Search found 295 matches

by zinamaria
Wed Jul 27, 2011 8:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Sharing the creativity of the CCSVI community
Replies: 14
Views: 2922

Newlywed, an art quilt sounds beautiful...fantastic. And thanks Algis, we'll keep a web auction in mind...who knows how we'll do it but one thing is clear, I think we can raise funds for CCSVI!
by zinamaria
Wed Jul 27, 2011 11:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 'The internet racing ahead of the scientific evidence' paper
Replies: 19
Views: 4896

Zamboni told me it was Dr. Fabrizio Salvi who used the term 'liberation' for free blood flow, hence he called it that. Hmmm
by zinamaria
Mon Jul 25, 2011 11:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Sharing the creativity of the CCSVI community
Replies: 14
Views: 2922

Come on all you talented ones out there, let's keep this thread alive for some ideas! I think we should find a gallery in NY where they would be interested in hosting this somehow (I do have a friend in Brooklyn with a gallery so I will contact her) and maybe during or around the time of the symposi...
by zinamaria
Sun Jul 24, 2011 2:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Sharing the creativity of the CCSVI community
Replies: 14
Views: 2922

I knew there was art in your life in there somewhere 1eye! I used to teach high school math, go figure.....Great to have you on board! OZ, perhaps there would be someway, if we did not go online with a website as far as an auction goes, maybe there would be a way to at least post somewhere all that ...
by zinamaria
Sun Jul 24, 2011 9:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Has anyone applied to be a TED speaker?
Replies: 20
Views: 4023

Yeah, I stayed in touch with the producer too, for many months asking why it had got sidelined....no real concrete answers there....

Joan, it would be wonderful if you and Jeff did this...you have my vote!

Z
by zinamaria
Sun Jul 24, 2011 6:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Has anyone applied to be a TED speaker?
Replies: 20
Views: 4023

I think Joan is also a great choice, and it does not seem that it needs to be one person, but perhaps a few could expose the various experiences. Yes, Zamboni referred me to see Salvi first thing, and the day we went up to see Salvi at the Bellaria Clinic in Bologna (three hr drive from Umbria and m...
by zinamaria
Sun Jul 24, 2011 6:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Arlene Hubbard's notes on the AAC symposium
Replies: 8
Views: 3221

Welcome Dr. Siskin and thank you for that caution on repeat procedures. It does seem too early to tell whether or not there is increased risk or not with repeat procedures and it makes much sense that we cannot be compared with dialysis patients.

Thank you for your input.

Z
by zinamaria
Sun Jul 24, 2011 6:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Part Two of Wheelchair Kamikaze's presentation is up
Replies: 17
Views: 3097

Great idea, Happy POET, to start a new thread for this discussion...
by zinamaria
Sun Jul 24, 2011 6:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Has anyone applied to be a TED speaker?
Replies: 20
Views: 4023

I would speak, in a heartbeat, for I speak (brag)all the time to others about this thread, of the community, of the incredible resource and support here, information etc. I also found Zamboni and Salvi by doing my own search (had not found TIMS yet) when I went into that huge relapse in the fall of ...
by zinamaria
Sat Jul 23, 2011 7:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Part Two of Wheelchair Kamikaze's presentation is up
Replies: 17
Views: 3097

Man, I'm so excited over the possibilities I keep forgetting things! Bluesky is also a writer!
by zinamaria
Sat Jul 23, 2011 7:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Plavix and aspirin vs coumadin post procedure ??
Replies: 15
Views: 4452

Thanks Cece, yes that was with Dr. Cumming. He said I could change, but I did not see any reason to go with something else at this point. One more week of the plavix for me.... Am doing well, still have a lot of energy but not much change in balance. The heat is tough when it's really hot, but when ...
by zinamaria
Sat Jul 23, 2011 7:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Part Two of Wheelchair Kamikaze's presentation is up
Replies: 17
Views: 3097

Oh, great pic Cece!! It is kinda fun to see the faces to these anonymous names, you guys are brave!

And look forward to your next presentation Marc.
by zinamaria
Sat Jul 23, 2011 7:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Part Two of Wheelchair Kamikaze's presentation is up
Replies: 17
Views: 3097

Bestadmom, I agree! why wait? Perhaps we could harness all this creativity into some kind of showcase...Johnson (not Johnson) is also a painter and a writer. I am a painter and a writer, having published poetry and photography as well, and exhibited my paintings in Italy and of course here in the st...

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