Search found 69 matches

by guitarguy
Mon Jul 27, 2009 3:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CHARING CROSS - paper on line for free....
Replies: 130
Views: 22943

I really don't see what anyone has to lose in this though? I disagree, having stents in the jugulars and having to have it monitered for the rest of your life, seems like a lot to me for something we don't really know if it will help us yet. I most likely missed some info on this. But isn't this th...
by guitarguy
Sun Jul 26, 2009 9:18 am
Forum: General Discussion
Topic: Swine flu vaccine
Replies: 8
Views: 2746

Swine flu vaccine

Just wondering if anyone here is going to have the vaccine as soon as it comes out or are you going to wait? I know some healthy people who are afraid of it, maybe we should be too?
by guitarguy
Thu Jul 23, 2009 12:06 pm
Forum: General Discussion
Topic: Nitrious Oxide
Replies: 6
Views: 2481

I think I might ask for a little valium. I figured the gas would be bad for MS. I think my throat got numb because it was a lower tooth in the back. I am worred because this tooth is even further back! The numb throat was horrible! I couldnt swallow. bad enough they had my mouth clamped open, but th...
by guitarguy
Thu Jul 23, 2009 9:37 am
Forum: General Discussion
Topic: Nitrious Oxide
Replies: 6
Views: 2481

Nitrious Oxide

I probably will have to go in for a root canal on a lower back tooth, Anyone know if there are problems with Nitrious Oxide and MS? I am terrified of having a root canal after my last one 8 years ago. My throat was numb because of the novacaine and unable to swallow, also feeling of drowning because...
by guitarguy
Sat Jul 18, 2009 4:21 pm
Forum: General Discussion
Topic: My daughter
Replies: 54
Views: 12913

YES Bob...my first! (Unless you count my daughter's little chihuahua who has been living with me for the past 6 years...I always called him my first grandson!) She went to her OB/GYN yesterday. When he asked about health issues, she told him about her MS diagnosis. His eyebrows shot straight up--LO...
by guitarguy
Mon Jul 13, 2009 4:02 pm
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: Dosage?
Replies: 16
Views: 13767

does anyone know how she is doing today?
by guitarguy
Mon Jul 13, 2009 10:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is CCSVI old? you decide...
Replies: 17
Views: 7155

a theory from 125 years ago.... everything old is new again... or nothing ever goes out of style.... let's hope it sticks and is true this time. wouldn't it be nice to erase ms Yes it would. I had this a long time, almost 2 decades. My EDSS is still a 1.5 but that doesn't mean I have suffered any l...
by guitarguy
Mon Jul 13, 2009 8:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is CCSVI old? you decide...
Replies: 17
Views: 7155

Has anyone here had their d-dimers tested? I was tested twice about 2 years apart. I have very a very high d-dimer count but no embolism. I always found that to be unusual. Both times the doctors thought I had an embolism and was forced to go under a ct scan to look for clots, but they found nothing...
by guitarguy
Thu Jul 09, 2009 4:24 pm
Forum: General Discussion
Topic: Altitude and MS?
Replies: 13
Views: 3641

Altitude and MS?

I am considering moving back to Colorado, I currently live in Texas right now for the past 10 years. But I miss the crisp clean air, I miss the snow, I miss .. trees lol, I miss everything. the problem is I don't seem to do as well in the cold as I do in the heat. yeah yeah I know, most people with ...
by guitarguy
Thu Jul 09, 2009 3:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Mel & Jamie's ongoing Stanford experience post!
Replies: 130
Views: 22386

It could be or may not be. I know a lot of people with MS who also have hypertension. hypotension and hypertension can both be bad, depending how low your pressure actually is. Anything below 80/60 is way too low, otherwise you have normal BP, not low.
by guitarguy
Thu Jul 09, 2009 12:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Mel & Jamie's ongoing Stanford experience post!
Replies: 130
Views: 22386

...snip... Dr. Dake said something interesting that whilst he's not seen stenosis like this in non-ms patients he has seen congenitally malformed jugs on other people, he said one difference he's noticed is that people with MS tend to have low blood pressure. He speculated that low blood pressure c...
by guitarguy
Thu Jul 09, 2009 8:46 am
Forum: General Discussion
Topic: My daughter
Replies: 54
Views: 12913

It was literally like a miracle for my daughter...well, it was a miracle! Her improvements were breath-taking! Chris do you think that the natural way ms is meaning the relapse and remissions has anything to do with Suzy’s miracle. Some people go from being committed to a wheelchair during a relaps...
by guitarguy
Sun Jul 05, 2009 11:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Discoloration/Raynaud's
Replies: 14
Views: 3185

My feet would turn purple when I wear high heels. It used to freak people out and they would point to my feet and I would just laugh, mainly because I was used to it and I knew the color would return.

I haven't had that happend since I moved to texas, but happened all the time in Colorado.
by guitarguy
Thu Jul 02, 2009 9:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: testing mice...
Replies: 5
Views: 2354

Just curious, do you know how hormones might play a part in this? the stats say more females vs males have MS. Also, females seem to do much better MS wise during pregnancy. to me it doesn't seem to much to do with how big we are but maybe maturity. Our hormones change a lot as we get older. Maybe t...
by guitarguy
Tue Jun 30, 2009 8:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: .......
Replies: 113
Views: 19220

You said something about the 'hopelessness of our disease' Geeez! I got news for you, there is hope for us. (I can do a search and find the post) Now I am back a year later and the same thing all over again, now in the CCSVI forum. I'm literally paranoid to say anything right now lest it be taken w...

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