Search found 25 matches

by BamBAM
Mon Mar 15, 2010 10:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Spinal tap
Replies: 2
Views: 1854

Spinal tap

Hi All I recently rememberd something my neurologist commented on when I was going thru my first demylinating event, When he stuck the needle into my spine he commented that there was a lot of pressure in my spinal canal and the needle filled very quickly, I never thought much about these comments u...
by BamBAM
Wed Jan 27, 2010 9:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chief of Jacobs Neurological Institute leaving
Replies: 21
Views: 6571

Well its either bad news for the CCSVI trial or really good news for CCSVI maybe he does not see a future for himself in buffalo because CCSVI is real and maybe neurological services will not be in such high demand
by BamBAM
Sat Jan 23, 2010 11:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Anyone in So Cal, Los Angeles area
Replies: 2
Views: 1819

Thanks Joan

You are the most awesome person, Thanks for all you do

BamBam
by BamBAM
Sat Jan 23, 2010 7:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Anyone in So Cal, Los Angeles area
Replies: 2
Views: 1819

Anyone in So Cal, Los Angeles area

Hi All I was just wondering if anyone in the Los Angeles area has contacted Dr Donald W Larsen, He is an Interventional Radiologist at U.S.C+LA County medical center, It says on his Bio that one of his specialitys is Angio of the Brain & Spinal cord veins, Sounds like a person I would like to co...
by BamBAM
Thu Jan 07, 2010 6:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: U.S.C in California is onboard with CCSVI
Replies: 13
Views: 3261

Hi all,

I am simply telling you all what my neuro told me face to face, USC has a petition for a grant in to study CCSVI and that they were very interested in it, I dont know do you think maybe she lied to me and other patients in order for us to stop asking about it ???
by BamBAM
Wed Jan 06, 2010 10:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: blood pressure high or low Is there a relationship to CCSVI
Replies: 23
Views: 8194

I have had that also, My blood pressure has never been high no matter what I am going thru, My doctors have always put it down to the fact I always have a good attitude in life, But now I wonder !
by BamBAM
Tue Jan 05, 2010 4:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: U.S.C in California is onboard with CCSVI
Replies: 13
Views: 3261

Hi all

my appointment was at the LESLEE P WEINER, MS clinic at U.S.C,
by BamBAM
Tue Jan 05, 2010 3:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: U.S.C in California is onboard with CCSVI
Replies: 13
Views: 3261

U.S.C in California is onboard with CCSVI

Hi All Just finished my appointment at U.S.C, Talked to them about Dr Zamboni and CCSVI, The say they have an application in for a grant to start a clinical trial, Fingers Crossed!!! My doctor said they have had tons of M.S patients bring it up to them, And they are very open to the ideal, Score 1 f...
by BamBAM
Mon Dec 21, 2009 11:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hands and arms
Replies: 11
Views: 3770

Hi wymtime
Yes I have read the thread on inclined bed therapy and I do think it would help[ me but my question is about whether anybody else has the same problem at night as I do
Thanks
by BamBAM
Mon Dec 21, 2009 9:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hands and arms
Replies: 11
Views: 3770

Hands and arms

Hi everyone I have been reading on another thread about symptoms being worse when sleeping longer or laying for a long time, I was wondering if anybody has the same problem as I do, During the night when I sleep on my belly I wake up and the numbness in my hands and fingers is 8 to 10 times worse th...

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