This Is MS Multiple Sclerosis Knowledge & Support Community

Just found out, have an appointment with Dr Vogl at the end of March :D Hi allan i too have appt with dr vogl, he is a man of few words. i am trying to get a answer from ie would the procedure be done next day if ccsvi is found. I noticed that this is the case with you, how did you manage to get hi...

I read with great interest all posts and thank everyone for replying to Alan. Replies are very helpful. I am attending on Monday in Frankfurt with possible intervention on Tuesday. I have already had an eco-doppler and was told I have the stenosis so I am hopeful that the MRV will support the findi...

Hi Sophie,
Wow, how exciting, that's fantastic news.
Like I said previously, I have a spot in May in Bulgaria, but carried on contacting everyone to try to get seen earlier and struck lucky with Frankfurt.
Please let me know how you get on...fingers and toes crossed for you.

When are you sceduled? I'm going to Frankfurt on march 30 and since I know the exact date I'm just as nerveous as you although I've read every single thing about CCSVI and noticed all the succes stories... I think I'm afraid of not being diagnosed with CCSVI, so my hopes of a better life will float...

costumenastional wrote:Alan, my main concern is if there is stenosis to be found in my veins.

Did you have yours already checked somewhere?

No, not yet, have appointment with Dr Vogl in Frankfurt at the end of this month.

Alan, it s only normal to feel like this mate. Your hopes and fears apply to all of us. Having said that, i think money are well spent in cases like this, as long as one can afford it. What if you pass? Wont you regret it? On the other hand, if you go for it you ll know that you did your best. All ...

sbr487 wrote:http://www.thisisms.com/ftopict-8346.html

I've seen these posts, but there's not that many.
Maybe I'm just getting cold feet about spending a lot of money and getting my hopes up

When you have a wife and three young children, you just want to try anything to make everyone's life better....

Hi All, I am 43 and have SPMS and have an appointment at the end of the month in Frankfurt and also on the Bulgaria waiting list for May. The one thing that is concerning me is that this forum and many others are full of people like us discussing CCSVI and where and when they are going for treatment...

Many thanks, did you have the procedure in Frankfurt?

I too am nervous, just got confirmation that I have an appointment on the 29th March, if CCSVI is found, it's possible to have interventional procedure the very next day....

Have been communicating with him for a couple of days.
Have appointment on the 29th March, with possible interventional procedure the next day if CCSVI is detected

Livabird, that's fantastic news, you must be very very happy

Although I have a slot in May in Bulgaria, I have just found out that I have an appointment to see Dr Vogl in Frankfurt at the end of this month.....very excited

Just found out, have an appointment with Dr Vogl at the end of March

Anyone have any more information on Dr Vogl, is he performing any of the procedures if CCSVI is detected?
Alan

I know exactly how you feel.....just hope they are organised with the obvious demand, but at least they seem to be allocating months....can't wait to finally get a date