Search found 596 matches

by Jamie
Fri Oct 23, 2009 12:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Stent site question
Replies: 15
Views: 4169

Contact Dr.D.

Maybe take a photo and email it to him?
by Jamie
Fri Oct 23, 2009 9:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: News from Rici, a polish patient being operated
Replies: 105
Views: 32843

I'm like an addict for their heroin reading stories like this.

Keep 'em coming.
by Jamie
Thu Oct 22, 2009 8:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: spreading the ccsvi word
Replies: 82
Views: 17648

There's a slovak internet??? Just kidding. But it has always bothered me that being Anglo that I see only a small portion of the internet. I hope automatic, AI based, genuine, translation comes out in a few years - imagine how much we're missing by not being able to read Arabic, Chinese, Russian, Ko...
by Jamie
Wed Oct 21, 2009 5:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Poland
Replies: 28
Views: 6278

Kinga,

Go for it!

Its not cheating, you are being treated for the disease. MS is simply a side effect that could be helped by treatment of the blockages etc.

Good luck.

Jamie
by Jamie
Mon Oct 19, 2009 6:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Haacke/Dr. Reichenbach (Germany) CCSVI case 1
Replies: 46
Views: 15548

That list of centers involved now is awesome too.

Soon the global evidence will be too overwhelming to ignore.

Long live the intertubes!
by Jamie
Mon Oct 19, 2009 6:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Haacke/Dr. Reichenbach (Germany) CCSVI case 1
Replies: 46
Views: 15548

Hey that was Mel's too!

Woo!

Great news.
by Jamie
Sun Oct 18, 2009 5:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Rose Testing/Stents
Replies: 125
Views: 24110

Good luck tomorrow to both of you!
by Jamie
Fri Oct 16, 2009 9:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: radeck's Stanford experience
Replies: 58
Views: 12271

Lew - ahem!
by Jamie
Fri Oct 16, 2009 9:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: radeck's Stanford experience
Replies: 58
Views: 12271

The only people with ambiguity so far have been those who's MS diagnose has been ambiguous too as far as I am aware!

Good luck I'm hoping due to the similar nature of your MS that you will have the results Mel, Jeff and others have had!
by Jamie
Thu Oct 15, 2009 7:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I am going to Stanford!
Replies: 14
Views: 3098

That is great! And good on your neuro, hopefully he'll see the benefit in you and have his curiosity piqued!
by Jamie
Thu Oct 15, 2009 2:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: hey ladies and gentleman
Replies: 18
Views: 4992

The 'true' AI diseases seem to have a much stronger familial/genetic link than MS ever did.
by Jamie
Thu Oct 15, 2009 2:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 363
Views: 107366

Exactly. I was surprised by the lack of hedging. Great that they are onto the iron deposit and SWI technique to track things. Hopefully they'll keep the same protocol tracking things post intervention. The results they are about to unblind should be consistent with Zamboni and Dake and if they are t...
by Jamie
Thu Oct 15, 2009 1:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I started a blog
Replies: 118
Views: 21807

Yeah, what's up with that, Lew?!

Your public awaits...
by Jamie
Thu Oct 15, 2009 12:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 363
Views: 107366

I know...

Its amazing though just how much data we have and how many people are sharing considering this only popped up in the spring in our awareness.

That radio article was awesome and BC seem very bullish.

Intervention is the next step up there hopefully.
by Jamie
Thu Oct 15, 2009 11:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CTEVD Study at Buffalo Neuroimaging Center (CCSVI related)
Replies: 75
Views: 19270

I have been referring folks from the Facebook page to come on here and discuss all things CCSVI. Do you guys think the "Just the Facts, Ma'am" might be a good sticky? http://www.thisisms.com/ftopicp-58782.html#58782 cheer Yes!!! I've said it loads of times. I keep searching for it to forw...

Go to advanced search