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by shye
Fri Oct 15, 2010 2:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Upper cervical spine chiropractic adjustments
Replies: 97
Views: 29845

NZer1 If your questiion refers to any others doing the work osteopaths do, there are also people who are not the dr that osteopaths are, that just get certified to do the Cranial-sacral work itself (therefore, they cannot prescribe meds, etc). If well trained, they are just as good. But not covered ...
by shye
Fri Oct 15, 2010 2:04 pm
Forum: General Discussion
Topic: Blood Analysis
Replies: 2
Views: 1593

My lists includes: Red Blood Cell and serum levels of zinc--this is probably the most imp test for someone with MS--very often deficient definitely a test measuring for essential and metabolic fatty acids--for many with MS, will show a need for GLA (get this in Evening Primrose Oil)--also shows if t...
by shye
Thu Oct 14, 2010 4:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Upper cervical spine chiropractic adjustments
Replies: 97
Views: 29845

I had my first appt with a new osteopath this week. She is extraordinary! took a great history, and then did about 40 minutes of cranial/body work. I had made the appt in order to deal with rotated Atlas, which a chiro had greatly helped about 6 months ago, but which was rotating again. Well, this o...
by shye
Mon Oct 11, 2010 12:41 am
Forum: Low Dose Naltrexone
Topic: burst of intense body heat with LDN
Replies: 2
Views: 3733

burst of intense body heat with LDN

have been taking 1.5 mg LDN since Sep 15, 2010 and am now experiencing a burst of fairly intense body heat, starting in area of pancreas and liver, abaout an hour after taking it. Heat spreads to head. subsides fairly quickly. NOt sure if this is good or bad symptom, or if to continue with the LDN. ...
by shye
Fri Oct 08, 2010 6:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Vertebral Arteries
Replies: 11
Views: 2959

Why
but we are talking about the vertebral Arteries here--different functions.. if either not up to par would impact MS
the veins would be connected to the CCSVI hypothesis, the arteries to yet another hypothesis
by shye
Fri Oct 08, 2010 6:03 am
Forum: General Discussion
Topic: Facial numbness
Replies: 11
Views: 5341

I've had it sporadically--very high dose B vitamins clears it for me.
by shye
Thu Oct 07, 2010 4:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Vertebral Arteries
Replies: 11
Views: 2959

Interrupted I'm glad you asked this question-- an exray of my neck showed some calcificaton of the carotid--an ultrasound showed some calcification in my abdominal arteries. When discussing this with my dr (a general practice osteopath), we decided to do an ultrasound of carotids and of aorta-- I go...
by shye
Fri Oct 01, 2010 3:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Phlebotomy anyone?
Replies: 1161
Views: 218136

Interesting stuff Bethr
is there a test for macrophage iron overload? or do you have to assume from trans sat figures etc?
by shye
Fri Oct 01, 2010 3:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Phlebotomy anyone?
Replies: 1161
Views: 218136

Merlyn a methyl malonic acid test will show if you use B12 properly-- We haven't followed up yet (my dr only does things if I keep after her!), but my methly malonic test a few months ago showed a problem wtih utilizing B12, despite my taking almost daily shots of methylcobalamin. I think I might ne...
by shye
Fri Oct 01, 2010 3:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What do all these PEOPLE DO !!!
Replies: 7
Views: 2717

at least getting a good salary, I'm sure...
by shye
Fri Oct 01, 2010 3:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: just a word of caution
Replies: 22
Views: 5287

I am only aware of two doctors here--Dr Sclafani and Dr Flanagan--and both were invited by members of TIMS to start a thread here. And both are warmly welcomed, and have much to offer us. We should indeed be grateful for their willingness to post here and spend time answering our questions. If you f...
by shye
Thu Sep 30, 2010 11:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Misdiagnosis of MS??
Replies: 28
Views: 6796

When I saw the head neurologist at Mt Sinai MS Clinic in NYC, Dr Arron Miller, he said the spinal tap was not a conclusive test--get false negative-positives with it--so he advised against it in any determination for me.
by shye
Thu Sep 30, 2010 3:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Upper cervical spine chiropractic adjustments
Replies: 97
Views: 29845

Blossom,
check your PM
by shye
Thu Sep 30, 2010 3:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Phlebotomy anyone?
Replies: 1161
Views: 218136

sbsr487 Maybe a bit off topic, but you mention that LDN has greatly helped you--I just started using it 2 weeks ago--notice nothing yet (except a bit of sleep disturbance)--would greatly appreciate if you PM me your experiences--how much using, how long on it, any bad effects, what are good effects,...
by shye
Thu Sep 30, 2010 3:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Misdiagnosis of MS??
Replies: 28
Views: 6796

Kleiner- I have the diagnosis MS from ophthalmologist/neurologist--did have severe optic neuritis years ago, and now the symptoms you have and more--and numerous lesions in head, but none in spine. But the MS neurologist (and the MRI radiologist) said could be MS or microvascular disease. And, as wi...

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