This Is MS Multiple Sclerosis Knowledge & Support Community

When you say hotel, does this mean you will have a block of rooms available for people who want to come? I'm eager for a second chance to meet some people properly. This is very exciting. It will be my one year anniversary, too!

I remember when I worked in marketing, there were amazing ways to make statistics look misleading, visually and otherwise. It didn't make any difference whether it was scholarly or commercial. Look closely any time you see statistics, as NHE points out.

This type of experience -- the careful preparation, the research, the ability to provide accurate information where there had been assumptions or hearsay -- this is what will leave a positive impression. It is great that you were able to maintain your dignity and respectfulness, on both sides, it so...

Dania, that is the perefct way to phrase it.

Thank you for the clarification, husband.

Are you also asking for the specific evidence of occlusion/clotting? Via what test? Plan for addressing the issue? (You may have asked; I may have missed that detail.)

Excellent info.

I forgot I said I would say something about IVIg. It works great for a certain subset of people, but not for others. You would know on the first infusion if you were going to benefit from it. From the people I know, it seems to be effective for people who are having a very active and disabling cours...

"And I hope this thread lends a bit of encouragement to newcomers."

This is my laugh of the morning.

Tumefactive Lesion = T.L. = Too Large

"Stop MS in Mice" a found piece with thanks to scripps and rodents of all size stop ms in mice -- it is unclear -- the hunt is urgent -- the body is tricked -- ms is so much easier to treat is mice -- even if it's really going to work in the end -- it will take years -- you just never know...

Just want to add a few more points. :-) It is common for lesions to come and go. My sympathy -- it feels awful to think of all of that going on in your brain. My first MRI showed tons of lesions. My next one, two months later, showed even more lesions, and in different places. I was completely freak...

Another fascinating point is that many people seem to be able to pinpoint exactly when it happened, to the minute. This makes me think of how MS flare-ups happen too. (Obviously this is not how it happens for progressive MS but data would capture which populations had which results.) I fanatsize abo...

Like everyone here I must make the disclaimer -- not a doctor, just someone with the ever-present holes in the brain and a supreme interest in figuring out what to do about it. :-) Welcome. Love seeing a couple working together in this. Trust your own instincts, do your own research, and own your ow...

It's not just sudden. It can be unrelenting squeezing, like the squuezing around the rib cage. The strange thing is that it really is llike a compression bandage pulling tight. -- hence "banding," I guess. I detest it in particular on my throat, where it feels like I am slowly being strang...

This is wonderful to hear. I am so happy for everyone who experiences improvement or any kind of relief. And as you say -- it's especially significant for someone who has been SPMS! I hope things continue to be positive for you both.

Yes, it was my computer being weird. It is haunted. Any time someone gets relief it is a wonderful thing. It is clear that everything is easier, and the happiness shines through. You are lucky that there are physicians willing to try being pioneers. Best wishes for the most positive outcome possible...

All right, to further complicate things, the d-dimer is also high in some people who have MS when they are having a relapse -- and also in other conditions. So a high d-dimer does not necessarily mean that there is thrombosis. a few links http://en.wikipedia.org/wiki/D-dimer http://www.labtestsonlin...