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by Cece
Mon Dec 10, 2018 11:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI procedure failed...
Replies: 25
Views: 9300

Re: CCSVI procedure failed...

It's possible for the injection of contrast to be powerful enough to make it look like there are collaterals that aren't really there. I can't read the images but they are beautiful images! I am sorry you did not experience improvements. This was nearly a year ago now? If the sinuses pool together, ...
by Cece
Wed May 16, 2018 6:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI alive and well in Poland. Fascinating article.
Replies: 4
Views: 5233

Re: CCSVI alive and well in Poland. Fascinating article.

phlebologist wrote:It is a fake webpage, probably aimed at stealing money from naive patients. Nobody has heard about this "clinic". Also, after release of Brevedreams study, procedures for CCSVI are no longer performed in Poland
I would trust phlebologist on this. Thanks for posting.
by Cece
Wed May 16, 2018 6:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and Colloidal Silver...safe?
Replies: 6
Views: 3271

Re: CCSVI and Colloidal Silver...safe?

"Silver can be toxic to nerve cells in the brain and spinal cord, but is normally prevented from entering those areas by the blood-brain barrier. Silver has not demonstrated any evidence of carcinogenic activity". oooh that's a hard no then I don't trust any of our blood-brain barriers to...
by Cece
Wed May 16, 2018 6:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 84882

Re: Improvement reports

https://www.ctvnews.ca/health/ms-patients-experience-fewer-headaches-after-jugular-veins-opened-with-balloons-study-1.3772510 “I hope these findings from a carefully controlled ‘gold standard’ study will persuade people with MS not to pursue liberation therapy, which is an invasive procedure that c...
by Cece
Sat May 12, 2018 5:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371543

Re: DrSclafani answers some questions

An example of putting pressure back on the FDA without talking about the PTA directly. Understanding jugular venous outflow disturbance. https://www.ncbi.nlm.nih.gov/pubmed/29687619 Abstract Extracranial venous abnormalities, especially jugular venous outflow disturbance, were originally viewed as ...
by Cece
Sat May 12, 2018 5:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371543

Re: be heard

We think it is time too re-evaluate are early patients, 2011 and especially 2012. If there are any patients who are willing to help as DIzzyLiz says above, We do need help. Please spread the word that Dr. Sclafani and Ferral seek followup from our patients to clarify long term effects like reductio...
by Cece
Sat May 12, 2018 5:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: sustained relief from headaches after balloon angioplasty
Replies: 1
Views: 2390

Re: sustained relief from headaches after balloon angioplast

This is solid research from Dr. Beggs. There is a market for jugular angioplasty for people who suffer from migraines. And it fits with the already accepted understanding that migraines are related to cranial blood flow. I hope we see some snowballing with the research into CCSVI in migraines and me...
by Cece
Sat May 12, 2018 5:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 84882

Re: Improvement reports

https://www.ctvnews.ca/health/ms-patients-experience-fewer-headaches-after-jugular-veins-opened-with-balloons-study-1.3772510 “We’ve got this tension between science and social media, where people will put these compelling stories, saying, ‘I’ve had this treatment, and I feel dramatically better,’ ”...
by Cece
Sat May 12, 2018 5:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI angioplasty procedure ok to do unless called research
Replies: 0
Views: 2551

CCSVI angioplasty procedure ok to do unless called research

https://www.medpagetoday.com/special-reports/states-of-disgrace/72033 The FDA could intervene in the cases of Arata and McGuckin because they were calling their procedures research, over which the agency has jurisdiction. However, the procedure can be done without federal scrutiny if there is no res...
by Cece
Sat May 12, 2018 5:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 84882

Re: Improvement reports

https://www.ctvnews.ca/health/meniere-s-disease-and-blood-flow-could-there-be-a-link-1.3312503 Meniere's disease He tells CTVNews.ca that before the PTA angioplasty, he had numerous vertigo episodes and often felt in a “brain fog” during which he had trouble with his memory and comprehension and fre...
by Cece
Thu May 03, 2018 5:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chinese researchers on CCSVI April 2018
Replies: 1
Views: 2538

Chinese researchers on CCSVI April 2018

https://www.ncbi.nlm.nih.gov/pubmed/29687619 CNS Neurosci Ther. 2018 Apr 23. doi: 10.1111/cns.12859. [Epub ahead of print] Understanding jugular venous outflow disturbance. Zhou D1,2,3, Ding JY1,2,3, Ya JY1,2,3, Pan LQ1,2,3, Yan F2,3,4, Yang Q3,5, Ding YC3,6, Ji XM2,3,4, Meng R1,2,3. Author informat...
by Cece
Thu Jan 11, 2018 8:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jugular Anomalies in MS associated with collateral flow
Replies: 1
Views: 1658

Re: Jugular Anomalies in MS associated with collateral flow

This would answer a question raised in the Journal of Vascular Surgery - Venous and Lymphathic Disorders that I read the other day. The hypothesis is vague, but the idea is that venous outflow obstruction results in disruption of the blood-brain barrier, leading to leakage of red cells and plasma co...
by Cece
Sat Jan 06, 2018 5:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371543

Re: DrSclafani answers some questions

But, if you recall, I stated many years ago that randomized trials were premature because there was no standard accepted best practice of the procedure, a necessary consition in which to judge the treatment. As in his early papers, the treatment was inadequate. The high restenosis rate in those ear...

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