Search found 103 matches

by patrickm
Sun Sep 21, 2008 1:35 pm
Forum: Tcelna (Tovaxin)
Topic: TOVAXIN GUINEA PIGS PLEASE HELP!
Replies: 62
Views: 17483

I've rolled the dice with this trial for my own well-being, and obviously my family, friends and employees all share in my risk/reward. I have not shown any improvement and in some ways have worsened. My fatigue and brain fog are definitely worse. I have watched and suffered from afar as others in t...
by patrickm
Sun Sep 21, 2008 5:41 am
Forum: Tcelna (Tovaxin)
Topic: TOVAXIN GUINEA PIGS PLEASE HELP!
Replies: 62
Views: 17483

Having slept on it, I will address the elephant in the room and it's not cute, winky, or funny. If you are taking actions that skew your data, then you are selfishly ruining the entire purpose of the trial for everyone else. I don't normally begrudge anyone from doing what they need to do to advance...
by patrickm
Sun Sep 21, 2008 4:57 am
Forum: Tcelna (Tovaxin)
Topic: Opexa Announces Top-Line Results from Phase IIb Trial
Replies: 67
Views: 20002

Ant148: When the results show that they're statistically no better than placebo, then I'm not sure it's possible to overreact too terribly much. And going from a 92% reduction in ARR down to 30 something and in line with CRABs is quite the drag. So I guess calling it an overreaction is in the eye of...
by patrickm
Sat Sep 20, 2008 6:28 am
Forum: Tcelna (Tovaxin)
Topic: Accelerated Cure Project Benefit
Replies: 6
Views: 3489

Accelerated Cure Project Benefit

Hi guys. This is my record label. Anybody around the Chicago area might be interested. CARROT TOP RECORDS CELEBRATES SWEET 16 A BENEFIT FOR THE ACCELERATED CURE PROJECT FOR MULTIPLE SCLEROSIS SEPTEMBER 26, 27 AT THE HIDEOUT CHICAGO "The Hideout stacks up another fantastic weekend lineup with a ...
by patrickm
Sat Sep 20, 2008 6:10 am
Forum: Tcelna (Tovaxin)
Topic: Opexa Announces Top-Line Results from Phase IIb Trial
Replies: 67
Views: 20002

Well after a good night's sleep, a long exhale, and more tequila than I've had in one sitting in 3 years, I can safely say that I'm just as bummed and PO'd as I was yesterday afternoon. Also, I called the neuro office yesterday and told them what had transpired on the report, and asked for my doc to...
by patrickm
Fri Sep 19, 2008 2:01 pm
Forum: Tcelna (Tovaxin)
Topic: Opexa Announces Top-Line Results from Phase IIb Trial
Replies: 67
Views: 20002

yeah, big problem. BIG problem. They rolled all the dice, the whole barrel of monkeys AND the big enchilada on these results and came up snake eyes. Am awaiting a call from my doctor after he's done for the day and had time to digest. Will post, but not sure what he's gonna be able to tell me that's...
by patrickm
Fri Sep 19, 2008 1:44 pm
Forum: Tcelna (Tovaxin)
Topic: Opexa Announces Top-Line Results from Phase IIb Trial
Replies: 67
Views: 20002

<sigh> Well, the positive, and the only thing they can spin and how they reframed the talk, is that it works just as well as the CRAB drugs but is a whole lot less of a pain in the ass. But surely not what we were all hoping and not anywhere near the 90+% that they showed in Phase I. I don't know ho...
by patrickm
Fri Aug 15, 2008 12:34 am
Forum: Tcelna (Tovaxin)
Topic: Tovaxin Open Label Extension Schedules
Replies: 174
Views: 66232

Hi Gang. Was supposed to have my procurement here in Chicago (well, Northbrook, which is practically Wisconsin but without the cheese) this week but it was cancelled. Their rep "didn't make the flight." I am now rescheduled for Monday 8/25. After catching up on the last 3 weeks of banterin...
by patrickm
Tue Jul 15, 2008 8:21 am
Forum: Tcelna (Tovaxin)
Topic: Anyone have to test more than once for MRTCs
Replies: 8
Views: 3379

Anyway, I am going to see what kind of answers I can get today and maybe shed some light on my frustrations. Maybe even on everyone else's too cuz then I will stop posting all these inane questions and stop being a pest. LOL! I am the 1%, but only with technology! Those of us with MS are in an even...
by patrickm
Mon Jul 14, 2008 5:52 pm
Forum: Tcelna (Tovaxin)
Topic: Update on me
Replies: 20
Views: 7580

I don't think anyone knows the answers...looking for discussion...thoughts? Maybe I am just peeing in the wind... Please call Opexa! Please let us know what they say. At the least, when you hang up you will not know any less than you know now. And if they know something but can't tell you something...
by patrickm
Mon Jul 14, 2008 5:48 pm
Forum: Tcelna (Tovaxin)
Topic: Anyone have to test more than once for MRTCs
Replies: 8
Views: 3379

I am not quitting, I'd just like to be a little better informed instead of left hanging...see ya in 90 days. Don't call us we'll call you. Just want to pitch in here that I do care. We do care. And I have NO idea what's going on with you. I am unscientific as hell, but this baffles the small amount...
by patrickm
Thu Jul 10, 2008 6:45 am
Forum: Tcelna (Tovaxin)
Topic: Loobie's 100 day club thread
Replies: 66
Views: 17236

I guess they're all easy unless/until you can't do them. : - (
by patrickm
Thu Jul 10, 2008 5:24 am
Forum: Tcelna (Tovaxin)
Topic: Loobie's 100 day club thread
Replies: 66
Views: 17236

My first scary symptom—as I was in adamant, aggressive denial about my memory problems cuz in the back of my mind I was scared I had my dad's Alzheimer's—was disequilibrium. I was being sucked to the right by a big magnet, but though I felt it all the time, it only showed if I walked a decent amount...
by patrickm
Wed Jul 09, 2008 4:28 pm
Forum: Tcelna (Tovaxin)
Topic: Loobie's 100 day club thread
Replies: 66
Views: 17236

I say the sum and then quietly but out loud repeat the digit I'm supposed to be remembering. I've never missed one.' My neuro is unimpressed though. "A simple memory test" that he says doesn't really tell them too much specific. But it's a standard test so everybody does it. The ones I got...
by patrickm
Tue Jul 08, 2008 8:44 am
Forum: Tcelna (Tovaxin)
Topic: Opexa News
Replies: 61
Views: 20874

Phase IIb Study Receives Positive Reviews

Opexa Therapeutics (OPXA)'s Phase IIb Study of Tovaxin(R) Receives Positive Review from Data Safety Monitoring Board 7/8/2008 THE WOODLANDS, Texas--(BUSINESS WIRE)--Opexa Therapeutics, Inc. (NASDAQ:OPXA - News), a company leading in the development of cell therapies for multiple sclerosis announced ...

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