Search found 9295 matches
- Sat Jan 09, 2010 8:11 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Sharing Common Symptoms....
- Replies: 45
- Views: 14904
Cece - I find it difficult to get my breath sometimes. I can't take a deep breath and can get light headed. It doesn't help my vertigo. I was sick and tired of people, including my Neuro, telling me that I was having panic attacks!! No way!! Yes - I remember being offended when a friend told me tha...
- Sat Jan 09, 2010 7:52 pm
- Forum: Introductions
- Topic: Hello from Minnesota
- Replies: 6
- Views: 1946
I never even thought to dream of such a thing. Doesn't that just nail it? I know I've hoped that it was all a misdiagnosis...that some drug combo would come along that would be better at slowing progression...but this?! I am still wrapping my head around it and I first heard of it a month ago. We d...
- Fri Jan 08, 2010 7:47 pm
- Forum: Introductions
- Topic: Hello from Minnesota
- Replies: 6
- Views: 1946
- Fri Jan 08, 2010 7:13 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Anyone get an MRV here in Minnesota?
- Replies: 27
- Views: 4672
Anyone get an MRV here in Minnesota?
I'm in Minnesota (Twin Cities area). If anyone here has either had success or been spectacularly shot down with getting an MRV, could you pm me? I'm looking for specific interventional radiologists to either pursue or avoid.
- Fri Jan 08, 2010 7:01 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Sharing Common Symptoms....
- Replies: 45
- Views: 14904
I'm in the sore neck club. It's not constant, but it's daily, and it's localized to the right side kinda at the base of my skull. Also cold hands, cold feet. Also early on I brought up to my neuro both that I sometimes have the feeling of not getting enough air and that I have pale lips. He didn't c...
- Fri Jan 08, 2010 1:47 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: 6th Jan 2010 (Katowice) - POST-OP
- Replies: 101
- Views: 22418
- Thu Jan 07, 2010 12:59 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Panaceia or Hygeia The Zambody myth.... ( google this link)
- Replies: 3
- Views: 2508
I can vouch that, having read some of Dr. Rose's posts on the Facebook CCSVI page, he comes across as a troll. I checked out his blog from there and, if I understood it correctly, he is a longtime opponent of angioplasty anywhere in the body. That he'd be an opponent of angioplasty in MSers is just ...
- Wed Jan 06, 2010 8:26 pm
- Forum: Copaxone
- Topic: Copaxone and trying for a baby
- Replies: 8
- Views: 7941
- Wed Jan 06, 2010 7:59 pm
- Forum: Introductions
- Topic: Hello from Minnesota
- Replies: 6
- Views: 1946
Hello from Minnesota
Hello! I'm Cece, from Minnesota. Four years ago I was diagnosed with RR MS. The neuros have batted my diagnosis around a bit...first RR MS, then CIS, then back to RR MS, then the idea that it's benign MS. I'm fortunate but even so the MS affects every day of my life. I'm 34 with three young children...
- Wed Jan 06, 2010 1:33 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: chelation therapy
- Replies: 64
- Views: 18059
If it was purely vascular in origin surely older people would start developing MS as the circulation naturally gets weaker with age...whereas MS hits people when they are in their prime.[/url] gainsbourg Lots of interesting info in your post. If you have white matter lesions after the age of 60, th...