This Is MS Multiple Sclerosis Knowledge & Support Community

Just heard back from Geyatours with confirmation of the Hospital Hotel and transportation, but still waiting for something from the hospital.
Has anyone received anything back after the first confirmation email?
Thanks,
Alan

Alan I just sent my flight confirmation this morning. I'll let you know when I hear back. Geyatours responded to me within 8 hours when I sent them an email. I am not using their services, but they were prompt. Hi, Thanks for the info, will also post if they get back to me. Only wanted to use Geyat...

Hi All,
Just wondering if anyone had heard back from Bulgaria once you had confirmed your flight times with them?
Also emailed GEYATOURS but also have had no response...

Alan

Hi All, Returned from Frankfurt yesterday and all in all was a positive experience. First had a Doppler Ultrasound performed by Dr Meyn which immediately showed narrowing of both jugular veins....what a relief :D The colour detail of the flow was also very interesting as it highlighted the reverse f...

Many thanks for all the good wishes.
Will post next week on the experience and how it all went.

Alan

Hi All, Will be flying to Frankfurt on Sunday for Doppler and MRV testing on the Monday with hopefully treatment on the Tuesday if CCSVI is found, which is probably what I'm the most nervous about. I also have a date for Bulgaria in May which I've kept until after visiting Germany but if all goes we...

Just found this on a Dutch MS forum, translation isn't that good but makes for good reading: Ingrid: First, everyone thanks for the nice support and congratulations, but to honor where honor is, I'm not involved in the first Dutch Prof. Vogl is treated, but the first of this forum, dubious honor, pu...

Hi,
Many thanks for the info.
Thinking about it, I will ask for a Doppler after, it makes sense really to check that the procedure has worked.....if CCSVI is detected of course....

Take care,
Alan

I wish I could fill in some gaps for you. I had the procedure done with Dr. Vogl on Wednesday past. I wish I knew what the exact Zamboni protocol was, going into the procedure. I didn't understand enough I guess pre procedure. I didn't get a sedative like they do in Poland. I didn't receive blood t...

Hi Alan and Nano! How did you get access to Dr Vogl? I sent him an e-mail in German and only received a standard e-mail reply in English (!) :lol: on the three CCSVI steps they offer - MRV and invasive pressure measurements/balloon dilatation (and stenting only as very last step, guess only if appr...

Have an appointment with Dr Vogl at the end of March and have also been contacted by Dr Meyn in Frankfurt.
I now have a Doppler ultrasound appointment at 1.00pm followed by an MRI at 2.00pm with possible interventional procedure the next day

Only 2 weeks to go...how excited am I

Hi Alan, My brother didn't end up going to see Dr. Vogl. He was still going through an attack and it was recommended to wait until its over to get the testing and treatment done. Let us know how it goes. Wish you best of luck! Hi, Sorry to hear that. Will post all the information once I return. Alan

Hi, My brother has an appointment with dr Vogl on Monday... I am really glad I was able to find this forum as I am not sure of his experience in diagnosing & performing the vascular surgery necessary to treat CCSVI. Please if someone could walk me though what they did from day one till they lef...

Hello everyone, well, I have been liberated. ballooning of two jugular veins. no blood thinners were given following procedure... is this okay? <i#m trying to read posts but most don#t mention blood thinners... I am still in frankfurt and will do full posting of procedurewhen <i return home WOW, Ex...

Livabird, I woke up this morning really depressed. I know I shouldn't be because I have an appointment for April 28th in Bulgaria and a wonderful husband that is my rock. Why am I so nervous? I'm not scared to fly and I've always wanted to go to Europe. I think it's been information overload since ...