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After the 3rd Day of campath I had ZERO lymphocytes. But the neutrophils and monocytes stayed intact. They help fight bacteria. Every blood test thereafter (every month it is checked) the neutrophils etc were elevated, I guess working overtime due to the lack of lymphocytes. By Month 2 I had 3.5 lym...

Doctor Shop!!! til you find one that suits you, answers your questions, and feels like they care. It will take alot of time & energy but you gotta fight for yourself! The internet is full of information to sort through & there's even tons of stories campath now. (yes, the study will pay for ...

Grumpster, The thyroid condition is treatable, but it does require daily medication. As mentioned in previous post, your blood is tested every single month, and you see your doctor every 3 months(every month for the first 3 months post infusion) so signs of ITP are checked for every month & thyr...

As you may know, I received Campath alongside Sugarmomma in March. We have a good support group of 5 women w/ MS that I feel deserves special research of its own, like is there something in the water here in Tampa...but I digress. The heading I almost posted on my own, before I saw sugarmomma's upda...

Thanks for the update. Keep on fighting! Are you fighting off any colds or allergies?

i would like to hear from the 16 percent that did not fare well. all i see is the 84% with a reduction statistic (plus or minus). Slowly, on the forum, a few are trickling in and saying they aren't any better off. that's not near the numbers of people talking about their experiences with LDN, ABX, e...

Thanks for your post. I asked my neuro for data on allergies-post-campath and she didn't know of any. I, too, got a similiar itchy rash after receiving Campath. Mine lasted for about a month, plus another few weeks just red but not itchy. Prior to Campath, had no known allergies and I had recently h...

I actually got amantidine last week. My primary was pushing towards an allergy theory, but since antihistamines aren't working, you are probably right; I should try the amantidine (from my neuro). She said MS'ers use it for energy, too. I just wasn't sure if it was too late into the infection.... Th...

I have not progressed worse. I might not have gotten worse if I didn't do anything at all. I have had some kind of cold/virus/cough since receiving treatment. Being "sick" for so long has dappened my spirits and made it harder to focus on being "healthy" like pushing myself to wa...

Please Please post your experiences! I have friends outside of Chicago! I would try it too & will come running! (ok i can't run) But Good luck!
(I'm posting my research experiences on the Campath forum and unfortunately have nothing good or uplifting to say right now.)

I take 4-AP whenever I remember to, or expect to walk alot. I take 20 mg. I will occasionally repeat the dose after @ 6 hours. I started on 10mg and noticed no difference. I noticed alittle better coordination at 20mg. I did not hear that it could hinder re-myelination. Do you have any information o...

Have you visited this website: http://clinicaltrials.gov/ct2/results?term=multiple+sclerosis I have seen both mesenchymal & hematopoic (sorry for the misspelling!) stem cell research. This one is complete: http://clinicaltrials.gov/ct2/show/NCT00342134?term=multiple+sclerosis&rank=33 where f...

Today was me & Jessica's 6 month check up. I scored 100% on the PASAT math test, and my vision is still awesome at 20/20 & 20/15. This is the same as before Campath. For the other neuro/reflexes, walking, and balance tests, I also scored about the same as before, my EDSS is 2.5 My left side ...

Thanks for posting your experience, Caroline! It's so important to get this first-hand information out there for us guinea-pigs! Keep me posted
You're very brave!

What does this say about our healthcare system? This is an excellent article, explaining 2 promising experimental treatments. Yet its focus is really on stock market speculation & big pharma profits! I use google news set to multiple sclerosis & regularly search for campath articles and had ...