Search found 1125 matches
- Sun Dec 04, 2011 6:47 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Inclined Bed Therapy (IBT) Feedback Request
- Replies: 37
- Views: 13613
Re: Inclined Bed Therapy (IBT) Feedback Request
Dear Andrew, I have decided to go flat after more than 2 years. Pain in my neck was so bad. I have been having problems also with my C and Th spine from my childhood. A chiropractor fixed it last week. I do not know when and if I tilt my bed again as the neckpain is almost gone with flat bad. I am s...
- Sun Dec 04, 2011 6:31 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI and CCVBP
- Replies: 4794
- Views: 762517
Re: CCSVI and CCVBP
Dear Dr. Flanagan, I had these misalignments: C1, C3, C4, C5, C6, Th1 and couple of more Th and 2 lumbar last week. It was in January the same or very similar. I have had these problems since my childhood. I was born with abnormal rotation of my head. I also have spina bifida occulta. Are there any ...
- Wed Nov 23, 2011 3:47 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Erika`s procedure in Poland
- Replies: 493
- Views: 126648
Re: Erika`s procedure in Poland
what do you think about waiting 3 months now, and then getting another set of tests for d3, cal, and mag. after that, depending on results, you could likely push it up to 6 months before next testing. what has your doc had to say about these improvements? i hope she is happy! OK. Regarding my docto...
- Wed Nov 23, 2011 3:28 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Erika`s procedure in Poland
- Replies: 493
- Views: 126648
Re: Erika`s procedure in Poland
I had my procedure in November 2009. I was injecting Clexane (low moleculare heparin) for 60 days.CindyCB wrote:Erika,
Just wondering what type of anticoagulation therapy you had after your procedure and you do you still take anything?
I still take 100 mg of Aspirin (life long).
Erika
- Tue Nov 22, 2011 5:58 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Erika`s procedure in Poland
- Replies: 493
- Views: 126648
Re: Erika`s procedure in Poland
that's great erika!! i would say continue with d3, calcium, magnesium and zinc for sure. see if you can get the d3 up to 60 ng/ml. also, i think the units for magnesium are mmol/L yes? ..you still need to get up above 0.90 mmol/L. Yes, it is nmol/L. When you talk about magnesium. I think I never to...
- Mon Nov 21, 2011 2:16 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Inclined Bed Therapy (IBT) Feedback Request
- Replies: 37
- Views: 13613
Re: Inclined Bed Therapy (IBT) Feedback Request
My spina bifida was killing me. I almost couldn´t start to walk in the morning because of pain in my legs. Since I went to 11 cm the strong pain is gone.AndrewKFletcher wrote:Hello Erika, sorry to hear about your current health problems.
May I ask why you opted for 11cm incline as opposed to 15 cm?
Erika
- Sun Nov 20, 2011 8:54 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: My wife's turn next week in Poland - am I dreaming or not?
- Replies: 73
- Views: 17967
Re: My wife's turn next week in Poland - am I dreaming or no
What to say? Just amazing! I am happy for you. I admire her a lot!
Erika
Erika
- Sun Nov 20, 2011 5:48 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Inclined Bed Therapy (IBT) Feedback Request
- Replies: 37
- Views: 13613
Re: Inclined Bed Therapy (IBT) Feedback Request
Andrew, I am too week and too fatigued to post something.
I still sleep 11 cm inclined. I still have headaches and all my old problems.
My vision is too week to be able to read exactly what is written here. Sorry
Erika
I still sleep 11 cm inclined. I still have headaches and all my old problems.
My vision is too week to be able to read exactly what is written here. Sorry
Erika
- Fri Nov 18, 2011 11:24 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Erika`s procedure in Poland
- Replies: 493
- Views: 126648
Re: Erika`s procedure in Poland
Wow, Jimmylegs, it works! :-) After about 6 weeks of 500 mg of Magnesium per day, 1000 mg of Calcium per day and 25 mg of Zinc with only 5000 IU of D3 my D3 levels are finally after 1,5 year going up. I started in March 2010 and my first results of D3 in my blood were only 7,09 ng/ml. Results from t...
- Fri Nov 18, 2011 6:27 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Live case from the VEF Conference which was held in Katowice
- Replies: 3
- Views: 939
Re: Live case from the VEF Conference which was held in Kato
One thing I regret is that he never mentioned his name and I do not recognise him! Can anyone help me out? He is from Euromedic. The doctor doing the procedure and commenting is Dr. Kazibudzki , he is actually vascular surgeon. The second doctor who is assisting him is Dr. Świerad who is an interve...
- Thu Nov 17, 2011 10:57 am
- Forum: General Discussion
- Topic: provigil for fatigue study showed no improvement in fatigue
- Replies: 6
- Views: 2915
Re: provigil for fatigue study showed no improvement in fati
I am not surprised. Provigil doesn´t help my fatigue.
I started to take it about 2 years ago. I keep trying sometimes but really - it does nothing for me
Erika
I started to take it about 2 years ago. I keep trying sometimes but really - it does nothing for me
Erika
- Thu Nov 17, 2011 1:07 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Another Important New BNAC CCSVI Study
- Replies: 56
- Views: 8824
Re: Another Important New BNAC CCSVI Study
good exchange of ideas and information . As you know , there has been a long held view that -trauma - has been long suspected as the trigger for MS. I suspect that X % of children born ..... suffer some form of neck trauma , in the birthing process. If you have ever witnessed forcep deliveries .......
- Thu Nov 03, 2011 12:45 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Erika`s procedure in Poland
- Replies: 493
- Views: 126648
Re: Erika`s procedure in Poland
2 years after my CCSVI procedure in Poland Nothing new. I am still getting worse. I had more energy only the first 33 days. My fatigue, cog-fog, sleepiness, balance, vision, dizziness, nausea, headaches and weakness are very big problems. I am still able to walk with one cane. Evenings are better t...
- Wed Nov 02, 2011 1:03 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2371214
Re: DrSclafani answers some questions
Thank you all for the information about migrating stent.
I think the patient will inform me in case of some changes.
Erika
I think the patient will inform me in case of some changes.
Erika
- Tue Nov 01, 2011 12:25 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Montel's announcement
- Replies: 228
- Views: 50454
Re: Montel on Dr Oz Show
It is not liberation......but worth it http://www.doctoroz.com/videos/montels-own-procedure?mid=51 MarkW You know, regarding the word liberation. I understood it like liberation of the blood flow. I think it was even said or written somewhere in 2009. I think only some patients or maybe press chang...