Search found 2198 matches

by SarahLonglands
Thu Feb 18, 2016 1:29 pm
Forum: Ocrevus (Ocrelizumab)
Topic: FDA grants ocrelizumab 'breakthrough therapy designation...
Replies: 4
Views: 4581

Re: FDA grants ocrelizumab 'breakthrough therapy designation

This is from Wikipedia: In March 2010, Roche announced the suspension of clinical trials in rheumatoid arthritis and lupus erythematosus. This step followed excess deaths due to opportunistic infections. Development for multiple sclerosis continues.[6] So, the trial was stopped due to too many death...
by SarahLonglands
Wed Feb 10, 2016 11:06 am
Forum: Antibiotics
Topic: 1st followup since dx
Replies: 43
Views: 21287

Re: 1st followup since dx

Anunymouse, if you mean the treatment page on David's site, it is referring to people who have only just started treatment. You build up to the full dose of the bacteristatics, then build up to a five day pulse on metronidazole. Some people choose to do metro gull time eventually but I never did: I ...
by SarahLonglands
Sun Jan 03, 2016 10:54 am
Forum: Antibiotics
Topic: 1st followup since dx
Replies: 43
Views: 21287

Re: 1st followup since dx

I haven't checked until today either but it certainly sounds as though you had an xmas to remember! I am glad that you missed a pulse. Pulses were designed so that you could take them when they suit, but too many people think they have to be done like clockwork.
by SarahLonglands
Sat Nov 28, 2015 7:54 am
Forum: Antibiotics
Topic: Simple strategy: Doxycycline for 2-3 weeks, then "pulsing"
Replies: 15
Views: 11740

Re: Simple strategy: Doxycycline for 2-3 weeks, then "pulsin

Chenman, interest in the CAP treatment is nearly as low as interest in minocycline, and not just because I have encouraged people to move over to use the site formed specifically for people suffering from a chlamydia pneumoniae infection, but since Luanne Metz' trial has now been published why don't...
by SarahLonglands
Fri Nov 27, 2015 8:06 am
Forum: Antibiotics
Topic: Simple strategy: Doxycycline for 2-3 weeks, then "pulsing"
Replies: 15
Views: 11740

Re: Simple strategy: Doxycycline for 2-3 weeks, then "pulsin

I don't suggest anything to anybody: I just wrote about what happened to me and what was eventually done about it. My qualifications are many but they are in art rather than medicine so I am not qualified to suggest anything. People can read what I write and decide for themselves what to do. The poi...
by SarahLonglands
Thu Nov 26, 2015 1:03 pm
Forum: Antibiotics
Topic: Simple strategy: Doxycycline for 2-3 weeks, then "pulsing"
Replies: 15
Views: 11740

Re: Simple strategy: Doxycycline for 2-3 weeks, then "pulsin

Look, do whatever you want to do but I was not infected with burgdorferi at all, I had tests to prove it, but I had progressive MS and since being treated for a year full time and three years intermittently with doxy, roxi and a nitroimidazole, not only have I had any new MS symptoms but most have g...
by SarahLonglands
Wed Nov 25, 2015 10:57 am
Forum: Antibiotics
Topic: Simple strategy: Doxycycline for 2-3 weeks, then "pulsing"
Replies: 15
Views: 11740

Re: Simple strategy: Doxycycline for 2-3 weeks, then "pulsin

Hello Sarah, October 10th, 2005 in "Combined Avonex and Doxycycline...": "...The first year of my treatment cost me about £4000, for private prescriptions and supplements. After that with intermittent therapy, about half that or less. So it seems absolutely stupid not to trial these ...
by SarahLonglands
Tue Nov 24, 2015 8:11 am
Forum: Antibiotics
Topic: 1st followup since dx
Replies: 43
Views: 21287

Re: 1st followup since dx

I have only just seen this: how do you feel now? I had a similar thing happen to me in my early MS days: I was going up to Edinburgh on the train with half a dozen violins at the time and it lasted all day and into the next: a cold winter's day at that! The thing is, it never happened again and I ha...
by SarahLonglands
Tue Nov 24, 2015 7:55 am
Forum: Antibiotics
Topic: Simple strategy: Doxycycline for 2-3 weeks, then "pulsing"
Replies: 15
Views: 11740

Re: Simple strategy: Doxycycline for 2-3 weeks, then "pulsin

Chenman, £4000? Where did I say that? Roxithromycin was the most expensive of the three drugs I took, but that only cost about two pounds a day. The other two are much cheaper. Also, I have not taken any antibiotic since 2007 apart from a five day course of roxi for an infected insect bite: I haven'...
by SarahLonglands
Fri Nov 13, 2015 12:18 pm
Forum: Antibiotics
Topic: 1st followup since dx
Replies: 43
Views: 21287

Re: 1st followup since dx

Same here!
by SarahLonglands
Tue Nov 10, 2015 12:16 pm
Forum: Antibiotics
Topic: 1st followup since dx
Replies: 43
Views: 21287

Re: 1st followup since dx

Oh!! Good luck with that, you poor old thing!
by SarahLonglands
Mon Nov 09, 2015 10:04 am
Forum: Antibiotics
Topic: Fluoroquinolones can cause neurological side effects
Replies: 17
Views: 14510

Re: Fluoroquinolones can cause neurological side effects

Well, there are plenty of broad based abx he could have been given instead: I hope he wasn't damaged by it.
by SarahLonglands
Fri Nov 06, 2015 10:33 am
Forum: Antibiotics
Topic: Fluoroquinolones can cause neurological side effects
Replies: 17
Views: 14510

Re: Fluoroquinolones can cause neurological side effects

What do most people take Levaquin for? There is surely an alternative. Sarah
by SarahLonglands
Sun Oct 25, 2015 7:13 am
Forum: Antibiotics
Topic: In Pursuit of ABX - May I have coffee with my milkshake?
Replies: 195
Views: 106530

Re: In Pursuit of ABX - May I have coffee with my milkshake?

Ken, what good news! And a very happy birthday to Kim for the eighteenth! Sarah :smile:
by SarahLonglands
Sun Oct 25, 2015 7:05 am
Forum: Antibiotics
Topic: Continue Rebif and Wheldon Protocol simultaneously?
Replies: 2
Views: 4752

Re: Continue Rebif and Wheldon Protocol simultaneously?

There is no reason why not to stay on rebif and many people do: it helps avoid falling out with your neuro!
Sarah

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