Search found 73 matches

by wobbly
Fri Jun 18, 2010 5:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: no new
Replies: 5
Views: 1979

no new

lesions /i have not had my cord mri 4 3 yrs / that is where my problems have occured still have 4 good size large 1 s but no new nothing / i cant believe that they r not offering this procedure at least angio 2 us / why will it take years 2 prove at least it helps but they won t hesitate 2 send 1000...
by wobbly
Mon Jun 07, 2010 9:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Heat intolerance and angioplasty
Replies: 26
Views: 6884

it

was my biggest improvement/ but it has been 19 months and i think i have re stenosed it is bothering me very much/ STAY STRONG ALL :( :(
by wobbly
Fri May 28, 2010 4:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Relapses after the liberation treatment?
Replies: 56
Views: 16087

soon 2 find out / mri sched 4 june 7/ i have not had spinal mri in 3 yrs / my lesions r in the spine/ it has been 18 months since liberation/ i hope it is the answer/ STAY STRONG ALL :roll: :roll:
by wobbly
Mon May 24, 2010 4:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, the Places Pam Goes - to Buffalo!
Replies: 16
Views: 4397

as now we r softball buddies we r similar in our MS / i have 1 very old lesion on my brain - 4 as last spine mri big lesions on my cord / pam cool blog / pam and darren u guys rock / STAY STRONG ALL --PEACE 8) 8)
by wobbly
Sat May 22, 2010 6:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I'm back from BNAC and I have CCSVI !!!
Replies: 75
Views: 15006

they r an unbelievable crew / dr guttman is very special / dr Z is relentless / for once it is good 2 be in buffalo/ i no that this treatment option is coming / red tape/ thats all / PEACE :) :) :)
by wobbly
Tue May 11, 2010 11:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Update on self-pay BNAC CCSVI testing
Replies: 34
Views: 8030

any 1 coming 2 town p m me i could be avail 4 a beer / softball nite is wed i always need help guarding yhe beer cooler ---- PEACE :roll: :roll:
by wobbly
Fri Mar 26, 2010 3:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New Facebook post..Absolute nonsense!
Replies: 10
Views: 2891

hi all

my man dr dave as i call him is my main man in this dance/ i 4 some of the new guys r part of the 1st 4 to go 2 italy 4 the liberation/ so i got lots of tkes on this and no his exact feelings on this whole deal [ at least i think] he has read my scans as much as any 1 he has ever had / for 1 he is 1...
by wobbly
Fri Feb 12, 2010 6:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Zivadinov confused?
Replies: 33
Views: 8250

a

the dude has A+ TALENT he is definetly not confused / these people here r unbelievable and working like crazy / we r going in sun am / who works sun AM S / STAY STRONG ALL -----PEACE :P :P
by wobbly
Sat Jan 16, 2010 7:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ccsvi how it could be wrong
Replies: 46
Views: 12147

o k

spent most of the day thurs at the jake/ got lots of the scoop / this is very very real/ this is not going 2 get any1 out of a wheelchair itself / it does very very realisticly stop progression if the stenosis is kept open/which came 1st the chicken or the egg/ we all want answers now / the crew at ...
by wobbly
Sun Dec 06, 2009 1:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Happy Birthday, Marie-
Replies: 20
Views: 4818

happy B day :) :) :) 8O
by wobbly
Sat Nov 28, 2009 1:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Continue using DMDs after procedure...?
Replies: 2
Views: 2245

going off tysabri soon / then switching 2 copaxone most likely / he s [dr]\ getting afraid of it/ 32 treatments that is in the range of pml/ the risk seems harder than they thought / MS SUX i wish i could get balloned again :?: :?:
by wobbly
Sat Nov 28, 2009 8:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 123
Replies: 36
Views: 7428

hi all/ still following very closely/ 2 stent or baloon / i spoke with the big shots [ don t want 2 quote] abt this / here in buffalo it seems that they r totally leaning on balloning 4 they don t no the outcome down the road / they r concerned with all the meds needed after the stenting/ the balloo...
by wobbly
Sat Nov 21, 2009 10:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian Documentary ????!!!!
Replies: 152
Views: 33759

truly

very very remarkable man / it is unbelievable how dedicated dr zamboni is / cash 4 him is truly not king / it is so very refreshing 2 see a dr that truly just wants 2 help people out not caring abt anything else but that / my liberation continues 2 be good -no attacks and some improvements/ as i hav...
by wobbly
Mon Oct 26, 2009 1:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI: had liberation done in January 09
Replies: 4
Views: 3534

j en

jen jen jen was my partner in crime in italy / all i can say is--marino/ jen will get that/ whole point way 2 go / so all good i didnt get 2 talk 2 u at the party / STAY STRONG :oops: :oops: :oops:
by wobbly
Sat Oct 24, 2009 5:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI: had liberation done in April 09
Replies: 15
Views: 5285

WELCOME / did u ever find marino when u were there/ we were so lucky / good 2 hear from u/ peace :o :o :o

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