This Is MS Multiple Sclerosis Knowledge & Support Community

Thanks, jr5646,

The incredible work of many to get the word out is awesome! Thank you Judipom, Cheer, and everyone else worldwide! Reminds me of the picture of a tree covered in snow....the power of each individual and the group to create and make things happen.

Hi nomissbehaven, I've done Polarity and Cranio-Sacral therapy for years. I also did Feldenkriss (sp?). Feld. helped me become aware of how normal feels so when I begin to slump or walk differently, I am able to correct it. It also helps me remember how to sit in a chair properly. Polarity and Crani...

Fantastic! So glad for you!

Thanks for such a detailed account. Every little bit of info, no matter how small, helps us all. Thanks for taking the time.

Cheer,

Just a question, since I may have missed other info re Dr. Mowatt-Larssen. What connection has he had with CCSVI?

Thanks

Congratulations, Rose2!! Lots to look forward to. Have to get that shoulder in shape to hold those precious babies, or maybe they will help you get it totally back in shape

Welcome msh! Take time to read the stickies. That will give you a tremendous education in CCSVI in a short period of time. For the time being, I think calling or e-mailing either Boston or Alex (Dr. Dake's scheduling person) at Stanford and asking to be put on the list will at least get you a place ...

It sure IS hard to wait. I'm so sorry your scans were postponed. My surgery was one of the Stanford ones cancelled, but at least I could get the MRIs. Of course, intellectually you know that eventually it will happen, but you sure don't believe it until it really does. Here's to scans done for you i...

Wow! You all have been busy while I was gone.....So great to read the continued explosion of info, inquiries, and media. Just returned from roundtrip in two days to Stanford from Southern CA. It's 1:20 a.m. so I may not make much sense, but, I'm excited to tell you I have two collapsed jugs and one ...

Congratulations! Great that your veins are pancaked and there is now a fix for it!

Wow! You came away with great info. Good news that all in the trial who didn't get the stents will receive them after the trial is completed. Thanks for posting it.

Absolutely lovely! What a wonderful "instrument" she has developed. Could listen to her all day. Thanks for posting the link.

Well, woke up today thinking of "Unsinkable Molly Brown". "I ain't down yet!" Still up and down, but, am trying to keep it there that we all will be able to be treated SOON! The info from everyone continues to help....lots! Thanks so much! I'm still going for testing and consult ...

Thanks to all of you for your tremendous support! What a difference a day makes! It still doesn't seem real that I received the dreaded "Alex" call today. All those times I couldn't wait to hear from Alex; but, today, when I heard her voice, I knew what she would say! I could have gone to ...

A very simplified explanation - not scientific at all! My understanding is that when a person with MS or any immunedeficiency disease has the flu, it sets up a "perfect storm". The MS body already has plenty of inflammation, so the body overreacts and attacks itself.

Many, many thanks to all of you who have so faithfully posted your CCSVI experiences! I'm excited and delighted to tell you that I'm off to Stanford for testing, Dec. 17th and stenting, Dec. 18th! I did hyperbaric chamber treatments last summer and had great (but, not lasting) results, so I know I c...