Search found 386 matches

by jay123
Wed Oct 28, 2009 4:20 pm
Forum: General Discussion
Topic: High Fat Diet Speeds Recovery Of Spinal Cord Injury
Replies: 6
Views: 2785

dang - sorry you messed up the title - when I saw 'hi fat' diet helps I figured I'd be cured soon!!
by jay123
Wed Oct 28, 2009 1:43 pm
Forum: General Discussion
Topic: SPASTICTY MEDICATIONS???
Replies: 14
Views: 2827

4-AP is a potassium channel blocker. It has been proven that potassium channel blockers prevent remyelination. Yet, it doesn't work for everyone and its effects are far from adequate. Is this a proven statement, I haven't heard it before? The newest hot thing coming out is Fampridene which is basic...
by jay123
Wed Oct 28, 2009 7:32 am
Forum: General Discussion
Topic: Autoimmune uncertainty?
Replies: 33
Views: 6798

I didn't want to start any arguments, but this is one that one can't have a definite true answer for. If there was a cure for MS, then there's an answer - but as of right now there isn't. My personal opinion is CCSVI is the first step of a cure, then we need other drugs to stop the existing immune s...
by jay123
Wed Oct 28, 2009 5:35 am
Forum: General Discussion
Topic: Autoimmune uncertainty?
Replies: 33
Views: 6798

Had a good discussion with my neuro about this subject. I believe that he thinks (and I know it is what I think) that it is a multi-faceted disease thats going to take a lot to eliminate. For example (and not to start any arguments), IMHO, my theory is that MS is caused by a vascular condition which...
by jay123
Wed Oct 28, 2009 3:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Science Daily on CCSVI - word is spreading!
Replies: 10
Views: 3171

Hopefully the heath industry is looking at the big picture. This could initially cost them a lot of money if every MS patient needed surgery, pus probably those of us already dx'd will need meds at least for a while. They probably will be the toughest to convince it is needed surgery. The savings th...
by jay123
Wed Oct 28, 2009 3:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: OT Physiology questions
Replies: 50
Views: 9458

LOL, thats all we need - so now we have neuros, inter radiologists, vascular surgeons, phlebotomists, immunologists, GP's, natural health docs (chelation of iron), nerve pain docs (name?) and we will add the rheumatologists! Soon, we will have every specialist there is involved!!! Just kidding, but ...
by jay123
Tue Oct 27, 2009 1:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A CCSVI Patient Log: All About Steve
Replies: 145
Views: 37375

Yes, thats ^ what I was wondering too - because I knew Steve has been pretty sick since the operation, I didn't think he would have been working out yet.
by jay123
Tue Oct 27, 2009 12:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A CCSVI Patient Log: All About Steve
Replies: 145
Views: 37375

Is Steve doing PT or working out to build up those 'guns'?
by jay123
Tue Oct 27, 2009 11:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Relapser's, Here's your poll about MS symptoms--
Replies: 2
Views: 2253

thx

I didn't find any options like you suggest on the poll, so I'm just hoping for general answers from people after their surgery symptoms are gone -
Your ideas are great - wish we could.
by jay123
Tue Oct 27, 2009 11:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Poll re MS symptoms for progressives who have been treated -
Replies: 7
Views: 3054

agreed

I agree with you all, but this is a very unscientific, overall satisfaction poll. I will clarify that i do mean MS related, I (and I think everyone should) expect some surgical elated 'problems'. Though it would be nice, I think some people might think the tracking is too much detail for them, but j...
by jay123
Tue Oct 27, 2009 2:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Relapser's, Here's your poll about MS symptoms--
Replies: 2
Views: 2253

Relapser's, Here's your poll about MS symptoms--

Unfortunately we obviously don't have everyones results in the tracking thread. I have added a simple poll just to get an idea of how people are doing. If you have had a procedure (angio or stent) and are RR please fill this out one time!
Thanks
by jay123
Tue Oct 27, 2009 2:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Poll re MS symptoms for progressives who have been treated -
Replies: 7
Views: 3054

Poll re MS symptoms for progressives who have been treated -

Unfortunately we obviously don't have everyones results in the tracking thread. I have added a simple poll just to get an idea of how people are doing. If you have had a procedure (angio or stent) and are SP or PP please fill this out one time!
Thanks
by jay123
Mon Oct 26, 2009 7:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Brain Veins! and L'hermettes
Replies: 4
Views: 2218

Brain Veins! and L'hermettes

I have seen a couple of comments related to the 'alternative' veins that the body uses and what happens to them when the jug's are opened and working correctly. Did I miss a thread on this or something? Also, this is just a thought, but could l'hermettes have anything to do with our problem with lac...
by jay123
Mon Oct 26, 2009 6:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Haacke/Dr. Reichenbach (Germany) CCSVI case 1
Replies: 46
Views: 15538

question

Could this possibly be related to l'hermittes, the tingling sensation some MS'ers get when bending their neck?
by jay123
Mon Oct 26, 2009 4:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI: had liberation done in January 09
Replies: 4
Views: 3533

that's two

That's two posters from the Jacob's clinic who posted about great results after heading to Italy!! I have also heard rumors that one of the trial patients is now out of a wheelchair and using a cane, hope it's true.... Now the question is, if these results from Italy are so good, why hasn't Jacob's ...

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