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by naychergirl
Fri Sep 03, 2010 5:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 204058

Re: Off to Albany

Confirmed September 15th!!!! Two weeks away! Congrats to you and everyone who has recently received dates! Dr. Hubbard just announced his irb approved registry study, to which qualified IRs can post their data without needing an irb approval of their own. Do you think Dr. Siskin will participate in...
by naychergirl
Thu Sep 02, 2010 1:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 204058

Congratulations goes out to all who have confirmed dates!

And for those still waiting, keep the faith and keep diligent. Your turn will be here soon!
by naychergirl
Thu Sep 02, 2010 9:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 204058

I got my call today! I am scheduled for October 8th at Community Care in Albany N.Y. Needless to say, I am thrilled. I have a tenative 11/15 in Poland. I'm going to cancel that! And I've been waiting for my Dr. down here to get IRB approval, but I'm still waiting. Wait no more woohoo!
by naychergirl
Sun Aug 15, 2010 5:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Finally Liberated
Replies: 6
Views: 2485

Congratulations Kuly!
I pray that you see positive results every day. Ijust had my MRV, and I am waiting for a date. And I am really looking forward to any kind of relief!
by naychergirl
Fri Aug 06, 2010 4:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Any place in South FL for CCSVI test?
Replies: 34
Views: 9666

I spoke today with the doctor in W. Palm Beach. He should be able to start operating again starting Sept 3 from a private outpatient catheterization center. Unfortunately he is not going to be able to accept insurance but the good news is that the cost should be half of what you would pay in Mexico...
by naychergirl
Thu Aug 05, 2010 11:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI: Rant about neurologists
Replies: 31
Views: 7770

Na. I'm not going to give his name until after my liberation. Then I will expose him for the legal pharmaceutical drug pushing goof that he is!
by naychergirl
Thu Aug 05, 2010 10:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI: Rant about neurologists
Replies: 31
Views: 7770

neuro exams

cmozena, I agree 100%, but think I can top yours story! My neuro had me checked for neuopathy. So, he ruled out neuropthy. So then, I asked him what it was, and why my foot was always cold and swells. And it turns purple, ususally in the afternoon and evening. On top of the pins and needles I have f...
by naychergirl
Wed Aug 04, 2010 5:18 am
Forum: Copaxone
Topic: Experiences with Copaxone
Replies: 60
Views: 70555

Hi All! I was diagnsoed in 2007, and started copaxone in 2008. Last year I had 3 relapses, so now I am on Rebif. Good so far, and it's nice having to inject every day. And the best part of Rebif is, I don't get the welts, bumps, and skin indentation like I did on copaxone. If copaxone is working for...
by naychergirl
Tue Aug 03, 2010 11:33 am
Forum: General Discussion
Topic: Tingling Driving Me Insane
Replies: 15
Views: 5429

Thanks Chris!

A big DUH on my part! :wink: I'm going to have my hubby incline our bed. He doesn'thave MS, but his right side gets numb when he sleeps. maybe it will help him too.

Marie
by naychergirl
Tue Aug 03, 2010 11:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Any place in South FL for CCSVI test?
Replies: 34
Views: 9666

That's awesome! I should be right behind you! Yay! Have you had your MRV yet?
by naychergirl
Tue Aug 03, 2010 5:39 am
Forum: General Discussion
Topic: Tingling Driving Me Insane
Replies: 15
Views: 5429

Zeureka,
What is IBT?
by naychergirl
Tue Aug 03, 2010 5:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Any place in South FL for CCSVI test?
Replies: 34
Views: 9666

Me too. I can't wait! :)
by naychergirl
Fri Jul 30, 2010 4:09 am
Forum: General Discussion
Topic: Tingling Driving Me Insane
Replies: 15
Views: 5429

Thanks Chris! I'm sorry about your outcome, but maybe it will just take some tine to see results. I am praying, alot, every day that the proceedure will heal me, or at least lessen the symptoms. I hate to be taking all this medicine. What were/are your symptoms? My symptoms are on my right side. Dro...
by naychergirl
Thu Jul 29, 2010 11:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2 month update
Replies: 15
Views: 5500

Sofia, Congrats on your improvements. and I pray there will be many more as time passes. Hopefully sooner than later! We all want to be healed after the proceedure (including myself), but sometimes it's not the case. I just had my doppler done, and my Dr. wants me to get an MRV. I should be able to ...
by naychergirl
Thu Jul 29, 2010 10:39 am
Forum: General Discussion
Topic: Tingling Driving Me Insane
Replies: 15
Views: 5429

Hi Chris, I too have tingling from hell. What had started out as a tingling sensation now feels like pins and needles being stuck in my legs. It's constant from my knees down to my foot. I take neurontin. It helps, but it doesn't take the tingling away. And it does come back with a vengence if I'm l...

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