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by lyndacarol
Wed May 10, 2017 10:27 am
Forum: Undiagnosed
Topic: Not sure what is going on with me. Help?
Replies: 5
Views: 1521

Re: Not sure what is going on with me. Help?

Hi. My name is Michelle and I just turned 45. I have been told I have a lot of the symptoms of MS, but my lumbar test was negative so they decided not to burden me with that diagnosis. Their words. I do have multiple lesions, but they think it could be from migraines. They said there is no way to k...
by lyndacarol
Tue May 09, 2017 9:55 am
Forum: Undiagnosed
Topic: MS-like symptoms with thyroxine issues
Replies: 12
Views: 2545

Re: MS-like symptoms with thyroxine issues

I saw my Endo today and got my Vit D (it was the 25 hydroxy test) results. I was at 65 at the time of the blood test which was about a month ago now, so I have been at the lower end of the normal range, and this is over summer so I've probably been anywhere from 10 to 30 points lower over winter. T...
by lyndacarol
Sun May 07, 2017 2:02 pm
Forum: Undiagnosed
Topic: MS-like symptoms with thyroxine issues
Replies: 12
Views: 2545

Re: MS-like symptoms with thyroxine issues

I'm a 27 yr old female, I have Graves Disease (dx at 14) and needed total thyroidectomy at 23. Aside from some parathyroid issues I've since been in pretty good health. Of course, there can be primary parathyroidism, simply a problem that develops in one of the 4 parathyroid glands. But please be a...
by lyndacarol
Sun May 07, 2017 1:40 pm
Forum: Introductions
Topic: Please help me with all this!
Replies: 3
Views: 2913

Re: Please help me with all this!

Welcome to ThisIsMS, Melissa (Mislpn). There are no symptoms that are unique to MS, there is no test that is specific to MS either. MS is a diagnosis of exclusion. It can only be considered after all the more likely causes for your symptoms have been ruled out. For instance, lesions, pulmonary embol...
by lyndacarol
Sat May 06, 2017 9:47 am
Forum: Undiagnosed
Topic: Told to test for MS - Advice needed
Replies: 3
Views: 1507

Re: Told to test for MS - Advice needed

Hi there, hoping for help and advice. A doctor acquaintance suggested I be tested for MS, but as I'm currently living abroad, this will be difficult. I'm getting progressively more frustrated, and my symptoms seem to be getting worse. Your insight would be greatly appreciated, as I have no idea wha...
by lyndacarol
Sat May 06, 2017 9:07 am
Forum: Undiagnosed
Topic: MS-like symptoms with thyroxine issues
Replies: 12
Views: 2545

Re: MS-like symptoms with thyroxine issues

...if anyone wants to read this and offer thoughts on this situation that would be appreciated. I'm a 27 yr old female, I have Graves Disease (dx at 14) and needed total thyroidectomy at 23. Aside from some parathyroid issues I've since been in pretty good health. I started having symptoms in Decem...
by lyndacarol
Fri May 05, 2017 5:00 pm
Forum: Introductions
Topic: Conversion disorder vs MS
Replies: 28
Views: 14623

Re: Conversion disorder vs MS

I'm also losing an awful lot of hair when I take a shower I have balls of hair when I rinse my head that come off of my head so somebody mentioned that it might be a thyroid issue which I'm guessing would also cause weight gain. I haven't had that checked either. Thyroid hormones can affect many th...
by lyndacarol
Fri May 05, 2017 11:01 am
Forum: Introductions
Topic: Conversion disorder vs MS
Replies: 28
Views: 14623

Re: Conversion disorder vs MS

I have a lot of vision issues with the MS when it comes to dietary intake is probably really horrible but I am very low on cash half of my disability goes towards my rent so it doesn't leave a whole lot left over so the other issue is I can't really stand long enough to prepare anything to eat so I...
by lyndacarol
Fri May 05, 2017 9:11 am
Forum: Undiagnosed
Topic: starting my journey
Replies: 15
Views: 3729

Re: starting my journey

I have been on vitamin D supplements for a couple of years. I take 5000 IU of Vitamin D3. what is the typical recommended dose for neurologic issues? ............... I realize that for someone who has had this disease for a while and knows everything there is to know about it , that my situation do...
by lyndacarol
Thu May 04, 2017 9:44 am
Forum: Undiagnosed
Topic: starting my journey
Replies: 15
Views: 3729

Re: starting my journey

I am not yet diagnosed. But I expect this is the direction my road is traveling. I apologize for the long post, and I appreciate anyone who is willing to read it and contribute their thoughts . ........... I called the neurosurgeon's office and asked the medical assistant if she could help me get a...
by lyndacarol
Tue May 02, 2017 10:29 am
Forum: Introductions
Topic: Conversion disorder vs MS
Replies: 28
Views: 14623

Re: Conversion disorder vs MS

I was diagnosed with MS in 1994 after having dozens of MRIs since 1994 so we're talking about more than 20 years I have tons of plaque all over my spinal cord and brain and yet when I had to go to the emergency room three months ago because I fell out of bed and could not get back up to my feet and...
by lyndacarol
Tue May 02, 2017 8:21 am
Forum: Exercise and Physical Therapy
Topic: Inactivity can shorten telomeres and icrease biological age
Replies: 2
Views: 3973

Re: Inactivity can shorten telomeres and icrease biological

Another angle on telomeres to consider: Serum 25-Hydroxyvitamin D Has a Modest Positive Association with Leukocyte Telomere Length in Middle-Aged US Adults. (Feb 8, 2017) Beilfuss J, Camargo CA Jr, Kamycheva E https://www.ncbi.nlm.nih.gov/pubmed/28179486 Conclusions: In a nationally representative p...
by lyndacarol
Sat Apr 29, 2017 7:50 am
Forum: Introductions
Topic: Newly diagnosed with MS in AZ, Hello!
Replies: 9
Views: 3471

Re: Newly diagnosed with MS in AZ, Hello!

I do not know the numbers for my Vitamin D results. It was by a specialists I saw at Riverside Hospital in Columbus OH. She was very concerned about my Vit. D. Also the B12 numbers, I cannot give info on that either, I go by what my Drs, which I do try to have good ones, don't always give me these ...
by lyndacarol
Fri Apr 28, 2017 11:57 am
Forum: Introductions
Topic: Newly diagnosed with MS in AZ, Hello!
Replies: 9
Views: 3471

Re: Newly diagnosed with MS in AZ, Hello!

I recently had my Vitamin D rechecked. It was perfect . Several years ago I had low Vitamin D and took mega doses. I also have Pernicious Anemia and have to take B12 shots every 2 weeks. My MRI shows severe forminal stenosis on both sides of C5 C6, I have seen the MRI myself. Also, the disk is rupt...
by lyndacarol
Fri Apr 28, 2017 10:18 am
Forum: Introductions
Topic: Newly diagnosed with MS in AZ, Hello!
Replies: 9
Views: 3471

Re: Newly diagnosed with MS in AZ, Hello!

Hello, while trying desperately to find out the source and treatment for horrible migraines, I found out that I had a really bad issue with my neck, C5 and C6 and needed surgery, subsequent MRIs showed that I also had MS. My neurosurgeon at Barrows in Phoenix will not operate on my neck until my MS...

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