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by Cece
Fri Jan 15, 2010 9:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ccsvi how it could be wrong
Replies: 46
Views: 12144

I mean take lumbar punctures. There is a massive tradition of doctors checking the pressure of cerebrospinal blood flow. To tell them there is reflux going on that wouldn't show in those pressure readings is a leap... No idea on this one...from the lumbar puncture, they can assess the pressure of t...
by Cece
Fri Jan 15, 2010 9:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ccsvi how it could be wrong
Replies: 46
Views: 12144

Agreed. Less swooning over what we potentially have here, more sticking to established facts. I'm reminded of the saying...and maybe I have it wrong...beginnings are delicate times. And yet I would count the 16 person study as replication, albeit on a minute scale. The scanning was done at Buffalo, ...
by Cece
Fri Jan 15, 2010 12:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: STANFORD From Alex to those who got "The Email"
Replies: 31
Views: 9215

My email is a little different, but ends with the same request for a bundle of information: Thank you for your inquiry regarding our work on blockages of the veins of the head and neck associated with multiple sclerosis. I wish I could talk with you personally to explain our ongoing work, but in ord...
by Cece
Fri Jan 15, 2010 11:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ccsvi how it could be wrong
Replies: 46
Views: 12144

To echo Boreas's question, there is a big one coming in March? From Zamboni? I was skeptical when I first looked into CCSVI (I'm skeptical of LDN, let alone bee stings, although now when you apply CCSVI theory I see where the bee stingers were on to the vasodilation effects). One of the big things t...
by Cece
Thu Jan 14, 2010 11:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Crossing My Fingers...
Replies: 11
Views: 3485

Congratulations on your pregnancy!
by Cece
Thu Jan 14, 2010 11:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My jugular stenosis...update
Replies: 9
Views: 5994

Those pics are stunning.

Do you have any information on the new laser technology to measure venous outflow? My neuro is a neuro-opthalmologist, he might be interested in going in that direction.
by Cece
Tue Jan 12, 2010 12:20 pm
Forum: General Discussion
Topic: Vascular computer model may help understand CNS disease
Replies: 1
Views: 1681

Has this been posted in the CCSVI forum? It seems relevant.... :)
by Cece
Tue Jan 12, 2010 9:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 6th Jan 2010 (Katowice) - POST-OP
Replies: 101
Views: 22412

greyman wrote:Cece, below pictures with indications of where the problems were.
Thanks, I see them now (circles and arrows being helpful!).
by Cece
Mon Jan 11, 2010 8:02 pm
Forum: General Discussion
Topic: Pregnant: Any advice to help avoid post partum relapse?
Replies: 12
Views: 3579

Yeah, I was diagnosed with MS about six months after baby #2. It was a classic postpartum relapse; I developed eye issues and minor foot drop and recovered. So far *knock on wood* my relapses have been minor and my recovery good. I did not relapse after baby #3. And I managed to breastfeed for a ful...
by Cece
Mon Jan 11, 2010 7:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: UW Madison Neuroradiology Doc
Replies: 9
Views: 2837

This is exciting. I'll drive to Madison for the American Girl warehouse sale, so you bet I'd drive there to be a CCSVI guinea pig, if one thing leads to another!
by Cece
Mon Jan 11, 2010 9:28 am
Forum: General Discussion
Topic: Pregnant: Any advice to help avoid post partum relapse?
Replies: 12
Views: 3579

If CCSVI has merit, then the postpartum relapse may be a delayed autoimmune clean-up response triggered by hypoxia to the brain during childbirth. So I would also focus on "the big day" and make sure to breathe and stay as relaxed as possible through it all. Also, being fit going into chil...
by Cece
Sun Jan 10, 2010 5:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: vasoconstrictors, vasodilators
Replies: 12
Views: 11055

Not sure which thread on vasodilation to add my comment to, but this is the one that cheerleader linked back to in a more recent thread. I use both Provigil and Diet cokes to make it through the day. If I understand it correctly, Diet Coke is vasoconstricting and I'm working towards giving it up. Pr...
by Cece
Sun Jan 10, 2010 4:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: physical adaptation of children to life at high altitude
Replies: 0
Views: 1744

physical adaptation of children to life at high altitude

Here's some research on children growing up at high altitude. It may explain the hypercoagublitity of MSers blood (as a response to growing up with hypoxia). http://www.springerlink.com/content/t63006743m424455/ "Physical adaptation of children to life at high altitude Journal European Journal ...
by Cece
Sat Jan 09, 2010 11:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Looking for Help in Kansas
Replies: 2
Views: 1560

Yes, your regular doctor can give you the referral. There are protocols somewhere on this site that you would give to the radiologist when you meet him. You are looking for an MRV. This is all in its infancy still so you may meet with resistance. Good luck. Dr. Zamboni in Italy does not do the proce...
by Cece
Sat Jan 09, 2010 8:47 pm
Forum: Introductions
Topic: Hi from a long timer
Replies: 8
Views: 2514

Amen!!!

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