Search found 1079 matches

by dania
Wed Sep 22, 2010 7:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Bulgaria
Replies: 1107
Views: 264968

Kathy, I had it done in June (In Bulgaria) restenosed returned 3 weeks later had it done again. I know I have restenosed. I am going to try for a third time in Albany. I wonder if the long flight has anything to do with restenosing. I am going by car to Albany. It is only a 5 hour drive from where I...
by dania
Mon Sep 20, 2010 9:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The crux of aftercare (heparin/aspirin etc.)
Replies: 5
Views: 2094

Vivavie keep me posted with any news. I had cancer (Hodgkin's Lymphoma in 92) I live in St Lazare Quebec . Why are you?
by dania
Mon Sep 20, 2010 8:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The crux of aftercare (heparin/aspirin etc.)
Replies: 5
Views: 2094

[quote="vivavie"]This is not clear for me too! 1st procedure (April 25) Tychy Poland: 1 stent - Clexane 14 days - Plavix 6 weeks - aspirin for life. Canadian GP extanded Plavix for 6 months total 2st procedure (August 18 RI: repair candy wrap stenosis extremity stent + angio both jug and A...
by dania
Sun Sep 19, 2010 8:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cost of Liberation procedure
Replies: 30
Views: 14600

Bulgaria, Sofia
Ultrasound and venogram 5000 euros. each stent 650 euros
2nd treatment 3500 euros
by dania
Fri Sep 17, 2010 4:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Other veins involved in CCSVI??
Replies: 11
Views: 3212

I think the name of the veins are vertebral veins.
Look at this. http://uprightdoctor.wordpress.com/
by dania
Thu Sep 16, 2010 9:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Would you do it again?
Replies: 35
Views: 9694

Having had improvements that only lasted 1 week and got much much worse and then having done it again for the second time and got even worse than before. No, I would not have done it.
It works if the veins remain open.
by dania
Tue Sep 14, 2010 8:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Bulgaria
Replies: 1107
Views: 264968

livabird wrote:Well it is only three weeks now and boy i am squeaming out oh well. Does anyone know if they enter through the left and do ikkiac vein i prob have May Thurmer syndrome among other things.

Liva
They enter from the right. I asked about May-Thurner and the doctor was unaware of this.
by dania
Sun Sep 12, 2010 7:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Stented vein narrower - Is it normal??
Replies: 3
Views: 1853

Re: Stented vein narrower - Is it normal??

I had my 3 months check up post-op. After the procedure, my left ballooned vein was 3.5 mm and my right stented vein was 6 mm. Now, they both are 4.5 mm. Is it normal for the stented veins to shrink??? My stented vein stenosed 1 week after treatment. And the other 2 which had an original stenosis o...
by dania
Sun Sep 12, 2010 6:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Stented vein narrower - Is it normal??
Replies: 3
Views: 1853

Re: Stented vein narrower - Is it normal??

I had my 3 months check up post-op. After the procedure, my left ballooned vein was 3.5 mm and my right stented vein was 6 mm. Now, they both are 4.5 mm. Is it normal for the stented veins to shrink??? My stented vein stenosed 1 week after treatment. And the other 2 which had an original stenosis o...
by dania
Tue Sep 07, 2010 7:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Steve Simonyi-Gendele Slams Ottawa
Replies: 1
Views: 1781

Steve Simonyi-Gendele Slams Ottawa

Steven has slamed Ottawa for refusing to do CCSVI clinical trails.

http://www.marketwire.com/press-release ... 314501.htm
by dania
Thu Sep 02, 2010 4:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Our trip to the local vascular neuroradiolgist
Replies: 70
Views: 16089

Dear TIMS members: It has been almost a year since I read about CCSVI on this website. In that time, Boopie has gone from having the no hope for stopping her progression to slight hope with reservations to brief joy at short term results and back to zero hope. Let me explain. She was scanned for CC...
by dania
Wed Sep 01, 2010 10:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 201462

Re: Logic

[quote="leooreo"]Sorry some of you did not have WOW improvements - Do you know how many lesions are in your brain and spinal cord?? I do - Look at your MRI and ask yourselves - How long did these lesions take to develop? 1 day, week, year, years. That is the reason you and disfuntional to ...
by dania
Tue Aug 31, 2010 7:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Does anyone else have this problem?
Replies: 5
Views: 2313

Does anyone else have this problem?

I wonder if anyone else has noticed that they have to look up in order to do anything? If I tilt my head down ( keeping my body upright) I lose all my strength. When I was able to walk I noticed that I was always looking up at the ceiling, if I looked down I was unable to walk. I have recently come ...
by dania
Mon Aug 30, 2010 11:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: worse in am or pm?
Replies: 33
Views: 7038

Re: worse in am or pm?

The veins that drain the brain operate differently at night (inclined) and during the day (upright). Dr. Sclafani told us, "We should all remember that the drainage of the blood out of the brain has two normal pathways. When lying down, blood drains out of the brain through the jugular veins. ...
by dania
Sun Aug 29, 2010 9:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: restenosis question
Replies: 5
Views: 2364

Re: restenosis question

I had both jugulars ballooned on August 4 2010. I felt great for about 1 week and the slowly slipped back to pre-procedure conditions. I contacted the doctor that did the procedure and he said it was impossible that I re-stenosed already. Does anyone have any information on why he says I could not ...

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