Search found 144 matches

by bruce123
Mon Feb 28, 2011 8:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 63667

UPDATE. Some of you who have been following this thread will know that my wife was treated in Albany on Dec. 1st. I provided a few positive updates while my wife improved. Her balance improved quite a bit. She walked with a cane and still does but the improvements were significant. Her fatigue was a...
by bruce123
Mon Feb 28, 2011 6:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Denied CCSVI table at MS Walks
Replies: 39
Views: 8200

what about hosting CCSVI walks and charging $3000 for the MS society and big pharma to set up booths :S I think this is the point. It is not a CCSVI walk so if you want to set up a table you have to pay like everyone else. Tables are a great opportunity for companies or groups to access a captive a...
by bruce123
Tue Feb 22, 2011 5:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 63667

Hi Phyllis (Bobbi),

I'm happy to hear that everything went well in Albany. It sounds like you are on your way to feeling better. I think everyone who has had improvements understands your comment about how small improvements are very big deals!

Wishing you a brighter future.

Bruce.
by bruce123
Fri Feb 11, 2011 12:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 63667

Great news mser54 ! Here's wishing you more improvements.
by bruce123
Thu Jan 20, 2011 1:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 63667

Great news Bobbi (Phyllis) ! My wife had her procedure with Dr. Englander. The doctor is very nice and very down to earth. She won't make false promises and she is quick to admit that they don't have the full picture yet. The clinic is very nice, the atmosphere is relaxed and the staff are great. Go...
by bruce123
Thu Jan 13, 2011 5:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Siskin-method
Replies: 8
Views: 2902

Last I talked with him (last may) he was leaning towards going right to the 'gold standard' of the venogram as the first step, that the doppler wasn't needed. I totally agree. The doppler before and after are good so that doctors can learn from them, but they don't help the patient and they don't i...
by bruce123
Thu Jan 13, 2011 5:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 63667

Re: Call from Dr. Mandato

When I talked to Dr. Mandato regarding follow-up ultrasounds (since I live all the way in Colorado), he said it was no problem. For their out-of-town patients, any large hospital should have the necessary ultrasound equipment to perform the follow-up. The follow-ups are not for the purpose of diagn...
by bruce123
Thu Jan 06, 2011 5:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 63667

Hi Jewelia. I hope you are doing well. My wife was treated by Dr. Englander on Dec. 1st. She showed improvements after a few days and she is still improving slowly, so be patient. We kept our expectations low. The improvements to her balance and to her arm pain have been good but she is not "cu...
by bruce123
Mon Dec 27, 2010 12:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New thread for L
Replies: 67
Views: 12603

a sensible person needs to look at the "facts" and the odds in this situation. Lyon..Lyon...Lyon, I wish that you would look at the "facts". The fact is that there is NO scientific proof that treating CCSVI does not help people with MS. You can't have it both ways. If you are go...
by bruce123
Fri Dec 24, 2010 12:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Have we been thrown dust into our eyes?
Replies: 17
Views: 4699

Re: Have we been thrown dust into our eyes?

First we need to establish what is "inadequate drainage". Has anyone stated what that means? I beg to differ. First , we need to help those suffering with this terrible degenerative disease by using a safe procedure that has been shown to help many. If we can establish what inadequate dra...
by bruce123
Thu Dec 23, 2010 7:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The problem with imaging studies.
Replies: 9
Views: 2025

Lyon, Malden, Scorpion, thank you all for your responses.

I was feeling kind of bad because my post sat for over 24 hours without a response. I was starting to think that it wasn't controversial. Now I can relax.

Merry Christmas to all.

Bruce.
by bruce123
Wed Dec 22, 2010 10:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The problem with imaging studies.
Replies: 9
Views: 2025

The problem with imaging studies.

I’ve stated this in other threads but I’ll repeat it here. I believe that all of the studies that are funded by the MS Societies are a waste of valuable time. While the question of the relationship between CCSVI and MS is interesting and does need to be studied, it is not relevant to the treatment o...
by bruce123
Wed Dec 15, 2010 1:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New MS treatment needs study
Replies: 13
Views: 3010

Here is the main problem as I see it. The article states, "Before even considering a therapeutic trial, Bhan says, "two key questions must be answered: whether CCSVI or abnormal veins are more common in MS patients than controls (healthy subjects or patients with other neurological disease...
by bruce123
Wed Dec 15, 2010 7:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Why does treatment help so fast ?
Replies: 52
Views: 11201

It seems thing are getting a bit heated!! I started this thread because I didn't know if there was a predominant theory regarding the sudden improvements that some people experience. It seems that there isn't a predominant theory but I am still interested in anyone's theory. I not interesting in arg...

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