Search found 301 matches

by leetz
Thu Jan 07, 2010 9:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hi all, Leetz asked me to post her MRV Pics
Replies: 48
Views: 10412

DOES

does anyone see that down by the neck area the left IJV looks flat almost...not so much wide but flat???please tell me or do you think i am bugging out????
by leetz
Thu Jan 07, 2010 8:18 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Month 21-Two rounds of campath
Replies: 6
Views: 3140

k6tin

hi...thanks for the response...trust me i am all over CCSVI...do you read the forum???my MRV pics are posted there and I have been advocating for CCSVI publicity...as for Campath--i think i got the 12mg. dose--you??

LEETZ
by leetz
Thu Jan 07, 2010 8:13 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Licence for Campath?
Replies: 10
Views: 4328

SUPPOSE

to be 2012........
by leetz
Thu Jan 07, 2010 8:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 6th Jan 2010 (Katowice) - POST-OP
Replies: 101
Views: 22415

greyman...

CONGRATS....AND WISHING YOU ALL THE HEALING THAT GOD GIVES!!!

LEETZ
by leetz
Thu Jan 07, 2010 7:18 pm
Forum: General Discussion
Topic: Phase II study of oral Fingolimod(FTY720) in MS results
Replies: 13
Views: 3131

campath

my campath story is under the CAMPATH forum.......no results as of yet...good or bad!!! i have been told"these things take time".........

LEETZ
by leetz
Thu Jan 07, 2010 6:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Our NMSS and a puzzling review of CCSVI
Replies: 100
Views: 22178

SPOKE WITH ARNEY........

SHE IS REAL.......VERY NICE ACTUALLY...spent at least a half hour on the phone with her advocating for CCSVI...started out the conversation VERY angry, ended the conversation in tear's. I was assured that the society is going to advocate for us---I found myself testing her knowledge to see if she wa...
by leetz
Thu Jan 07, 2010 4:23 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Month 21-Two rounds of campath
Replies: 6
Views: 3140

KRISTIN

by doses to you mean 12mg per dose v. the 24mg...or did you mean day's on Campath because my 1st round was for 5 day's and i am told that 2nd round will be 3 day's...almost 6mos. in with NO result....feel a lil worse not further disabled just NO ENERGY!!!!

LEETZ
by leetz
Thu Jan 07, 2010 11:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hi all, Leetz asked me to post her MRV Pics
Replies: 48
Views: 10412

HELLO ALL...

THIS IS LEETZ...THANK YOU MARK!!!! WONDERFUL JOB...well they said no stenosis..lol... #1--testing was done on a 1.5T by a TECH!!!! #2 it was read by a neuro-radiologist(WHY???) these are vascular issues!!! #3 NO DOPPLER #4 i can see narrowing and my one IJV looks flattened and is not circular #5 i a...
by leetz
Wed Jan 06, 2010 8:26 pm
Forum: General Discussion
Topic: Severe Fatigue - Solution?
Replies: 28
Views: 6133

YUMMY!

Jimmylegs............can you pass on some of the delicious recipes???feel free to pm me anytime.............you got me hungry for some good healthy food now!!!!lmao
by leetz
Wed Jan 06, 2010 7:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: World Media Coverage of CCSVI in MS patients
Replies: 3
Views: 2102

DR.GUPTA

newhope.............job well done..thanks for link...i did my part and e-mailed him as well as whitehouse/oprah/dr.oz and nightline........let's go MS'ER's...everyone join the movement!!!!
by leetz
Wed Jan 06, 2010 5:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - get diagnosed ASAP
Replies: 12
Views: 4245

ccsvi-mrv-neg

Whirlaway and all other's......I got an MRV yesterday in upstate NewYork..I am a 4.5 on EDSS scale evaluated by neurologist...a Neuro-radiologist read my result's and was instructed for what to look for...it showed NOTHING wrong...I DO NOT BELIEVE THIS TO BE TRUE and I am going for a second opinion ...
by leetz
Wed Jan 06, 2010 4:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: US media coverage
Replies: 16
Views: 5342

I have

written to...Oprah...Dr.Oz...Whitehouse..and Nightly news.......

Leetz
by leetz
Tue Jan 05, 2010 4:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: GOT MRV
Replies: 2
Views: 1523

Upstate

upstate ny....local hospital...3d. 1.5 telsa MRV w/o contrast..
by leetz
Tue Jan 05, 2010 2:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: GOT MRV
Replies: 2
Views: 1523

GOT MRV

got my MRV today w/o contrast...waiting for it to be read...have the cd though and wanted to post images..but have no clue how to...Anyone?
by leetz
Sun Jan 03, 2010 8:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 6th Jan 2010 (Katowice) - POST-OP
Replies: 101
Views: 22415

Blessings..

May you have a wonderful and successful journey....please fill us in!!!

Leetz

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