Search found 217 matches

by CD
Tue Aug 09, 2011 10:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AN INTERESTING STORY
Replies: 4
Views: 1323

Perhaps Cece another procedure would work, but not everyone can afford the cash, again and again. She had to borrow from family. Either coming from Canada, or other countries, or if they are in the states here, their insurance might not/won't pay. She had to borrow from family to travel. I could paw...
by CD
Tue Aug 09, 2011 10:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DRUG ELUTING BALLOONS/CLINICS of the HEART/CABOS SAN LUCAS
Replies: 13
Views: 2340

Dr. Siskin gave me tPA on a balloon catheter when I restenosed. It's a drug that breaks up clotting and helps the vein heal after clotting and before stent placement for added adhesion. It is very much the same as Paclitaxel is for clot disolving, which is: Drug-Eluting Balloon Catheters http://medi...
by CD
Tue Aug 09, 2011 9:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AN INTERESTING STORY
Replies: 4
Views: 1323

I wonder if LDN would help her? :D
CD
by CD
Tue Aug 02, 2011 11:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Internet considered harmful
Replies: 17
Views: 4496

Unless.. The Neurologist or MS Specialist prescribes a drug that could possibly kill you. We have seen this during drug trials, and after too, when they give you a list of drug choices to pick from. Many chemo drugs on the market for MS. Even that latest drug Gilenya has risk. Fingolimod has been as...
by CD
Tue Aug 02, 2011 9:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 363
Views: 106545

Mark, thank you. That was priceless. :D Enjoy your time with your beautiful family. You certainly worked hard for it. I wish you a nice, safe trip and back again, with a smile on your face when you return. That good deed, to help people, and by spreading the word CCSVI, was truly a great gift to giv...
by CD
Fri Jul 29, 2011 10:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 160433

drsclafani wrote: while we have all been speaking about trying to fix this with one procedure, I have been mulling around the idea of a second treatment 3-6 months after the first empirically as a second stage of a procedure rather than as a restenosis treatment. I wonder whether you can actually st...
by CD
Thu Jul 28, 2011 8:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MR & Contrast Venography of Cervical Venous System in MS
Replies: 6
Views: 2034

I think Cece is missing the caffeine from her DIET PEPSI. :lol:

More coffee anyone? That Pepsi stuff will kill ya. My Dad said he could pour it on a car and it would take off the paint. Yikes!
CD
by CD
Tue Jul 26, 2011 5:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Alberta MS initiative website and questionnaire
Replies: 1
Views: 1354

It's a start. Everything has to start somewhere, even if inch by inch.
I sent this site on to friends of mine around Alberta. Just in case they missed it. Some were part of the Flash Mob. They probably know all about it. Maybe the Clinical Trial will prove helpful. I hope so. Thanks Cece.
CD
by CD
Mon Jul 25, 2011 1:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: so that's Dr. Mandato....
Replies: 9
Views: 2444

Hahaha.. Trish you are too funny. :lol:
by CD
Sun Jul 24, 2011 7:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: so that's Dr. Mandato....
Replies: 9
Views: 2444

Cece, you look younger in this picture, than the last one you sent me. :) I told you that Dr Kenneth Mandato was very handsome, more so in person. :wink: He and Dr Siskin did my first procedure. Later on he listened to me talk for a long time. He is compassionate and has a great bedside manner. Perh...
by CD
Thu Jul 21, 2011 6:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: SO HAPPY with CCSVI !!
Replies: 8
Views: 2939

Hi,
You live in France? We have many people on here from France. Your English speaking/writing is perfect. I hope you keep all of your improvements.
CD
by CD
Wed Jul 20, 2011 9:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: SO HAPPY with CCSVI !!
Replies: 8
Views: 2939

Hi mirandaamos,
Congratulations. :D

We're happy to hear your good news. Did you want to tell us a little more about your experience? You wanted to spread the message you said, so tell us was this your first time? Did you have many blockages? What was ballooned?
CD
by CD
Sat Jul 16, 2011 5:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 160433

Cece, have a pleasant and safe trip home. I hope all your veins stay open and flowing for good. Enjoy the colors and brightness in the eyes of your children, and husband too. Do you have those blue eyes too?
CD
by CD
Fri Jul 15, 2011 10:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Does tinnitus improve following CCSVI treatment?
Replies: 5
Views: 3082

Turbulent blood flow. Narrowing or kinking in a neck artery (carotid artery) or vein in your neck (jugular vein) can cause turbulent blood flow, leading to tinnitus

http://www.mayoclinic.com/health/tinnit ... ION=causes
by CD
Mon Jul 11, 2011 4:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 160433

What wonderful news. Yippee! You are good to go. :D I'm happy it went well for both of you. I hope you can get to see some sights and make it a medical treatment, medical symposium, and vacation all in one. Are you staying past next Monday? Dr Sclafani is usually right, you should know never to bet ...

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