Search found 384 matches

by esta
Sat Jan 08, 2011 12:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian persons with MS and membership to MS Society
Replies: 9
Views: 3109

I chose to re-new through my local chapter, as I believe the money stays local that way, and helps out people with MS in many ways here. I am also entering the walk, but any sponsorship i get will also be encouraged to donate towards our local chapter only. i think we're cutting off our noses to spi...
by esta
Thu Dec 30, 2010 3:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: IBT - continue after being liberated?
Replies: 12
Views: 2872

hi adam
i received a stent aug 26th, loewered my bed from 7 to 4".??????? don't remember why... dr. simka in poland recomended an inclined bed, but no height instructions.
nothing to report, except 7" was too high, i didn't sleep as well, and was more anxious , now at 4 i feel fine.
by esta
Thu Dec 30, 2010 11:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: False Creek-Vancouver - follow-up after procedure
Replies: 3
Views: 1756

hI HOPE411 Could you tell me how detailed the follow up u/s reports are from FC and how much they cost? I HAVEN'T RECEIVED IT YET, THE RADIOLOGIST HAS TO READ IT. THE TECHNICIAN WAS TRAINED USING THE ZAMBONI PROTICAL, ITS COMING VIA EMAIL, PLUS A COPY FOR MY GP... THE COST IS $500 I WAS TOLD WHAT I ...
by esta
Wed Dec 29, 2010 1:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Another CCSVI Victory
Replies: 26
Views: 6915

Hi Jugular, congratulations!!!!!!!
for all of us, it can only get better :D :D :D :D :D :D
by esta
Wed Dec 29, 2010 1:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: False Creek-Vancouver - follow-up after procedure
Replies: 3
Views: 1756

False Creek-Vancouver - follow-up after procedure

the best experience!!!!!!!!!!! I finally feel someone cares. they did an ultra sound to show my blood flow was still ok, but best of all, they hired a person with MS who has been to poland, had the procedure, and helps each person amazingly to develop a goal plan for their future within the canadian...
by esta
Thu Dec 23, 2010 5:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The Sad, Sad State of CCSVI Research in Alberta
Replies: 21
Views: 4805

dr embry
you always have my support...
by esta
Thu Dec 23, 2010 5:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Sclafani interview
Replies: 45
Views: 9995

:lol: :lol: :lol:
bring it on
by esta
Sun Dec 12, 2010 1:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: follow up after ccsvi treatment
Replies: 19
Views: 4793

johnson, i'm not sure either, but i now have a clearer idea, tx
by esta
Sun Dec 12, 2010 1:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: follow up after ccsvi treatment
Replies: 19
Views: 4793

trish317 i would hope, as he only had the angioplasty that he is going where they can re-do the procedure, and not waste his time, because restenosis is usually the return of symptoms... i'm getting ck'd because this is my 2nd time and i have a stent, and i would like to know if my blood flow is 'no...
by esta
Fri Dec 10, 2010 2:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How to fund trials
Replies: 5
Views: 1856

far too logical..............
by esta
Fri Dec 10, 2010 1:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: follow up after ccsvi treatment
Replies: 19
Views: 4793

i was told i'd better get my follow-up doppler ultarsound privately, as i won't be referred to a specialist, so i am going to the private clinic at vancouver, false creek. i am not good in hostile environments, so those that can forge ahead, regardless, i salute you..i know it's a simple blood flow ...
by esta
Thu Dec 09, 2010 7:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Erika`s procedure in Poland
Replies: 493
Views: 126605

oh brother just get better erika. i believe fixing the slow blood flow would change everything. have faith, you're our pioneer, and you have to get better. that's all there is to it i'll never get there again i don't think, but at least i can say i met you!!!!!! just do well, for all of us :) hugs -...
by esta
Thu Dec 09, 2010 7:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Mags is off to Poland... round 2 :)
Replies: 32
Views: 7704

hi mags i'm not the person to ask about pacience, but congrats on this new method. i sincerely hope it all works out. i'm off for a check up on my stent at the end of the month. hope all is well. we can compare changes in a stent vs larger ballooning. i wasn't offered that...sounds way better. but, ...
by esta
Mon Dec 06, 2010 3:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: false creek clinic follow-up after procedure anyone?
Replies: 1
Views: 1541

false creek clinic follow-up after procedure anyone?

i'm going dec 28th, would love to hear some pointers...
i had a stent aug 26th. what can i expect?
thx for any tidbits!!!!!!!!!!
by esta
Tue Nov 30, 2010 11:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Mags is off to Poland... round 2 :)
Replies: 32
Views: 7704

hi mags
all i can say is HOPE is the word...its our future!!!!!!! good luckm and can hardly wait for the details! :D :D :D

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