This Is MS Multiple Sclerosis Knowledge & Support Community

I will be losing my private insurance & will be going with a plan where medicare d is used for prescriptions. They have terrible coverage for ampyra. Does anyone know the requirements for ampyra assistance when on medicare d & not private insurance? My part d coverage is with Cigna Medicare...

Has this happened to anyone else?? Yes, I was just informed by my neurologist that my prescription has been moved to the 40mg dose. I was originally hesitant because of the complication to remember to take a shot three times a week instead of daily, but on second thought, I'm glad of this move. If ...

The research is far from over, and I wish Dr. Zivadinov didn't feel he has to put his stamp on everything. Interesting comment. I've learned in life that the "movers and shakers", those that we all have to thank for much in the way of progress, generally have big egos, and are not necessa...

Bowel incontinence is a known symptom that can occur with MS. This has happened to me, I also have trouble holding wind which can be truly embarrassing. I think this has to do with weak pelvic floor muscles that make it very difficult to hold things in. My worst nightmare is having diarrhea on an ai...

...I'll probably continue with yearly MRV follow-up tests, but no further procedures at this point... In looking back over my old posts, I notice that I never updated this topic about my last contact with interventional radiology at Stanford. I contacted Dr. Dake's office last summer (2013) to arra...

Here's the ScienceDaily report on this topic:

http://www.sciencedaily.com/releases/20 ... ceDaily%29

centenarian100 wrote:...a few of the antimuscarinic drugs appeared to have an effect on re-myelination but not as dramatically as clemastine.

Could be very good news for the many people with MS who take antimuscarinics (sanctura, detrol, etc) to help with bladder issues, a possible welcome side effect.

is there any basis to think this may work, or is it a shot in the dark? It looks like a shot in the dark, based on preliminary result of a "novel high-throughput screening program aimed at identifying compounds that would promote oligodendrocyte-driven myelinating activity", accomplished ...

From a MedPageToday article: http://www.medpagetoday.com/Neurology/MultipleSclerosis/44165?isalert=1&uun=g600016d703R5724186u&utm_source=breaking-news&utm_medium=email&utm_campaign=breaking-news&xid=NL_breakingnews_2014-02-06 Clinical trial information: http://clinicaltrials.gov/...

Interesting. I've been using copaxone now for over 15 years, and have NO interest in moving to an every-other-day regimen. I manage taking my own perscriptions and can't imagine how I would keep track of taking a shot every other day. Poor memory makes simple things like this quit difficult. I'm sur...

1eye wrote:A very large enterprise with no morals or scruples whatsoever.

This could be part of the dictionary definition of capitalism as it relates to publicly traded companies.

Is this the beginning of the end of Big Pharma? Probably not.

If consumers knew just how badly the pharms were ripping them off, via medicare, insurance costs, and out of pocket, all in the name of pleasing shareholders, there would be riots in the streets. This comment (minus the reference to medicare, insurance costs, etc) hardly applies only to pharmaceuti...

Regarding the report in medpage today about Vitamin D (I don't know if this is in regard to the Harvard study linked above): http://www.medpagetoday.com/Neurology/MultipleSclerosis/43899 Dr. Lawrence Steinman of Stanford makes an interesting comment about Vit D supplementation and the placebo arm of...

Depends on what you mean by fatigue. Some describe this as an overwhelming need to sleep or inability to feel fully awake. Provigil or amantadine are drugs typically prescribed for this. I experience physical fatigue as very poor physical stamina, which becomes physically very uncomfortable as the d...