Search found 301 matches
- Thu Jan 07, 2010 9:09 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Hi all, Leetz asked me to post her MRV Pics
- Replies: 48
- Views: 10412
DOES
does anyone see that down by the neck area the left IJV looks flat almost...not so much wide but flat???please tell me or do you think i am bugging out????
- Thu Jan 07, 2010 8:18 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Month 21-Two rounds of campath
- Replies: 6
- Views: 3140
k6tin
hi...thanks for the response...trust me i am all over CCSVI...do you read the forum???my MRV pics are posted there and I have been advocating for CCSVI publicity...as for Campath--i think i got the 12mg. dose--you??
LEETZ
LEETZ
- Thu Jan 07, 2010 8:13 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Licence for Campath?
- Replies: 10
- Views: 4328
SUPPOSE
to be 2012........
- Thu Jan 07, 2010 8:07 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: 6th Jan 2010 (Katowice) - POST-OP
- Replies: 101
- Views: 22415
greyman...
CONGRATS....AND WISHING YOU ALL THE HEALING THAT GOD GIVES!!!
LEETZ
LEETZ
- Thu Jan 07, 2010 7:18 pm
- Forum: General Discussion
- Topic: Phase II study of oral Fingolimod(FTY720) in MS results
- Replies: 13
- Views: 3131
campath
my campath story is under the CAMPATH forum.......no results as of yet...good or bad!!! i have been told"these things take time".........
LEETZ
LEETZ
- Thu Jan 07, 2010 6:42 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Our NMSS and a puzzling review of CCSVI
- Replies: 100
- Views: 22178
SPOKE WITH ARNEY........
SHE IS REAL.......VERY NICE ACTUALLY...spent at least a half hour on the phone with her advocating for CCSVI...started out the conversation VERY angry, ended the conversation in tear's. I was assured that the society is going to advocate for us---I found myself testing her knowledge to see if she wa...
- Thu Jan 07, 2010 4:23 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Month 21-Two rounds of campath
- Replies: 6
- Views: 3140
KRISTIN
by doses to you mean 12mg per dose v. the 24mg...or did you mean day's on Campath because my 1st round was for 5 day's and i am told that 2nd round will be 3 day's...almost 6mos. in with NO result....feel a lil worse not further disabled just NO ENERGY!!!!
LEETZ
LEETZ
- Thu Jan 07, 2010 11:25 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Hi all, Leetz asked me to post her MRV Pics
- Replies: 48
- Views: 10412
HELLO ALL...
THIS IS LEETZ...THANK YOU MARK!!!! WONDERFUL JOB...well they said no stenosis..lol... #1--testing was done on a 1.5T by a TECH!!!! #2 it was read by a neuro-radiologist(WHY???) these are vascular issues!!! #3 NO DOPPLER #4 i can see narrowing and my one IJV looks flattened and is not circular #5 i a...
- Wed Jan 06, 2010 8:26 pm
- Forum: General Discussion
- Topic: Severe Fatigue - Solution?
- Replies: 28
- Views: 6133
YUMMY!
Jimmylegs............can you pass on some of the delicious recipes???feel free to pm me anytime.............you got me hungry for some good healthy food now!!!!lmao
- Wed Jan 06, 2010 7:55 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: World Media Coverage of CCSVI in MS patients
- Replies: 3
- Views: 2102
DR.GUPTA
newhope.............job well done..thanks for link...i did my part and e-mailed him as well as whitehouse/oprah/dr.oz and nightline........let's go MS'ER's...everyone join the movement!!!!
- Wed Jan 06, 2010 5:14 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI - get diagnosed ASAP
- Replies: 12
- Views: 4245
ccsvi-mrv-neg
Whirlaway and all other's......I got an MRV yesterday in upstate NewYork..I am a 4.5 on EDSS scale evaluated by neurologist...a Neuro-radiologist read my result's and was instructed for what to look for...it showed NOTHING wrong...I DO NOT BELIEVE THIS TO BE TRUE and I am going for a second opinion ...
- Wed Jan 06, 2010 4:49 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: US media coverage
- Replies: 16
- Views: 5342
I have
written to...Oprah...Dr.Oz...Whitehouse..and Nightly news.......
Leetz
Leetz
- Tue Jan 05, 2010 4:06 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: GOT MRV
- Replies: 2
- Views: 1523
Upstate
upstate ny....local hospital...3d. 1.5 telsa MRV w/o contrast..
- Tue Jan 05, 2010 2:36 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: GOT MRV
- Replies: 2
- Views: 1523
GOT MRV
got my MRV today w/o contrast...waiting for it to be read...have the cd though and wanted to post images..but have no clue how to...Anyone?
- Sun Jan 03, 2010 8:00 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: 6th Jan 2010 (Katowice) - POST-OP
- Replies: 101
- Views: 22415
Blessings..
May you have a wonderful and successful journey....please fill us in!!!
Leetz
Leetz