Search found 263 matches

by TMrox
Tue Dec 07, 2010 5:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 755993

Hi Dr Flanagan, I have Transverse Myelitis, as a monophasic monofocal inflamatory demyelination of the spinal cord. I've read your thread as I find it very interesting. I was treated for CCSVI in March 2010 just 14 months after my TM diagnosis. I went from being housebound to now almost fully recove...
by TMrox
Mon Dec 06, 2010 9:19 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Prof Paulo Zamboni on CCSVI Syndrome
Replies: 6
Views: 2607

Cece I rescued this from the locked thread on this topic. I might be pessimistic but I think calling CCSVI an entity, a syndrome, or whatever will not help much now . Politics might be a part of the puzzle now, not just medicine. Mark W wrote It is important to understand what Prof Zamboni has done ...
by TMrox
Mon Dec 06, 2010 7:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: new therapy
Replies: 7
Views: 2446

lol! I think rats do not get MS, docs induce them a similar demyelinating disease.

Call me skeptical on this but I rather wait until the trial is done on humans... :lol:
by TMrox
Mon Dec 06, 2010 6:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: new therapy
Replies: 7
Views: 2446

The study has been done on rats. Humans need to wait Studies on rats by Cambridge and Edinburgh University researchers identified how to help stem cells in the brain regenerate myelin sheath, needed to protect nerve fibres. MS charities said the "exciting" Nature Neuroscience work offered ...
by TMrox
Mon Dec 06, 2010 1:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Migraines, MS, CCSVI and Atlas misalignments
Replies: 26
Views: 7827

I have written this post in another thread but might worth duplicating: http://www.thisisms.com/ftopict-7800.html Docs have known for a long time that trauma and vascular issues can cause demyelization. Here a video of a 2010 symposium of rare neuro conditions. The speaker is Dr Pardo (Johns Hopkins...
by TMrox
Mon Dec 06, 2010 1:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Official protocol for angioplasty fir pwMS and CCSVI?
Replies: 1
Views: 1868

You might want to write your question directly in Dr Sclafani thread, otherwise he might not see it

http://www.thisisms.com/ftopic-10680-4035.html
Rox
by TMrox
Sun Dec 05, 2010 8:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Migraines, MS, CCSVI and Atlas misalignments
Replies: 26
Views: 7827

Migraines, MS, CCSVI and Atlas misalignments

Migraine Headaches, Multiple Sclerosis and NUCCA Dr. Davis, Upper Cervical Specialist from Vista Califonia Chronic Cerebrospinal Venous Insufficiency (CCSVI), is a reported abnormality in blood drainage from the brain and spinal cord, this may contribute to nervous system damage in MS. CCSVI has be...
by TMrox
Sun Dec 05, 2010 6:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post Hypoxic Demyelination
Replies: 27
Views: 9577

Docs have known for a long time that trauma and vascular issues can cause demyelization. Here a video of a 2010 symposium of rare neuro conditions. The speaker is Dr Pardo (Johns Hopkins) http://tinyurl.com/29qo895 The video is about my condition (Transverse Myelitis) but talks at length that arteri...
by TMrox
Sat Dec 04, 2010 3:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Does your Neurologist know about CCSVI?
Replies: 11
Views: 3696

Thanks Mark, When I complained to my docs that I was having excruciating daily migraines I was told that migraines were not common among MS or TM patients. Mmm. The migraines went away after CCSVI treatment. Here is what the Oxford neuros say taken from the link you shared (thanks! I had not seen it...
by TMrox
Sat Dec 04, 2010 2:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr Freedman: CCSVI no less than a cult
Replies: 53
Views: 10620

ikulo, it seems that he responded to one of his patients who is about to have CCSVI treatment. BTW, Dr Freedman is member of a team that is investigating CCSVI Project Details: This team is employing “3 Tesla” MRI technology that is twice as powerful as a standard MRI magnet to explore differences i...
by TMrox
Sat Dec 04, 2010 12:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Prof Zamboni - CCSVI Syndrome
Replies: 21
Views: 5473

Endovascular treatment for chronic cerebrospinal venous insufficiency: is the procedure safe? T Ludyga *, M Kazibudzki *, M Simka * , M Hartel , M wierad *,J Piegza *, P Latacz *, L Sedlak * and M Tochowicz * Objectives: The aim of this report is to assess the safety of endovasculartreatment for ch...
by TMrox
Sat Dec 04, 2010 12:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Prof Zamboni - CCSVI Syndrome
Replies: 21
Views: 5473

The chronic cerebrospinal venous insufficiency syndrome P Zamboni and R Galeotti Chronic cerebrospinal venous insufficiency (CCSVI) is a syndrome characterized by stenosies of the internal jugular and/or azygous veins (IJVs-AZ) with opening of collaterals and insufficient drainage proved by reduced...
by TMrox
Sat Dec 04, 2010 12:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Does your Neurologist know about CCSVI?
Replies: 11
Views: 3696

Mark,

Are you referring to the neuro that the two of us share? Can u please post the reference or link of her views on CCSVI?

Thanks,

Rox
by TMrox
Sat Dec 04, 2010 10:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A question regarding collaterals for dr. Scalafani
Replies: 1
Views: 1393

you might want to write your question in Dr Sclafani's thread. Otherwise he might miss it.

http://www.thisisms.com/ftopic-10680-4020.html

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