This Is MS Multiple Sclerosis Knowledge & Support Community

My prayers are with Angela and her family. This is one of our worst fears as patients; I am so sorry it became her reality.

Cheer, if you need a translator, I am fluent in Italian.

I noticed menstrual irregularities as well. Attributing a heavier flow while on Plavix made perfect sense. Now that I am off the blood thinners, though, I find that my cycles are waaaay off (from 21-24 days to 14 most recently). I hope this straightens itself out soon. A real pain.

Donna, I am so glad you were able to get the help you needed from Dr. Makris. I plan to see him soon as well for my follow-up (I have not had any luck getting follow up care since Albany). I love all the pics- especially the ones of his office; it is a little confusing unless you got there before!

Yep. I did it. I quit smoking.

I am on Day 3 of my new smoke-free life. I quit cold turkey and have every intention of making this work.

I appreciate all the support from all of you!!!

Happy New Year!

EJC, I agree with you. I believe that we are learning more and more each day (how wonderful!!) and that we will see some real activity in 2011 that will move us even closer to the answers we seek.

Best wishes!!!

Sent you a PM, thornyrose.

Hearty congrats!!! Welcome to the club!!!

Is it possible for someone to 'take advantage of tax breaks' by giving money to non-for-profit, getting tax returns for that donation, and then, as a non-profit director, buy yourself an airplane ticket? Why- do you have evidence of such an occurrence? Or are you simply hypothesizing? I am not sure...

Boo Bear, I don't know if you looked thoroughly at the links I posted, but I would be interested in your take on the specific documents on the NMSS site. I am also still left wondering about the overall financial question my searching gave me: it seems they are free to crunch their financial data d...

Clinical trials are expensive and not all MS centers should be expected to immediately drop their previously funded projects for CCSVI projects and especially not until after venous stenosis has been shown convincingly to be more prevalent in those with MS than the general public. Agreed. That's wh...

I agree that the video was awesome. It seems as if lesions remain the hallmark of disease progression, though I am increasingly skeptical of the validity of that approach. I have a whole lotta lesions (34 to be exact), yet my disease progression was far superior to those with very few lesions overal...

"Our aim is to provide MS patients, caregivers, and medical professionals with a definitive resource for learning" Sounds good but pointless if no-one sees it. Currently CCSVIalliance need others to believe that they are first class advocates but fall at the first technical hurdle. VeeBee...

BooBear Thanks for these details on the NMSS finances. I wonder though where/how you arrived at this: No wonder they could only swing a paltry $6 million into CCSVI research I'm only familiar with a total of $2.4 million, which is a combined total of the U.S. and Canadian MS Societies support of CC...

ThisIsMA wrote:Hi Sotiris,

I so wish we had a native Italian speaker to shed more light on some of the subtleties of these articles.

I speak fluent Italian. There are some subtle differences from the translated text, but not enough to substantially alter the context from what has been presented herein.

I did not learn about CCSVI on this board. I ran across the concept by chance in January of this year. I started researching the concept at that point and read everything I could get my hands on. By the time I joined this board, I had already made up my mind to get the procedure done. I was liberate...