This Is MS Multiple Sclerosis Knowledge & Support Community

Sounds interesting.

Thanks Squiffy.

Doubt it. I do not know of any trials being done here at all. The Neurology community here are also a tough bunch who think the whole CCSVI thing is a bit of a joke. NICE are a conservative group and right now there is simply not enough information for them to offer this treatment on an already stra...

Has anyone used this ever?

Supposed to help retrain the brain and create new pathways to help with walking.

Anyone know anything about this?

Good to hear EJC,

It's a shame you have to travel so far for the oxygen chamber. We might give it a go too.

Lyndacarol brought the electric stimulation machine that Terry Wahls recommended but had not seen any benefits from it. Look on the medical devices tab,LC has a post there.

The food she recommends can only be good and were trying to incorporate it in our diets too.

Question I want answered is why Terry Wahls took lithium. For her MS or a mood disorder? She is doing some clinical trial with MS patients re her food and electrical stimulation. I wonder if lithium is also be given to those patients if they are too truly replicate all that she did.

Thanks LC, The reason why I brought up the subject of that machine again is because were getting round to ticking off all the other things on our list now. Training with some sort of electrical machine is on that list. You mentioned the liver. Were looking at acupuncture for my husbands nystagmus, r...

EJC,

I can't remember where you live but i do remember it being near London. There is an MS centre in harrow that has the oxygen therapy. Is that not closer to you?

oh no,

Just read the article. Really does not sound good.

I look forward to reading the article!

Loobie.

I wish you the absolute best. I don't always post but I do follow and read to see how the regulars on this site are doing. I sincerely hope that a third is a charm for you.
You will be in my thoughts and prayers tonight:-)

How are things going with the unit you obtained LC?

Bluesky,

We did a normal intolerance test that covered gluten. That should be sensitive enough right? My hubby was not shown to be allergic to gluten but allerhic to milk!

Our doctors are not the most helpful of people when it comes to these tests!

Coach,

did ccsvi not help with the balance and walking i take it?