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by LR1234
Wed Mar 04, 2009 2:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chronic Cerebrospinal Venous Insufficiency (CCSVI)-
Replies: 1011
Views: 371236

Apologies if I am repeating what someone else has said or asked (I have to admit I have not gone through all the 321 posts on this board!!) Have you all looked at the autoimmune disease Vasculitis? My neuro had put me in either the vasculitis (cerebral) or MS camp. These diseases must look or presen...
by LR1234
Wed Mar 04, 2009 1:53 pm
Forum: General Discussion
Topic: ESR raised
Replies: 4
Views: 3690

Thanks for the response guys (and the for the research Jimmy)

I guess if my ESR was raised it means I am in a inflammatory stage of the disease so hopefully can be helped.

This excerbation I am having though at the mo won't seem to go grrrr
by LR1234
Tue Mar 03, 2009 3:46 pm
Forum: General Discussion
Topic: ESR raised
Replies: 4
Views: 3690

ESR raised

Hi
Has anyone had a raised ESR level during an excerbation?

L
by LR1234
Tue Mar 03, 2009 10:37 am
Forum: General Discussion
Topic: Epstein Barr and Immune ablation
Replies: 23
Views: 5006

I am not sure...It was a general and when I woke up I wasn't able to breathe properly so god knows how long I was like that for. Also they had given me an epidural (whilst under a GA!) and that didn't wear off for 3/4 days. I was never the same after this op, it triggered all my health probs. The ir...
by LR1234
Tue Mar 03, 2009 10:15 am
Forum: General Discussion
Topic: Can you have MS withouout lesions???
Replies: 10
Views: 2082

Hi Gains, It was really hard for me to be told over and over again that there was nothing wrong and that it was impossible for me to have the symptoms I was describing... When the illness ME/CFS was discovered a couple of years after I first got ill I was told it was probably that (although I always...
by LR1234
Tue Mar 03, 2009 9:19 am
Forum: General Discussion
Topic: Epstein Barr and Immune ablation
Replies: 23
Views: 5006

Hi Had Mono twice (2 different types)!! (I was told by an viral expert that this was in fact possible)
by LR1234
Tue Mar 03, 2009 4:23 am
Forum: General Discussion
Topic: Can you have MS withouout lesions???
Replies: 10
Views: 2082

I may be a rare case but I had 8 negative brain MRI's and 3 negative spine MRI's over a period of 13 years of having symptoms. It wasn't until I had 3 bigger attacks that my MRI's went from negative to positive plus my LP went form negative to positive (I had 3 of those over the years too) All my ot...
by LR1234
Mon Mar 02, 2009 9:48 am
Forum: General Discussion
Topic: hereditary or not what percentage?
Replies: 20
Views: 4995

Deleted by me

L x
by LR1234
Mon Mar 02, 2009 7:02 am
Forum: General Discussion
Topic: hereditary or not what percentage?
Replies: 20
Views: 4995

My family has a history of autoimmune diseases ( lots of Hashimotos(thyroid antiboidies) type 2 diabetes (I think thats autoimmune) and endometriosis which has not been proven to be autoimmune but I have my suspicions :wink:
by LR1234
Sun Mar 01, 2009 1:30 pm
Forum: Antibiotics
Topic: Antibiotics
Replies: 4
Views: 3373

Antibiotics

Hi All,
I am thinking of starting the abx CAP soon.
My question is what are the symptoms associated with the bacteria dying off? Do the sx manifest themselves as new MS like sx or as fatigue or something else?


L x
by LR1234
Fri Feb 27, 2009 1:14 pm
Forum: General Discussion
Topic: Ice Cold water
Replies: 1
Views: 1790

Ice Cold water

Hi all, My feet have been numb for 5 days (the tops of them as opposed to the underneath) anyway I decided to stick them in ice cold water twice for 10 mins and the numbness seems to be wearing off a bit (even if it only lasts for an hour or 2 I am happy I have had some sort of effect) Anyone else t...
by LR1234
Tue Feb 24, 2009 12:03 pm
Forum: General Discussion
Topic: Cure in our lifetime?
Replies: 69
Views: 10195

My understanding of a cure is finding the cause and removing the cause therefore you know for sure it has gone. I don't know if they will ever find a "cure" for MS but I certainly think they will find ways of stopping its progression and maybe even be able to reverse some of the damage don...
by LR1234
Sun Feb 22, 2009 1:49 pm
Forum: Regimens
Topic: Gibbledygook's anti-viral log
Replies: 246
Views: 73424

Elastase

Hi Alex, I don't know that much about elastase but I know that when it was thought that I had CFS/ME for 13 years my levels were tested by a Dr in Brussels and it was way too high. This is one of the things he follows to monitor the CFS/ME's response to treatment. On my last blood tests it said &quo...

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