Search found 188 matches

by Grumpster
Sat Dec 20, 2008 4:30 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: almost a week after the last Campath infusion
Replies: 14
Views: 6638

Oh yes, Best of luck with round #2 sugarmomma. Thanks for the post! I am gaining back my optomism about the trial!!
by Grumpster
Sat Dec 20, 2008 4:28 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: almost a week after the last Campath infusion
Replies: 14
Views: 6638

Thanks for the tip and the ray of hope. Best of luck to you and Merry Christmas!! I think my Campath journey will start within the next 60 days.
by Grumpster
Thu Dec 18, 2008 4:02 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: just back from my pre-screening
Replies: 3
Views: 2560

just back from my pre-screening

I just got back from my pre-trial screening. The site I am looking at is in the final stages of hopefully getting approved. I should know by next Monday latest. A lot of things concerned me about the site and trial. I would be the 1st participant at this site. That means possibly not as much experie...
by Grumpster
Wed Dec 10, 2008 5:55 pm
Forum: General Discussion
Topic: MS - the gift that keeps on giving
Replies: 14
Views: 3264

I am going for the trial like a bum on a baloney sandwich. :wink: No pain, no gain?! I just waffled a bit.....
by Grumpster
Wed Dec 10, 2008 1:26 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: almost a week after the last Campath infusion
Replies: 14
Views: 6638

As Bob said -In a lot of ways this is a "no guts no glory/no pain, no gain" decision. Is that where you're at mentally?

This is where I am mentally. I am going for it. Thanks to all those who post for the support. Hopefully I'll start SOON.
by Grumpster
Wed Dec 10, 2008 10:35 am
Forum: General Discussion
Topic: MS - the gift that keeps on giving
Replies: 14
Views: 3264

Re: MS - the gift that keeps on giving

I hope to start Campath trial shortly, but after reading some of the stories here I am not as optomistic about that. Hello Cheer and AC - just to clarify - I am not pesimistic about the Campath trial, just not as optomistic as I was once I found that I likely will be on it. I just read some real ro...
by Grumpster
Tue Dec 09, 2008 3:24 pm
Forum: General Discussion
Topic: MS - the gift that keeps on giving
Replies: 14
Views: 3264

MS - the gift that keeps on giving

Well 2008 has been an unusually crappy year for me. A severe fall and head injury, wicked vertigo for over 6 months now, optic neuritis in both eyes, balance and gait problems, and now a new gift from the MS grinch of the holidays... right arm numb from the elbow down and some loss of function in ri...
by Grumpster
Tue Dec 09, 2008 12:47 pm
Forum: General Discussion
Topic: Help!
Replies: 4
Views: 1900

My advice is to save your $$. That is only my personal view, but health fraud comes to mind.
by Grumpster
Tue Dec 09, 2008 12:43 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: almost a week after the last Campath infusion
Replies: 14
Views: 6638

Wow, that sounds terrible. I has somehow missed this post. I am due to start the phase III trial for Campath shortly. Now I am more scared than ever. - Fudge :(
by Grumpster
Thu Nov 20, 2008 11:52 am
Forum: Medical Marijuana
Topic: THE EXPERIENCE OF PATIENTS WITH MARIJUANA
Replies: 66
Views: 13450

Legal issues aside - I believe I am an outlier as MJ makes me almost instanly worse and unable to function even more than before. I get tremor and almost imediate balance issues. I even had a "friend" speculate that the MJ caused my MS - Arshole he was!. Anywho I will not participate in an...
by Grumpster
Thu Nov 20, 2008 8:49 am
Forum: General Discussion
Topic: Depression and MS
Replies: 7
Views: 2776

Shortly after MS diagnosis and onset of major symptoms I became really depressed. The interferon and the MS both are known for that effect. I had some really dark days where I just wanted to take a permanent dirt nap. I started some therapy and meds which seemed to help. Now I am entering a new phas...
by Grumpster
Sun Nov 16, 2008 7:46 pm
Forum: General Discussion
Topic: Does the FDA hinder progress?
Replies: 5
Views: 2402

If the FDA speeds the approval process and then problems surface once the drug is on the market they are to blame. If they take time to fully evaluate safety and efficacy and that delays a potential treatment they are to blame. It is a balancing act for the administration. I know that for sure. To s...
by Grumpster
Sun Nov 16, 2008 7:38 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Treatment after long term RRMS
Replies: 8
Views: 4275

I am in discussions right now with a trial site in S. california. It looks likely that I will start in a few weeks. I hope that others who are trying to get on board are able to. I am nervous of complications, but I am 99.99% sure I will go through with the trial. Best of luck everyone.
by Grumpster
Sun Nov 09, 2008 6:53 pm
Forum: General Discussion
Topic: Clonazepam
Replies: 22
Views: 6088

Maybe someone has been slipping it to me...???? That explains it.
by Grumpster
Thu Nov 06, 2008 9:06 pm
Forum: General Discussion
Topic: Clonazepam
Replies: 22
Views: 6088

Hey Robbie. I have never tried that one, but diazapam - valium works well for my ntremor and spacicity

Go to advanced search