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You could ask for a lumbar puncture and an mri of your cervical spine. You could also visit an ophthalmologist to test whether you've had optic neuritis. There are about 400 listed 'mimics' of ms, so doctors are slow to diagnose if it's not clear to them. Hopefully you have had blood tests for a lot...

You're right that a brain mri and an appointment with a neurologist would be your next step to find out whether you have ms.

Also this... http://www.ncbi.nlm.nih.gov/pubmed/20614202

I'm hoping this becomes commonly available.

See also http://www.gizmag.com/pons-tongue-brain-injuries/26408/

http://www.slate.com/blogs/future_tense ... njury.html

Yes, I would take all steps to protect your health, including, but not limited to DMD's.

To move forward on whether this is ms, ask for a spine mri and a lumbar puncture.

Hopefully your neuro will also test for other conditions. Neurological symptoms aren't always ms.

Very sorry to hear what your family is going through.

I would talk to a psychologist or medical social worker and see what they suggest.

Best of luck. MS is a very challenging disease.

Hi,

I'm wondering why weekly steroids and not one of the 'disease modifying drugs? Steroids can help, but they have side effects including loss of bone density. I would want to know for how long the doctor was proposing to treat you with steroids.

Best of luck.

Hi Bree, Welcome. Sorry you have a reason to be here. It sounds like you're getting the standard protocol to find ms. I wouldn't worry about the strength of the mri at this point. Learnin to live with fear is the challenge. If you get a diagnosis, the fear will change, but, if you're like me, it won...

Thanks Anon. If the neuro is willing to go public, please think of me. I'll post if I try something else in the mean time.

Probably I'll post anyway. Just can't look away. ; )

If the neuro won't work with her, she should make an appointment with a good family doctor, bring copies of her mri scans and ask to be referred to UNM for neurology.. The family doctor might also be able to help with the stomach issues. I never took Tecfedera, but there are some suggestions here on...

Hi Anon, Hi LR, I'm still following this thread with interest. If Gilenya is working for me, then I shudder to think what I would have experienced without it. Recovering from fourth episode in two years. If either of you know of California neuro's wiling to do this and could message me via this boar...

Hi, Sorry to hear you are not feeling well. If your tests come back negative, you can still manage symptoms with your primary care doctor. I hope you are doing that anyway, since MS treatments don't help with symptoms, they only supposedly slow down the disease. If your tests come back negative, eit...

Hi, I would go back to a neurologist and get another set of mri scans. If a neurologist diagnoses you with demyelinating desease, that means you are suspicious for ms. There are other demyelinating diseases, but they are a lot more rare. MS is the most common problem in that category. Another set of...

Hi Kara, Welcome. I'm sorry you have a reason to be here. Pain is a common ms symptom. So are bladder issues. Please do be careful with long term use of tylenol. Many of the ms meds also effect the liver. You are young and could conceivably be on treatment for the next 60 years. Liver function is im...