This Is MS Multiple Sclerosis Knowledge & Support Community

LillyMS, I agree with you that the m.s. drugs are toxic. I was DX 21 yrs. ago as RR and am now SP since 2009. I took m.s. drugs for 5 years then stopped. They were just too nasty. I'm now taking ldn only. I started approx. 3 months ago. It was the best decision I ever made re. drugs. The side effect...

Dr. Sclafani You asked if I had seen my opthamologist. No, I haven't because I don't think my vision changed that much, but I can now read, without a magnifier, what I could not read before. And yes, I do have double vision, that has never changed. I've had it for 38yrs. My glasses correct it. I hav...

Dr. Sclafani, I forgot to mention that since my procedures (for RVCS and PCS), my eyesight has improved. Even though I still need glasses, I no longer need a magnifier to read small print. It wasn't immediate, I still recall you asking me if I still needed my glasses after the procedure. It was a fe...

Dr. Sclafani, After reading your reply to MaggieMaes' post, I thought it would be ok to give you an update , here, on my procedures because it was not for "CCSVI". My procedures were 12-20-12 and 12-28-12, you first treated my PCS then stented my LRV. It's been over one year and I no longe...

Hi LillyMS, I started at 1.5 mg and every 2-3 weeks I increased the strength by .5mg. I'm now at 4.5mg. My Drs. would not write a rx for me so I decided to order it online. at www.ldnscience.org. The bottle reads: Dextrose (as a filler). Free of lactose, sucrose, cellulose, Avicel, gluten, yeast and...

want2bike,
Thanks for the links, I agree mostly with what you are saying. I wish I never let my dr. talk me into DMDs, they
made me very sick, they were dreadful. But that was my choice. I've been off them for about 5yrs. now. I still have m.s., but it was such a huge relief to discontinue them.

cheerleader, I agree with you re. GMA and enhancing lesions. Did you mention something about your husbands' many lesions but a reversal of GMA. (after CCSVI procedure)? And doesn't ldn have the same effect, boosting T-cells, as in Drs Bihari and Zagons' research? If that's the case, ldn seems so muc...

Thanks NormB,
I went ahead and ordered from Israel pharm. I don't have a Dr.(yet) to prescribe. My drs.' that I asked said no
so I got it on my own. What a difference it made!! I'd rather order from Skips' Pharmacy, but in the meantime, I'm
very happy with Israel pharm... and ldn.

Although this thread was started a year ago, does anyone have more recent transactions dealing with the pharmacy from Israel? I learned of it through a link at ldnscience provided by the Hubbard Foundation. I ordered from there because I was having trouble finding a Dr. who would prescribe it for me...

Happy New Year Dr. Sclafani,
and all TIMS members

Happy New Year!

Dr. Sclafani, Do any of your 50+ yr olds need a second (or third) CCSVI procedure? What is the average length of time they benefit from the procedure? Did any require stents? Do you think bed-wetting as a child is a symptom of m.s., CCSVI, or NCS? Thank you, I'm so very grateful for the time you giv...

Hi Andrew,
Since I raised my bed one more inch, I still have no morning headaches and that was June 9th. Six months without waking up to
a headache is a blessing. It didn't help with leg pain but I'm still thankful


p.s. Happy belated Birthday

Thanks for the update CureIous,
Is the Dr. treating any other (paying out of pocket for the procedure) MS patients?
And how have you been?

Dr. Sclafani, Since my procedures this past Dec., I've been pain (flank and cramps) free approx. 9 mos. Thank you so much, I'm truly grateful. Even my jaw became unclenched and is still unclenched and pain free. But lately (past few weeks) I've noticed occasional flank pain and pelvic floor pain, no...