Search found 92 matches

by griff
Sun May 15, 2011 3:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 71120

Griff, Some IRs are indeed collecting data. I know that Dr. Sclafani is in Brooklyn. His patients complete surveys before their procedure and at periodic intervals after. He asks me for recent MRIs and records, too. And I don't know if "objective" data of neurologists tells the whole story. Their "...
by griff
Sun May 15, 2011 3:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 71120

I wish being stuck with a cooperative Neuro. but mine (Dr F from Ottawa) wants nothing to do with our pionnering way to get treated by an IR. Regards, Normb And if you just go for regular check-ups without telling him about your operation?? I guess that would be a real blinded test. :) Here, I told...
by griff
Sun May 15, 2011 2:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 71120

Griff, If the health care in the US is comparable to the rest of the world why is it that people from all over the world come here to receive treatment and also to study? I second Happy Poet's request, please provide the study info. M Do not get offended. :) It was not my intention to start a debat...
by griff
Sun May 15, 2011 2:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 71120

Re: MRI

In my country it does not cost more than USD 300. As part of the neuro follow-ups our insurance pays for that. USD 8000 seems a rip off to me. I read some studies that health care in the US is the least effficient in the world. They spend much more than in other countries without having that much b...
by griff
Sat May 14, 2011 4:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: We must believe in CCSVI
Replies: 6
Views: 1389

if you're posting about moderation it belongs in site support. please go read my reply to your earlier topic. we don't need to repeat this over again. Sorry, but I did not get any message to read and my whole thread was deleted. Can not we delete only those posts that are offensive and leave the th...
by griff
Sat May 14, 2011 4:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 71120

I don't know how much the actual cost to the clinic owner is, but a private MRI here is upwards of a couple thousand canadian bucks. I suspect the upkeep is fairly steep on those machines, as they are complex. The operators seemed a bit wet behind the ears at first, so possibly not real expensive t...
by griff
Sat May 14, 2011 4:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: We must believe in CCSVI
Replies: 6
Views: 1389

We must believe in CCSVI

We must believe in CCSVI theory at least here in TIMS otherwise our threads will be deleted. It happened to mine couple times. Twice this morning. No offence had been made, only I raised the following issue: "We all see our neurologists once or twice a year at least, so we get a status report at lea...
by griff
Sat May 14, 2011 4:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 71120

Re: MRI

All said, I would still have a suggestions. We all see our neurologists once or twice a year at least, so we get a status report at least once or twice a year. We usually get an MRI done once a year. If you do not get it, you can easily ask for it. It costs nothing compared to a CCSVI operation. :)...
by griff
Sat May 14, 2011 2:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 71120

Hi Cece. After reading hundreds of improvement reports here, I am just wondering if there is any MS patients yet who still needs any treatment at all. It seems that drug companies just go bust, all neurologists will retire soon...etc... All said, I would still have a suggestions. We all see our neu...
by griff
Sat May 14, 2011 2:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 71120

Hi Cece. After reading hundreds of improvement reports here, I am just wondering if there is any MS patients yet who still needs any treatment at all. It seems that drug companies just go bust, all neurologists will retire soon...etc... All said, I would still have a suggestions. We all see our neur...
by griff
Sat May 14, 2011 1:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For many patients, angioplasty is NOT in their best interest
Replies: 24
Views: 5393

First, let's look at a realistic assessment of the "benefits" in having a stent inserted in an artery. You may be surprised by this 2009 New England Journal of Medicine study that followed nearly 2,400 patients. Half the subjects received drug therapy (statins, aspirin, beta- blockers, etc.), while...
by griff
Sat May 14, 2011 1:02 am
Forum: Site Support
Topic: Why certain threads are locked here????
Replies: 3
Views: 4633

Why certain threads are locked here????

I just read scorpions' thread and I just had to realize that it is locked. Why is it that all the threads that aim to have a proper discussion on CCSVI are quickly locked???? Why are only those threads locked which raise some question about the efficacy or risk profile of CCSVI operations???? Who ha...
by griff
Fri May 13, 2011 5:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Opinions of medical professionals on CCSVI
Replies: 3
Views: 1917

Re: Opinions of medical professionals on CCSVI

The azygous can clearly drain the spinal cord but not solely, as there are many intercostal venous collaterals which fulfil the same function. I believe that collateral veins have been shown to often be inadequate. NHE How was it shown that it is inadequate? Why is that when one of the ISVs is full...
by griff
Fri May 13, 2011 5:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Suspicions of bias on both sides of the MS divide
Replies: 18
Views: 3608

There are scientific THEORIES about CCSVI but as of yet there is no sound science behind CCSVI so what do we talk about? When we tried to disucss Zamboni's original results people who wanted to talk science were looked at as enemies of CCSVI. When we try to talk science about recent studies undermi...
by griff
Wed May 11, 2011 6:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Does anone know Dr S's restenosis rate?
Replies: 9
Views: 2317

Re: Does anone know Dr S's restenosis rate?

in patients who had balloon angioplasty? was curious as he seems to be one of the few experts in CCSVI and wondered if his re-setenosis rate was lower than the average? Those who were fortunate to be treated by Dr S did you see dramatic improvements in mobility? have you re-stenosed? What veins did...

Go to advanced search