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@scorpion I just want to point out that it was long held that the MS lesions were thought to cause MS symptoms. But this was a bit flawed in that the locations of lesions does not correspond with the locations of the symptom functions. A good example is when they know a specific location of. Functio...

That's my point. IN MAY she was a healthy control candidate. She didn't have symptoms until June. In July she went to the Drs. In August she had 3 lesions ( 2 brain and 1 spinal) and tested positive for Oligoclonal bodies. In Sept she had CCSVI venogram and a completely occluded Azygos and a partial...

My daughter was diagnosed with MS Aug 2010, and was sent home with 2 literal backpacks of promotional literature from the MS drug companies each vying for her decision to " pick them", mugs, scarves, folios, diary books, calendars, etc. She was asked by her neurologist to "pick" ...

What a wonderful outcome ! Thanks for sharing!

specifically the cases of CCSVI found post- mortem and several studies looking at hypoperfusion and the changes in perfusion pre and post venoplasty. Zamboni deserves a Nobel prize for medicine not being ridiculed by someone that doesn't keep up with the peer reviewed studies/research. and please re...

Just want to bump up this great thread

Last year in the Spring of 2010 my daughter had no MS symptoms. In fact last May she went on a cruise with her girlfriends and had a ball. She danced, swam and "partyed" hard I am sure. In June she was stricken with MS Symptoms. They came , and for the most part there was no "attack&q...

Answer to Griff's questions : My daughter was diagnosed last Aug 19th. In June 2010 she started to have symptoms, although the first symptoms she wrote off to other causes. Headaches, intermittent but persistent. Cog fog ( lack of being able to concentrate ) and memory impairment Fatigue ( she didn'...

This seems like it works on a very small localized area not a while body plus it works by increasing NO ( nitric oxide) You can increase NO Production in simple ways easily. A few ways are through diet and exercise. In fact the effect of exercise lasts for many days. Healthy foods, rich colorful fre...

I used a very trite but easy to understand analogy of CCSVI And how it causes hypo-perfusion of the brain, which leads over time to hypoxic damage to all cells- I describe the brain as a theater with 5 entrances (arteries) and 5 exits (veins) . The people will be the Red Blood Cells. Each RBC will h...

I think IVUS adds much to the thoroughness in many cases. Some IRs may say it's not needed. I have listed some obvious pros and cons can one of you IRs comment? IVUS ( intravenous ultrasound ) Cons: Expensive piece of equipment Physicians have to learn how to use the equipment and master using it Ta...

I would call your plan, ask for a case manager and ask for a review.

Dear Griff, It is my sincere suggestion to you that you buy Marie A Rhodes new book on CCSVI. Its called " CCSVI as the Cause of Multiple Sclerosis: The Science behind the Controversial Theory". This book is well worth the money and explains so much. In fact it clarifies and verifies what ...

I try to weigh what other IRs are saying too. How can we know that hypoperfusion is present in our case? Many of them say that collaterals can take some of the role of IJVs and azygos. Another thing is the Buffalo study. Why do many healthy people have CCSVI? First I must mention that BUFFALO (BNAC...

The organ affected is the most important thing to consider. We are talking about the BRAIN ! CCSVI causes hypoxia. Hypoxia is smothering. Of course in CCSVI it is low level but it is still oxygen deprivation of the brain. Then combine it with other things that have been proven such as HYPO-Perfusion...