Search found 141 matches

by JCB
Thu May 13, 2010 8:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Survey Wish lists for treatment outcomes of CCSVI
Replies: 23
Views: 5382

1. fatigue
2. brain fog
3. writing with my right hand (I'm right handed)
4. right foot drop/ dragging

Would I be happy if I stayed where I am and the Progression stopped? of course I would. As stated above though, why not go big?

PPMS '07
by JCB
Fri May 07, 2010 1:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is there anything in Illinois or the upper Midwest?
Replies: 20
Views: 4736

That is exactly why I think studies will be fast tracked. It won't be fast enough for many of us that are growing weaker by the day, but within 6 months I think we will know a lot more. I agree with the science behind it, it just makes sense. That science is what is propelling CCSVI at the pace it is.
by JCB
Fri May 07, 2010 1:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is there anything in Illinois or the upper Midwest?
Replies: 20
Views: 4736

I may be in the minority on this forum, but I will stick up for my Neurologist. With all the "miracle cures" that are out there, I can't blame him for not jumping on the band wagon. He didn't support bee sting therapy or having all your fillings removed either. I do believe that he wants m...
by JCB
Fri May 07, 2010 6:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is there anything in Illinois or the upper Midwest?
Replies: 20
Views: 4736

Same Neuro for me, I asked him for a referral to an IR. He wants to wait for the studies. His quote to me "If the studies come back and proove this is helpful to MS Patients I will be the first to give referrals." He said he has seen to many patients hurt by chasing possible dreams, my res...
by JCB
Thu May 06, 2010 7:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is there anything in Illinois or the upper Midwest?
Replies: 20
Views: 4736

Liber8,

Good luck in Poland, you will have to keep us all posted. Thanks for the call today. I was shot down as soon as the receptionist answered the phone. Not giving up yet though. She said I would need a referral from my Neurologist, and that is not going to happen. Have to try another tactic.
by JCB
Fri Apr 23, 2010 6:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I JUST put 2 and 2 together
Replies: 15
Views: 3748

Neurology Future

I have an appointment with my nerologist on Tuesday. Diagnosed PPMS '07. The Progession is stepping up the pace, and I'm going in to get a referral to an IR. My Neurologist is the head of an MS Research center, so we will see how it goes. The longer I wait the more weaker/disabled I become. Like mos...

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