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Is Donald Reid or A N Other surgeon also working at the Guildford clinic undertaking the proceedure? Will this reduce the waiting time overall at Edinburgh?

To put things in perspective, I'm PPMS - though nobody has actually said so. I'm a 69 yr/old male, first symptoms mid 1970's, dx'd mid 1980's. So, I'm one who's tried most things over a long period. And I can tell you that a positive outlook has really helped me cope. I don't have good days and bad ...

Thanks Debbie. At least I'm forewarned! I'm a wheelchair user so it will affect me. My scan, in the #720's, wasn't until the end of October, so goodness knows when they'll get round to me! All we can do is to presume that it won't affect the able bodied, and so by the time our turn comes they will h...

Thanks EJC. That's encouraging!

I noted that Edinburgh worked a Saturday appontment. Does anyone know if they allow any flexibility on dates wen offering an appointment, or is it a case of 'This is your appontment date/time' and that's it?

I noted that Edinburgh worked a Saturday appontment. Does anyone know if they allow any flexibility on dates wen offering an appointment, or is it a case of 'This is your appontment date/time' and that's it?

Thanks Mark. Will expect azygous evaluation at the clinic, then.
Would you tell me what scan ref # you were? - (to my inbox if you prefer).
Chris

Thanks, but it's a car trip. Didn't know they worked Saturdays though.

Thanks, but longer than I'd hoped.

Thanks, NHE. I'll try to get this clarrified.

I am on the waiting list for Edinburgh, having been scanned at the end of October. My booking ref # is in the 720‘s. Can anyone give an idea as to what number booking Edinburgh is up to and how quickly they are working through the list? Are procedures to be undertaken at Guildford, and if so, when a...

I am on the waiting list for Edinburgh, having been scanned at the end of October. My booking ref # is in the 720‘s. Can anyone give an idea as to what number booking Edinburgh is up to and how quickly they are working through the list? Are procedures to be undertaken at Guildford, and if so, when a...

I am on the waiting list for Edinburgh, having been scanned at the end of October. My booking ref # is in the 720‘s. Can anyone give an idea as to what number booking Edinburgh is up to and how quickly they are working through the list? Are procedures to be undertaken at Guildford, and if so, when a...

I've read that an early symptom improvement following ballooning is a feeling of warmth returning to legs, hands and feet. Does this occur on both sides of the body, or do both left and right jugulars need to be done for this to occur?

Can someone please define the criteria used to differentiate between these forms? I see Zamboni said that PPMS didn't respond so well to CCSVI treatment. I have never been given a firm dx, just progressing downhill for many years, but I did have just one attack which took me off my legs until predni...