Search found 179 matches

by Katie41
Tue Sep 21, 2010 4:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 6-month update from Dunkempt
Replies: 12
Views: 3994

So glad you're doing so well! I'm also doing very well. Had May-Thurner's stented in July and both jugulars reballooned. Left leg and foot very strong, now. Lots of energy, cognitive great - I can even understand algebra! Becky, my daughter, and I were there with you and your brother. The best is wh...
by Katie41
Sat Sep 18, 2010 7:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Other veins involved in CCSVI??
Replies: 11
Views: 3240

Check "May-Thurner and MS/check it out" thread.
by Katie41
Mon Aug 30, 2010 1:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: May-Thurner and MS/check it out
Replies: 62
Views: 16259

Our bodies sure are a puzzlement :? It can be very frustrating in many instances medically (for many conditions, not just this). At least, we have some answers now. Just keep searching, something will probably come to you that will answer your questions and send you in the direction that will work f...
by Katie41
Mon Aug 30, 2010 9:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: May-Thurner and MS/check it out
Replies: 62
Views: 16259

6 week update: Just returned from a 4 day camping trip in the High Sierras. What a glorious time I had with my 5 and 7 year old granddaughters! I was able to climb a mountain trail in 20 min! I wasn't even huffing and puffing in the more than 1 mile altitude! Last year, it took me 1 1/2 hours and I...
by Katie41
Tue Aug 24, 2010 6:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CureOrBust gets a venogram & angioplasty
Replies: 14
Views: 3095

Terrific!!!
by Katie41
Fri Aug 20, 2010 4:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: May-Thurner and MS/check it out
Replies: 62
Views: 16259

5 Week MT Update : I went to my physical therapist, who does visceral manipulation, today. She has worked with me for about 15 years, so knows my body really well. She said that the MT stent is greatly benefiting the jugulars' and azygos' flows. 5 months ago, the left jugular had restenosed one day...
by Katie41
Mon Aug 16, 2010 10:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 204213

Dr. Arata attended Dr. Sclafani's symposium and is also in touch with Dr. Dake.
by Katie41
Mon Aug 16, 2010 8:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 204213

Fogdweller, check "Katie41 in Poland" and "May-Thurner and MS" threads. Lots of info on Dr. Arata in those.
Katie
by Katie41
Mon Aug 16, 2010 8:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: TIMS Survey?
Replies: 14
Views: 3678

The survey is a great idea, but, for an increasing number of people there are several variances: first, second, or third procedures; immediately better, then worse; immediately worse, then better; slowly improving; slowly worsening. Also, a short section for a comment would be helpful. Just a thought.
by Katie41
Fri Aug 13, 2010 10:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Badgers wonderful adventure in Poland!!!!!!!!!!
Replies: 156
Views: 41277

Badger, A couple of things: have the MTS checked out. It can be manifested in the right leg, although it is more common in the left; and, make sure you don't have a low grade infection somewhere. I've found that if I have a low grade infection, ie, a kidney infection (very mild), or a gall bladder d...
by Katie41
Wed Aug 04, 2010 4:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 363
Views: 107262

That says it ALL!!! FREEDOM!!! Absolutely perfect celebration :D :D :D
So apropos'-gosh, is that the word? I've never actually seen it spelled out before :lol:

Katie
by Katie41
Sat Jul 31, 2010 7:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Just two weeks!
Replies: 26
Views: 5935

Newlywed4ever, I'm so excited for you and your daughter! It is particularly special to go through it together :)
by Katie41
Sat Jul 31, 2010 10:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: RLS Relief w/ Angioplasty/Liberation?
Replies: 7
Views: 2570

Yes, after angioplasty of both jugulars and azygos, total relief from my moderate to severe RLS. When the jugulars began to restenose, it started up a little, but when the jugulars were reballooned it went away again. It's only been two weeks since the reballooning, but so far, so good. :)
by Katie41
Fri Jul 30, 2010 9:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: May-Thurner and MS/check it out
Replies: 62
Views: 16259

CCSVIhusband, the stent I have is 24mm wide/70mm long.

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