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by Cece
Tue May 21, 2019 12:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dayton Interventional Radiology
Replies: 9
Views: 5467

Re: Dayton Interventional Radiology

viewtopic.php?t=19478

No recent reports but here's a few from 2012. Is it still Dr. Syed?
by Cece
Tue May 21, 2019 12:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cerebral blood-flow clinical trial
Replies: 2
Views: 3175

Re: Cerebral blood-flow clinical trial

Bosentan, interesting!

https://en.wikipedia.org/wiki/Bosentan

I would try it if it were available.
by Cece
Mon May 06, 2019 8:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 363
Views: 107365

Re: Notes from CureIous' at Stanford

Where is the migrated stent lodged? Not the heart but an artery feeding the lungs? I would be so mad, not at it happening but that you weren't informed and options considered back when there were options.
by Cece
Mon Dec 24, 2018 6:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: cerebrospinal fluid flow is reduced in MS
Replies: 1
Views: 2231

Re: cerebrospinal fluid flow is reduced in MS

Overall, these results indicate that dynamic 11C-PiB PET can be used to observe pathological changes in cerebrospinal fluid dynamics and that cerebrospinal fluid-mediated clearance is reduced in Alzheimer's disease and multiple sclerosis compared to healthy controls. So something called a dynamic 1...
by Cece
Mon Dec 24, 2018 6:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI procedure failed...
Replies: 25
Views: 9352

Re: CCSVI procedure failed...

jimmylegs I love how knowledgeable you are about nutrients and vitamins
good luck and merry christmas to all
by Cece
Mon Dec 17, 2018 11:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI procedure failed...
Replies: 25
Views: 9352

Re: CCSVI procedure failed...

the CTA don't show (IJV + brachiocephalic vein junction) That would be the primary area that would need to be seen and the most likely area where you were treated during angioplasty. Sigh. You could still benefit from a doppler of that area but it doesn't seem like your doctor is onboard. Anyway, t...
by Cece
Sun Dec 16, 2018 12:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: eye research supporting CCSVI
Replies: 1
Views: 4302

eye research supporting CCSVI

https://eandv.biomedcentral.com/articles/10.1186/s40662-018-0123-0 Microvascular blood flow velocities measured with a retinal function imager: inter-eye correlations in healthy controls and an exploration in multiple sclerosis Conclusions Inter-eye arteriolar and venular BFVs do not differ signifi...
by Cece
Sun Dec 16, 2018 12:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: mathematical model doctoral thesis
Replies: 0
Views: 2200

mathematical model doctoral thesis

This is above my head. Lots of equations. Here's a conclusion: Our computational results show that during the cardiac cycle there is an intraparenchymal bidirectional CSF-ISF movement which potentially helps to avoid localizations of stagnant water inside the brain. Based on the computational result...
by Cece
Sun Dec 16, 2018 12:25 pm
Forum: Antibiotics
Topic: CCSVI and antibiotics
Replies: 0
Views: 4370

CCSVI and antibiotics

Thought this was interesting.
https://journals.sagepub.com/doi/abs/10 ... 5517712884
A prolonged antibiotic protocol to treat persistent Chlamydophila pneumoniae infection improves the extracranial venous circulation in multiple sclerosis
by Cece
Sun Dec 16, 2018 12:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is Dr. Sclafani still around?
Replies: 42
Views: 23542

Re: Is Dr. Sclafani still around?

Brave Dreams: An overestimated study, crippled by recruitment failure and misleading conclusions Bernhard H.J. Juurlink,1 Pietro M. Bavera,2 Salvatore Sclafani,3 Ivo Petrov,4 Donald B. Reid5 I can't link the whole article for some reason but this was in 2018 and Dr. Sclafani remained in support of ...
by Cece
Sun Dec 16, 2018 12:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI procedure failed...
Replies: 25
Views: 9352

Re: CCSVI procedure failed...

I did experience some benefits on frequency and intensity of headaches. There has been some intriguing research on CCSVI treatment in patients with headaches. It's possible you are a nonresponder and it's not worth pursuing CCSVI any further. It's possible your IR did not inflate the balloon far en...
by Cece
Sun Dec 16, 2018 11:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI procedure failed...
Replies: 25
Views: 9352

Re: CCSVI procedure failed...

I'm going to see my doctor today and see if he can refer me to do a echocardiography (echo color doppler). I have no idea how to check the overall condition of the IJVs. A doppler is a good idea. It should be able to show if there is flow in both IJVs. Did your doctor refer you? If he was against t...

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