Search found 187 matches

by shucks
Tue Jan 17, 2012 7:25 pm
Forum: Stem Cells
Topic: Repairing MS damage in advanced age MS
Replies: 2
Views: 2185

Re: Repairing MS damage in advanced age MS

Cool stuff
by shucks
Sat Jan 14, 2012 11:15 am
Forum: Stem Cells
Topic: 2 Years Post HSCT And MS Still Stopped
Replies: 167
Views: 51678

Re: 2 Years Post HSCT And MS Still Stopped

Thanks for consolidating all of that info george. I have exchanged emails with a fair amount of those guys, and most were hugely helpful in making my decision to follow up on this treatment.
by shucks
Thu Jan 12, 2012 8:23 am
Forum: Stem Cells
Topic: 2 Years Post HSCT And MS Still Stopped
Replies: 167
Views: 51678

Re: 2 Years Post HSCT And MS Still Stopped

Between advice from George, Asher, packo, Dave at active msers, and some folks over at Patients like me, I have had a chance to personally correspond with 8 or so people who have had the procedure outside of forums. Other than Stella, Everyone I have spoken to has had similar results. I also talked ...
by shucks
Tue Jan 10, 2012 7:13 pm
Forum: Stem Cells
Topic: 2 Years Post HSCT And MS Still Stopped
Replies: 167
Views: 51678

Re: 2 Years Post HSCT And MS Still Stopped

I got the numbers from a combination from the phase 1 trials and several people I have talked to who went through the trial and told me their release stated a 5% rate was the rate that people had to agree to to go further in the trial. Anecdotal evidence from people who had the hsct procedure and to...
by shucks
Tue Jan 10, 2012 10:46 am
Forum: Stem Cells
Topic: 2 Years Post HSCT And MS Still Stopped
Replies: 167
Views: 51678

Re: 2 Years Post HSCT And MS Still Stopped

George's numbers are a little cherry picked, but are true from what I have read. The initial studies were done on sp and pp patients, several of whom progressed later on according to the phase one findings. 85% were progression free at 3 yrs, and 5% had died of TRM of some sort or other. Since the B...
by shucks
Sun Jan 08, 2012 8:24 pm
Forum: Stem Cells
Topic: 2 Years Post HSCT And MS Still Stopped
Replies: 167
Views: 51678

Re: 2 Years Post HSCT And MS Still Stopped

Since Dr burt was the pioneer of the use of hsct for ms, I will defer to him.
by shucks
Sun Jan 08, 2012 7:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Neutral or Critical Perspectives
Replies: 185
Views: 73647

Re: CCSVI Neutral or Critical Perspectives

I am completely neutral to the debate, but wonder why folks put so much stock in something that science says is iffy, while often turning their backs on things that science says works? This is not a flame, I am just curious. Campath, cytoxin, and HSCT seem to work, according to science, but I cant f...
by shucks
Sun Jan 08, 2012 5:40 pm
Forum: Stem Cells
Topic: 2 Years Post HSCT And MS Still Stopped
Replies: 167
Views: 51678

Re: 2 Years Post HSCT And MS Still Stopped

It would be nice to have a friendly face if it gets that far. I will probably go up by myself, as my fiance will have to stay and keep down the fort at home. My dad would like to come, but I dont know about that either. No matter what, i have a positive mindset and want to thank you guys.
by shucks
Sun Jan 08, 2012 2:05 pm
Forum: Stem Cells
Topic: 2 Years Post HSCT And MS Still Stopped
Replies: 167
Views: 51678

Re: 2 Years Post HSCT And MS Still Stopped

Doesnt the re vaccination only apply to the myelablative protocol? I thought I had read that somewhere before. As an aside, I have an appointment to meet Dr. Burt in chicago on 2-1, and hope it goes well. thanks to asher, packo, and george for turning me on to this idea a year or so ago. I have read...
by shucks
Wed Dec 14, 2011 7:41 pm
Forum: Stem Cells
Topic: Stella HSCT Updates
Replies: 37
Views: 10962

Re: Stella HSCT Updates

What a strong lady. I think of her every day while I try to fund raise to get the treatment that almost killed her and led to her deafness. It is wild that someone can have that much guts knowing the risks and stay so spirited with what she has gone through. I hope she knows how many people admire h...
by shucks
Wed Dec 14, 2011 6:56 pm
Forum: Stem Cells
Topic: My CtrlAltDel - Status
Replies: 292
Views: 68346

Re: My CtrlAltDel - Status

Merlin, I understand your pain. It is frustrating, but I think of it this way in my Randian mind : If not for the folks who take the risks and pay the huge amounts, those of us who need help with their issues would never get it , as the market wouldn't come up with these solutions without some payme...
by shucks
Wed Dec 14, 2011 4:51 pm
Forum: Stem Cells
Topic: My CtrlAltDel - Status
Replies: 292
Views: 68346

Re: My CtrlAltDel - Status

I would think that with this disease the donor type would be way too risky. You risk graft vs host disease and loads of other things that would be way worse than taking your own cells, saving them, and giving them back. I met with my PCP yesterday, who has been the most supportive guy in the world, ...
by shucks
Mon Dec 12, 2011 8:03 am
Forum: Stem Cells
Topic: My CtrlAltDel - Status
Replies: 292
Views: 68346

Re: My CtrlAltDel - Status

Thanks for the further explanation. Exactly what I wanted to know.
by shucks
Mon Dec 12, 2011 7:04 am
Forum: Copaxone
Topic: sore injection sites?
Replies: 2
Views: 3190

Re: sore injection sites?

I switched to manual injection and it seems to have helped a lot. I still get the issues, but they are about half of what they were.
by shucks
Mon Dec 12, 2011 7:02 am
Forum: Copaxone
Topic: Missed an injection day
Replies: 4
Views: 8303

Re: Missed an injection day

I talked to a Dr. after I missed a dose who told me that it was ok to take the missed dose as long as there were 12 hrs in between the missed dose and the scheduled dose. I did not want to risk that injection site carzyness, so I just wait till the next day if I miss one. I have missed 2 in the 6 mo...

Go to advanced search