This Is MS Multiple Sclerosis Knowledge & Support Community

My first injection is July 22nd.
So I am only 7 days behind you.
Which is weird since I was about a month ahead of you in the first part.
I don't know why I keep dwelling on being behind, I guess I am just tired of waiting!

I have my first shot scheduled!
July 22nd.
Took long enough.
I am way off schedule and thought I would be coming up to enter the 100 day club by now. But all the WAITING, for whatever reason, has put me back a little.

I updated my blog and will continue to write there as best I can.

I hope you had a big breakfest also! I didn't have any issues, but I am not 107lbs anymore either. Everyone always gasps at the large amount, it doesn't bother me at all. I actually was waiting for some drama to happen (dizzy, faint) but nadda. I didn't remember hardly anything from the last blood d...

Av8rgirl, I must have missed your post about not producing the MRTC's. Did they tell you that they will test again in 3 months? (or was it 4?) Although I didn't have any severe relapses, I did have times where I actually wanted to try steroids because I felt so bad. I had swore I would never go back...

Was wondering where I should stick this bit of news. Looks like an approprate thread! I am scheduled for the big blood draw Wed. 30th. Which puts me around June (or begining of July) for my first treatment. Dont get me wrong, I am happy things are moving forward, but I am WAY off schedule. 3 months,...

I would call if I were you also. I figured that I would get in to lifebloods schedule this month, but now I am not so sure. April 2nd the lifeblood lady called me with all the questions. She said they were still scheduling for April so it would probably get in this month. 2 weeks and I haven't heard...

Hi Deege,

What a blow! I feel for ya.
I am so sorry about what happened.
From your description it makes a mind wonder what happened exactly.
The thing is we wont know for some time.

I also would like to know what state, if you care to share.

Hi Av8rgirl!

Good to see ya over here and glad to see you made it through the year!

Put the phone down and enjoy your vacation! I gave blood to test for the MRTC's on Feb 7th. Called my coordinator because it was taking too long to hear back. She emailed them and they faxed her back with the go ahead on March 28th. I just got the LifeBlood call (with questions) on April 2nd. Waitin...

I'm awaiting the phone call from LifeBlood for the blood draw OR a phone call from my neuro's office telling my I didn't make MRTC's. Marcia, It was my understanding from AIN that Opexa would call you directly concerning whether or not they detected MRTC's. So after 3 weeks you still have not heard...

http://members.aol.com/sweetyhide2/smileys/toohappy.gif yeah Lew! Good to hear someone has started and also how it went. I believe you are the first person to report on the web. Some of your info is very informative! :wink: I am waiting for the blood draw schedule. They just called me with all the ...

Holy Cow! I hope it's just a misunderstanding. Wasn't even aware that you could get "booted" out of this trial. Wonder why he deleted his posts? Was he REALLY pissed? could be why. But I just went to his blog and it's gone too! ???? 8O ???? He sends me messages sometimes. Maybe he will aga...

yeah! WTF?
I didn't get to read his original posts so I am wiggin' out a little here.
What is going on??

Speaking of rescheduled appts.
My first appt. for the rollover was just rescheduled.
Instead of tomorrow I have to wait another week.
Coordinator said something about paperwork delay.
HELLO!!! Ever heard of a fax?!? geez

Still hanging in though.

*snipped for space* The first couple of times that I got my injections the vaccine caused a painful feeling in my arms. It basically hurt when the vaccine was going in (NOT when the needle went in), it didn't exactly sting but it hurt. After that the injections never hurt again. It could have been t...