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When i was diagnosed with MS 8 years ago i was given IV steroids for 3days, i have SPMS with just the one relapse at the beginning that lead to diagnosis, but after the first IV steroids i would go to my GP once a year stating my legs were worse and he would give me Methylprednisolone, 500mg once a ...

hi Katie, In the two months yoyu had HBOT how regularly would you have the treatment for and fore how long each time? i have the same worries of restenosis, but apparently a doctor who performs liberation treatments recommends HBOT to patients after the procedure does anyone else have experience wit...

thanbks for the replies, i guess i will have to test it out to see how i find it,] i just expect putting a tube there would HAVE to hurt!t! i dont think the frequent urination and not being able to empty is related to my prostate as i have has this problem since i was 16 and diagnosed with MS at 17 ...

hi, I was liberated balloon angio in December, IJVs and azygos stenosed, i was wondering if Hyperbaric Oxygen Therapy would be beneficial or harmful for a CCSVI patient, when i have ;less oxygen my legs always become weaker, e.g. in nightclubs when smoking was allowed, standing under air conditionin...

I was thinking about this as i urinate every 2 hours which is a pain, i press my bladder when going but can never fully empty my bladder, so i read self0catheterizing is an effective way of fully empting the bladder, so if i done this i would go less often but i saw this video demo of a dummy on sel...

I started IBT several months before my first balloon angio and i noticed improvements in my night time bladder and very slight improvements in mobility - albeit varied so recently had another balloon angio due to restenosis my bed is currently half inclined = 4"/2" Now im lierated would i ...

ok i will check with the doctor

but i just done a 30minute light workout, and it was ok doing it, but afterwards my legs were very drained and weak, and i was just working my upper body

0I had both IJVs ballooned in August but after 4 weeks restenosed, so 2 weeks ago had the IJVs ballooned again, after my first ballooning i waited for 6 weeks before weight training, So im now eager to weight train again, but wanted to know peoples opinions on how long i need to wait after re-balloo...

I'm not a fan of trying to get an IR to do a method he isn't already doing, it might be better going with a doc who already has some experience at the more aggressive methods? But that's not always available. Yes if your IJVs restenosed in four weeks, and there is no clotting involved, that sounds ...

thanks cece and concerned for this information, after reading i now feel a lot more confident and comfortable having a May thurner stent, what are your views on post-MT stent blood thinners, anticoagulants or baby aspirin? also, as i will be having my IJVs re-ballooned (after restenosing just 4 week...

thanks for the replies Almostclever- i will be a day patient so will be watched for 8-10 hours post procedure what is INR? will i need to request this? After your May Thurner stenting what were you given?Anticoagulants or aspirin? which strength? CureIous - i was under the impression that having a m...

I am soon going to have a stent for my May Thurner and i was wondering is there anything i should do/not do before / after having the May Thurner stent? are anticoagulants essential or is 75mg Aspirin daily sufficient? I currently take 75mg Aspirin daily but will be stopping this on the morning of t...

thanks Daniel

I posted this in the CCSVI forum with no replies, so maybe posting here is more suitable: Hi, I have CCSVI and other venous conditions - IJV's are stenosed as they enter the chest - May Thurner - Poorly developed Lumbar Veins (Hypoplasia) And i have been taking the following Vitamins/Supplements eve...

any thoughts?