Search found 309 matches

by munchkin
Mon Nov 05, 2012 8:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371668

Re: DrSclafani answers some questions

Hello Dr. S

My thoughts are with everyone who has been affected by Sandy.

When you have had to use stents; have you noticed a difference in how the vein heals if you have had to use a stent during initial treatment vs a stent placed after a vein has healed between venoplasties?

Thanks
by munchkin
Thu Nov 01, 2012 3:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: EECP enhanced external counterpulsation
Replies: 9
Views: 2579

Re: EECP enhanced external counterpulsation

thrombosis hose work in the same kind of way. Mine were $32.00 and they were required after the by-pass surgery. Thigh high and hard to put on, but it gets blood moving to your heart. Raising your feet above your heart when you lay down works well also.
by munchkin
Sat Oct 27, 2012 1:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371668

Re: DrSclafani answers some questions

I am still here reading and I do have a question for Dr.Sclafani but must figure out the wording.
by munchkin
Wed Oct 24, 2012 11:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Two Months Post (eght weeks) Hernandez Jugular Bi-Pass
Replies: 14
Views: 3180

Re: Two Months Post (eght weeks) Hernandez Jugular Bi-Pass

That's so great to hear. My GP is the one who is most supportive as well. I'm glad you are doing so well, it is all about blood flow.
by munchkin
Tue Oct 23, 2012 1:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Two Months Post (eght weeks) Hernandez Jugular Bi-Pass
Replies: 14
Views: 3180

Re: Two Months Post (eght weeks) Hernandez Jugular Bi-Pass

Glad to hear you have had an MRI, was it your GP who ordered it? I'm doing alright, the swelling in my neck has pretty much gone away, and the scar from the surgery is fading. The follow-up with the ENT specialists was good, he felt everything was healing the way it should and has ordered an U/S to ...
by munchkin
Sat Oct 13, 2012 2:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Two Months Post (eght weeks) Hernandez Jugular Bi-Pass
Replies: 14
Views: 3180

Re: Two Months Post (eght weeks) Hernandez Jugular Bi-Pass

thanks, it really was a bad situation and anyyone who considers this surgery must have some real follow-up once they are home.
by munchkin
Fri Oct 12, 2012 3:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Two Months Post (eght weeks) Hernandez Jugular Bi-Pass
Replies: 14
Views: 3180

Re: Two Months Post (eght weeks) Hernandez Jugular Bi-Pass

I had a bypass and initially it seemed successful. I live in Canada and had problems one week after surgery with Coumadin. The incision/by-pass was oozing and I had an INR that peaked at 11.8. This resulted in a hospitl stay of 5 days to ensure my trachea was back in place, it was pushed over by 2 c...
by munchkin
Thu Sep 20, 2012 8:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Diamox
Replies: 9
Views: 2291

Re: Diamox

My GP runs blood work monthly to ensure my levels are fine (I think it's the electrolites). It's important to make sure your blood pressure is alright. One other issue is that your body can get used to the amount of drug and you might have to increase the dosage.
by munchkin
Mon Sep 17, 2012 3:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Diamox
Replies: 9
Views: 2291

Re: Diamox

Dr.Arata recommended Diamox to help with pressure in my brain. He was not able to open my lijv and the rijv is only open approx 20%. Diamox helps me sleep better at night and I dream. It has helped with mood and with waking during the night. This has been one of the more helpful medications.
by munchkin
Sun Jul 08, 2012 5:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: excel hospital's twitter saying their surgery is permanent
Replies: 27
Views: 3471

Re: excel hospital's twitter saying their surgery is permane

deirdrec - so glad to hear that you are doing so well :-D . Enjoy the weather!
by munchkin
Sat Jul 07, 2012 3:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: excel hospital's twitter saying their surgery is permanent
Replies: 27
Views: 3471

Re: excel hospital's twitter saying their surgery is permane

Isn't proper blood flow a wonderful thing, funny how some Dr's just don't seem to get it. :o
by munchkin
Sat Jul 07, 2012 9:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: excel hospital's twitter saying their surgery is permanent
Replies: 27
Views: 3471

Re: excel hospital's twitter saying their surgery is permane

Thanks 1eye, I will post about how the procedure went and some of the changes that hopefully will happen.
This thread might become x-rated; instead of fifty shades of grey it will be fifty shades of red. :oops:
by munchkin
Fri Jul 06, 2012 1:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: excel hospital's twitter saying their surgery is permanent
Replies: 27
Views: 3471

Re: excel hospital's twitter saying their surgery is permane

Thank you Cece, I'm hoping for the best as well. Dare I say... :lol:
by munchkin
Fri Jul 06, 2012 12:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A Different Rose (sweeter-smelling?)
Replies: 6
Views: 1681

Re: A Different Rose (sweeter-smelling?)

For a minute I thought it was the infamous Dr. Rose Cardiologist. :wink:
by munchkin
Fri Jul 06, 2012 12:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: excel hospital's twitter saying their surgery is permanent
Replies: 27
Views: 3471

Re: excel hospital's twitter saying their surgery is permane

There are a lot of statements (using the words permanent, only, etc) made by patients of many different treatment modes. A Dr or organization cannot be held accountable for what others are saying. Excel seems to be doing their best to eliminate the phrase and I don't think it's necessary to beat a d...

Go to advanced search