyak
Thu Nov 25, 2010 10:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Newfounland is starting a unique treatment trial
Replies: 1
Views: 1396

Newfounland is starting a unique treatment trial

http://www.theglobeandmail.com/news/nat ... le1812849/

A team of neurologists will examine patients neurologically who travel abroad for the procedure pre and post procedure . They are recruiting patients now.
by garyak
Thu Nov 25, 2010 10:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New Brunswick will fund MS/CCSVI vein-opening treatment
Replies: 1
Views: 2256

this kind of acknowlegment from governing bodies and action is great to see up here in canada-there is hope
by garyak
Thu Nov 25, 2010 9:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Clots and Stents - How to treat?
Replies: 4
Views: 1911

where in canada do you reside? good luck
welcome to TIMS

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