Search found 357 matches
- Sun Jul 29, 2012 11:53 am
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Shingles - lucky me -NOT
- Replies: 0
- Views: 3487
Shingles - lucky me -NOT
I had a third dose of alamtuzumab a couple months ago. I took the acyclovir as instructed and all was good but I took my triplets for a well visit and they got the chicken pox booster. I didn't think about it because I've had chicken pox. I forgot about the possibility of getting shingles and now I ...
- Sat Jun 30, 2012 8:48 am
- Forum: General Discussion
- Topic: Acthar gel for injection
- Replies: 1
- Views: 1584
Acthar gel for injection
Has anyone out here used this before. After my worst exacerbation to date I had 3 days of IV solumedrol followed by a methylprednisolone dose pack. It didn't help so the next week I had three more days of IV solumedrol that didn't work then the next week I had five days of IV solumedrol. It absolute...
- Fri Jun 15, 2012 7:43 am
- Forum: General Discussion
- Topic: Wheelchair
- Replies: 13
- Views: 2361
Re: Wheelchair
Thanks gymbuff!
- Thu Jun 14, 2012 6:21 pm
- Forum: General Discussion
- Topic: Wheelchair
- Replies: 13
- Views: 2361
Re: Wheelchair
I forgot to add diet - I am gluten free and eat a little lean red meat and chicken. I do not eat much fish since I live in KY so I'm landlocked. If it smells fishy it makes me gag. Mostly it smells fishy.
- Thu Jun 14, 2012 6:17 pm
- Forum: General Discussion
- Topic: Wheelchair
- Replies: 13
- Views: 2361
Re: Wheelchair
I'm not sure what it was. It's been a couple years but I take: Magnesium (400mg) with chelated zinc (15mg) - 3 tablets Co Q-10 (200mg) - 1 tablet High Potency B-complex - 1 tablet Acai (1g) - 2 tablets Vit D-3 (5000 IU) - 1 tablet Aspirin (81mg) - 1 tablet Centrum Multivitamin - 1 tablet Omega 3,6,9...
- Sun Jun 10, 2012 7:12 am
- Forum: General Discussion
- Topic: Wheelchair
- Replies: 13
- Views: 2361
Wheelchair
I can see a wheelchair getting closer and closer. I'm scared. My independence is slowly getting chiseled away. I know someday I'll be okay with it but right now I'm I having a tough time accepting.
- Thu May 17, 2012 6:21 am
- Forum: General Discussion
- Topic: Possible MS Diagnosis?
- Replies: 13
- Views: 7182
Re: Possible MS Diagnosis?
If there is a possibility that you have ms get your affairs in order. No one seems to talk about this much but with hindsight being 20/20 I wish I had signed up for long term care insurance. This is not long term disability. It is another insurance policy that will help pay for the need of an in hom...
- Sun May 06, 2012 4:54 pm
- Forum: General Discussion
- Topic: New Information
- Replies: 141
- Views: 29434
Re: New Information
How do you know that the foods you eat aren't GMO? They usually aren't labeled.
- Fri May 04, 2012 9:48 am
- Forum: General Discussion
- Topic: New Information
- Replies: 141
- Views: 29434
Re: New Information
What about the genetically modified foods?
- Thu May 03, 2012 10:22 am
- Forum: General Discussion
- Topic: almostCLever Update
- Replies: 11
- Views: 2598
Re: almostCLever Update
How do I get one or two if the first is negative?
- Thu May 03, 2012 5:29 am
- Forum: General Discussion
- Topic: almostCLever Update
- Replies: 11
- Views: 2598
Re: almostCLever Update
Back in 2006 when I was dx'd with MS I was told that Lyme disease doesn't cause spinal cord lesions so if you have brain lesions and spinal cord lesions then it's definitely MS. No lyme test was done. If I only had brain lesions they would have ordered a lyme test. Has anyone else been told this?
- Thu May 03, 2012 5:20 am
- Forum: General Discussion
- Topic: venoplasty and alemtuzumab
- Replies: 9
- Views: 2250
Re: venoplasty and alemtuzumab
I take a low dose aspirin every day and have done alemtuzumab three times. The last time was two weeks ago. Low dose aspirin has health benefits that outweigh the possible risks IMO.
- Tue Apr 24, 2012 11:09 am
- Forum: General Discussion
- Topic: Relapses
- Replies: 4
- Views: 1729
Re: Relapses
Thanks for the response shaight. Does anybody else have any input?
- Mon Apr 23, 2012 8:27 am
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Third dose of Campath? ( can't decide)
- Replies: 3
- Views: 4997
Re: Third dose of Campath? ( can't decide)
I received my third dose m-w of this past week. I deliberated about it also due to a documented flair that I recovered from but after losing my balance, hitting the kitchen floor, and getting eight stitches over my eyebrow a few weeks ago I decided to do it. Hopefully I'll regain some balance after ...
- Thu Apr 12, 2012 4:50 am
- Forum: General Discussion
- Topic: Swollen Ankles
- Replies: 12
- Views: 7914
Re: Swollen Ankles
I've never heard of this however have you been wearing compression socks/stockings?