Search found 200 matches

by MegansMom
Wed Sep 01, 2010 8:31 am
Forum: General Discussion
Topic: Post Angio-do U need Immune Enhancement or Immunomodulation?
Replies: 2
Views: 1197

Post Angio-do U need Immune Enhancement or Immunomodulation?

Please forgive me as I am new to MS but I have been reading MS info from the Internet daily x the last few weeks few weeks and I am an RN for close to 40 years ( Yikes!) I need to know if I am thinking correctly.... My 35 yr old daughter is the patient and she is and always will be my precious girl ...
by MegansMom
Tue Aug 31, 2010 1:03 pm
Forum: General Discussion
Topic: JK Rowling donation
Replies: 5
Views: 1961

I sure hope that some of this money funds CCSVI research.( talk about timing!)

Thank you JKRowlings, your Mom is smiling down on you, her beautiful , thoughtful, generous daughter ! She is beaming with pride!
by MegansMom
Tue Aug 31, 2010 11:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CIS and CCSVI
Replies: 4
Views: 1959

We found an experienced IR physician that has diagnosed and treated CCSVI in Florida! And he is taking my Megan on as a patient. Unfortunately my daughters neurologist is "old school" and hardly knew a thing about CCSVI.He didn't even want to hear about it. It's her call but I doubt she wi...
by MegansMom
Tue Aug 31, 2010 2:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Denied help: MS patient blasts health bosses
Replies: 1
Views: 1735

This defies logic. Please do not stop trying to make the dumba**es see. I am so sorry you have to raise private funds. We too have a very rigid Dr and its frustrating to me and somewhat embarssing to my daughter. She says I shouldn't have wasted my breath on a closed mind. I wonder how these people ...
by MegansMom
Sun Aug 29, 2010 6:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CIS and CCSVI
Replies: 4
Views: 1959

CIS and CCSVI

Just wanted to start a thread about my 35 yr old daughter. She was dx with CIS Aug 12th. Mostly she was plagued with CCSVI symptoms x June 27th-Aug 5th. Some residual symptoms persist but the acute onset scary ones are much less. First symptoms("event"): Headache, foggy-brain, profound fat...

Go to advanced search