This Is MS Multiple Sclerosis Knowledge & Support Community

The results of everyone sound so fantastic. It just makes me wonder how long it will be before this is standard practice? I know it's getting closer and closer, and Buffalo is going to deliver us a HUGE step forward ... I just wonder if it's worth it to start planning a trip abroad, or wait here in...

Jason, I admire your dedication to your father's cause. I'm not sure how many sons would take the time to write up such a carefully worded, sincere dedication to their dad. I also admire Andrew's tenacious promotion of his theory, and I hope that it does prove to be correct.

Wonky, this is the kind of report we all love to hear! Your post, along with the BNAC newsletter, makes this a very good day for us all.

I believe fermented foods such as sauerkraut and kimche are a good source of L plantarum.

My wife, who has a mild case of ms, had done about 6 acupuncture treatments. She found that her leg felt slightly stronger after some of the treatments, but there was no long lasting benefits. Perhaps if she continued going it may have had more benefit. She has stopped going, at least for now, as sh...

Rob, I'm not a medical person, but I'll try and give you my opinion. Rebif, like the rest of the CRAB drugs (copaxone, rebif, avonex, betasteron), is helpful to about 30-40% of RRMS patients who take them. What it does is stop progression - so if you haven't gotten any worse since being on it, it ma...

Calgary - isn't that where Ashton Embry lives? I wonder if he'll be there!

Prof8, Ozarkcanoer, this is great news. Hope all goes well. My wife is at the same point - our local IR (also a friend of Dake's) found some problems in her left jugular using a doppler, and is now going to set up an appointment for a venogram and angioplasty. We are now on pins and needles waiting ...

My wife is in the same situation - she had a quick doppler, which picked up some turbulence in the left jugular. The IR felt that this was enough to justify a venogram with possible angiogram. He felt that an MRV wasn't really necessary, and was a very expensive procedure to boot.

A year ago I looked at some material by Noel Batten on the web. Batten claims dramatic improvement for ms patients using a form of chiropractic, along with stress management. At the time, he seemed like just another charlatan selling his books on the web. However, with the CCSVI procedure looking ve...

I believe I read in CCSVI facebook a few weeks ago of a Dr. Winand in Lancaster Pa. who's done at least one procedure.

Torcan It might be cheaper for you to look into having the treatment in Poland. Plus you have peace of mnd that the dr's there have treated dozens of patients and are experienced Their is a company called surgicaltours.ca and this place is co-ordinating this treatment. I got a copy of the resumes o...

I'm guessing Biogen sees the writing on the wall, and wanted to get someone into their fold who was CCSVI savvy?

My wife who has mild MS, had a quick doppler done by an IR who immediately picked up some 'turbulence' in her left jug. He is now setting up a venography and possible angiogram for her. He felt there was no need for an MRV, the venography will pick up everything.

I remember reading something about Biogen and Lingo-1 about a year ago, where they were looking into it as an 'add-on' to Avonex. Now it looks like they are looking at Lingo-1 as a stand alone? Interesting.....